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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes


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About LePandaRouge

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  1. How do you deal with family members and friends who don't take you seriously? I discovered I have celiac disease and went gluten free 6 months ago. The problem is I've been living abroad for several years so my family has not witnessed my symptoms. All these years I hid from them that I suffered from fibromyalgia and chronic fatigue as well as constant GI symptoms and mental health issues, etc... And so I'm visiting them this summer and they seem to think going gluten free has only been a diet choice, nothing dangerous. I tried telling them about the symptoms I was getting. Also, my mother has suffered the same symptoms all her life and suffers from cerebellar ataxia and has had difficulty walking for a few years as a result of gluten. I tried explaining this to them and that if I carried on eating gluten, I'd end up like this too. But it's like their face goes blank and they stop listening at this point. So I feel like I constantly have to defend myself. They especially don't understand why I'm being careful with cross contamination and get annoyed each time I say I can't eat something. For example, I was making gluten free pasta at my aunt's house the other day and she wanted me to use her colander. I said I'd rather not as they use it for wheat pasta all the time. But she was arguing that it's fine and that it's washed very well. I still said no, but she wouldn't let go. Or another example of annoying conversations we have is: Aunt: "can you eat doughnuts?" Me: "No, unless they are gluten free" Aunt: "I have some doughnuts in the fridge, can you eat those?" Me: "Most likely not as doughnuts are generally made from wheat flour unless you took them in the gluten free section, but no one buys baked goods in the gluten free section unless they're looking for gluten free specifically" Aunt: "You never know, maybe I grabbed gluten free doughnuts without realising, let's have a look" - So Aunt gets up, walks to the fridge and brings me the doughnuts - Me: "No seriously, they will be made of wheat. You don't go to gluten free bakeries or shop in the gluten free section unless you are gluten free. It's not something you just stumble on accidently. There are not enough gluten free products on the market for that to happen, unfortunately." Aunt: "You don't know that. You don't know until you read the ingredients." - Aunt hands me the doughnuts - Aunt: "Go on, check the ingredients" Me: "Fine" Me: "First ingredient - wheat flour" Aunt: "ah" Aunt: "But I have biscuits too, can you eat those?" Me: "No, biscuits are made of gluten too" Aunt: "But maybe these are made with gluten free flour" Me: "No, as I said, baked goods on the market are very rarely gluten free" Aunt: "Why don't you just look at the ingredients before dismissing them?" Me: "Because I know they contain gluten! These things are made with wheat flour!" - Aunt gets up and gets the biscuits and makes me read the ingredients - Me: "Made with WHEAT FLOUR" Aunt: "Ah, well what about these other biscuits?" Me: "As I said, baked goods are generally a no..." *Sighs* And so on.... And it gets tiring for me... and them... And the problem is, they raise the gluten issue in every conversation. And when I respond they always seem tired and bored of me talking about gluten. Well then why don't they just let me eat what I want and stop questing and interfering. Is anyone in the same situation? How do you deal with that? (rant over)
  2. I found the answer to my question... They are gluten free... thought I'd post it here in case anyone else was wondering about these. I called Maybelline and they emailed me the list of ingredients found in all the different Shiny-licious lip glosses + a list of ingredients Maybelline use that contain gluten. After comparing both lists, they appear to be gluten free. I put some on yesterday and no reaction. Yay! Thank you for your interest in Maybelline New York products. The following list of ingredients that are used in our products are those that contain wheat and other grains. This list may also be used by the celiac patient to identify gluten-containing ingredients. This list gives the standard industry names for ingredients as found in the International Cosmetic Ingredient Dictionary. Avena Sativa (Oat) Kernel Flour Cyclodextrin Dextrin Dextrin Palmitate Hydrolyzed Malt Extract Hydrolyzed Oat Flour Hydrolyzed Vegetable Protein Hydrolyzed Wheat Flour Hydrolyzed Wheat Gluten Hydrolyzed Wheat Protein Hydrolyzed Wheat Protein/PVP Crosspolymer Hydrolyzed Wheat Starch Malt Extract Maltodextrin Secale Cereale (Rye) Seed Flour Sodium C8-16 Isoalkylsuccinyl Wheat Protein Sulfonate Triticum Vulgare (Wheat) Germ Extract Triticum Vulgare (Wheat) Germ Oil Triticum Vulgare (Wheat) Gluten Triticum Vulgare (Wheat) Starch Wheat Amino Acids Wheat Germ Glycerides Wheat Germamidopropalkonium Chloride Wheat Protein Wheatgermamidopropyl Ethyldimonium Ethosulfate Yeast Extract
  3. Hi all, Does anyone know if Maybelline Shiny-Licious lip glosses are gluten free? I found a few blogs that list them as gluten free, but I have a few problems: 1) There are no ingredients on the product - I emailed Maybelline regarding this, but they never got back to me. 2) Maybelline seem to only provide a list of gluten containing ingredients to watch out for (but it's of no use if the ingredients are not listed on the product!!) 3) The color I bought is 'Strawberry Tart'. I heard strawberry flavoured cosmetics can contain Barley... so in your opinion, if Shiny-Licious are gluten free, do you think this particular Strawberry Tart flavour Shiny-Licious might be suspect? Anyone has experience using Maybelline products? Thanks a lot! Btw, this is the particular one I am wondering about:
  4. Celiac Disease And Narcolepsy

    Yeah I know it's very common in celiacs, and of course whenever I get glutened the fatigue gets worse for a while... but even in my 'normal' gluten free state, I feel extremely tired and spaced out... despite blood tests showing I don't have anemia and have no vitamine deficiencies at all. It's been a lifelong issue too. Oh well, only a sleep study will tell.
  5. Celiac Disease And Narcolepsy

