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About ~sparky~

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    New Community Member
  • Birthday July 12

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    My son, daughter and my soul mate are the passions of my life. They are what get me through the day, along with my dog - she admires me even when I am not being admirable.
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  1. I am brand new to all of this and am finding celiac disease quite daunting to say the least! I had a colonoscopy and a gastroscopy done. From the biopsies that were taken, my GI doctor confirmed that I have celiac disease. My doctor then ordered a blood test to confirm that I had the antigens (please forgive me if I am butchering the lingo, as I said, I am new to this!) celiac disease, but the blood test came back negative. He is still convinced I have celiac disease and wants me to continue with the wheat and gluten free diet. I have been wheat free and gluten free for about six weeks now, or as wheat/gluten free as a newbie can be - I am sure I make mistakes without knowing. My problem is that I continue to lose weight and have diarrhea several times a day, even if I only eat rice krispies with soy milk which I know is safe! I have been back to the doctor with my problem and he has ordered a CAT scan and prescribed