    Hey! thanks for the reply. =) My doctor thought I might have B12 deficiency too, but I passed a blood test a month ago to look for that and everything was fine. I didn't have any vitamin deficiencies actually. I've been thinking about doing a sleep study test yes... I'm pretty sure I have a sleep disorder of some sort... hmm will have to look into it. I just googled sleeping beauty syndrome, sounds crazy! Nowadays it seems every health problem I research can be linked to celiac / gluten... who would have thought something silly like that could cause so many disorders! lol
  6. I was doing some research and came across a few researches that link Narcolepsy to Celiac Disease and gluten sensitivity. Now I find this very interesting because one of my major problem is severe fatigue/sleepiness. It's like I'm never fully awake during the day. I feel like I'm in a sort of (bad) dream state / fog most of the time because of it. I find it painful to keep myself awake and stay alert. And then at night I don't sleep well. I wake up very often with rapid heartbeats and feeling really hot/sweating. I also have episodes of sleep paralysis coupled with auditory hallucinations. I always thought to be narcoleptic required that you randomly and unwillingly fall asleep at awkward times during the day... and though I struggle to stay awake I don't fall asleep randomly... but now I'm thinking maybe I suffer from this? At work most days I get so tired in the afternoon, my eyes are closing and I have to fight to keep them opened. This happened recently at a party. (I wasn't drunk. )... I was in the middle of a conversation and suddenly started to fall asleep, my eyes kept closing, it was so painful to stay awake I was getting a huge headache from it. I noticed some people were looking at me because it was so weird. Anyway, the question is, does anyone here also suffer from Narcolepsy? Did you find that going gluten free helped you? And if so, how long did it take for the sleepiness to go away? (I only found out I was celiac / gluten sensitive recently... I have only been gluten free for a few weeks and imagine it'll take a while before I feel better... but should the fatigue problem have improved by now?)
  7. Ohh, that's a very interesting piece of information. Thanks a lot for that! I think I might have just got closer to the answer. I'm off to research this and let my mum know.
  8. Thanks for the replies! He didn't mention doing a biopsy/endoscopy. I expected him to suggest this as he initially said himself that we might require more than a blood test to get to the bottom of it, but it's like he wasn't as concerned anymore after I got the negative results. Thanks! You're right, I don't need a doctor to tell me to change my diet. So I went gluten free 3 weeks ago and am testing this by myself. It's only been 3 weeks so no major changes, but I'm noticing that my acne is clearing up!!!! I can't believe it! I started doing a lot of reading and already am a bit of a health freak so I should be alright witth he diet... my problem will be restaurants... I LOVE eating out. Sadly my doctor didn't print out the results for me... but the tests ran were to check for celiac antibodies + any vitamin deficiencies + red/white blood count + cholesterol + tyroid, liver, pancreas (etc) function. Everything came back looking fine according to my doctor. He said the red blood count and iron was a little low, but nothing dramatic. As for steroids, I have not taken medication for asthma since I was a child. I was prescribed something now, but haven't started taking it yet. I do take a lot of vitamin B supplements though! ---- I guess I am anxious to have an official diagnosis because my mum has had the same symptoms all her life... doctors never found what it was... and in recent years she developped neurological symptoms.. she suffered nerve dammage and was diagnosed with unexplained Cerebellar Ataxia and Fibromyalgia... and obviously I'm afraid to go down the same path. Maybe all this time she's been suffering from Celiac disease too...
  9. Hi there, As the title says, I was just tested for Celiac disease and got a negative result. I had never heard about celiac disease before I went to see a GP about the many symptoms I've had for years. After being in his office for 5 minutes, he said "I'm having you tested for celiac disease!!". It sounded as though he had never been so sure about anything in his life. lol Here are some of my symptoms: - Chronic migraines - Bloating / abdominal pain / diarrhoea / constipation / feeling sick - Chronic fatigue (long lasting - over 10 years) - Aching joints and muscles - Feeling weak / dizzy - Numbness and weakness in right arm/hand - Acne / psoriasis - Back / neck / Shoulder / knees pain (despite exercising) - Reaction to gluten (and more recently also to lactose) - Depression / Anxiety / Fear and avoidance of social situations (made much worse - if not caused - by the fatigue and constantly feeling ill) - I'm underweight no matter how much I eat (I'm 5'8 and 100-110 pounds... I dropped at 85 a few years ago) - Anaemia on/off - Feeling dehydrated despite drinking enough water - Random sore throats - Sometimes get lymph nodes on my neck that are quite painful and make my neck swell - Asthma / hyperventilation - Feeling spaced out (to the point of feeling like my movements are a bit delayed sometimes) - As a child doctors couldn't figure out why i couldn't put on weight, I had anaemia to the point of having so many bruises the doctors thought my parents were beating me. Maybe I should precise I'm 26. Anyway, I tested negative for celiac disease and the other tests suggested everything is fine... no serious vitamin deficiency, all organs working fine etc. So what the hell is wrong with me then? My doctor was very understanding at the start and took this very seriously (to my surprise - I hear a lot of doctors are unhelpful when it comes to things like celiac disease).. but since receiving the results, I felt he looked at me as though I'm imagining all this. I'm no hypochondriac, gosh! He seemed to still be convinced I have celiac disease but just gave me prescription for asthma and pretty much told me "maybe you do, maybe you don't have celiac disease, who knows, bye". I started the gluten free diet anyway and I'll see the result, but what do you guys think? Has anyone had serious symptoms specific to celiac disease and tested negative with no vitamin deficiency? (Sorry for the long post and thanks for bothering reading it.)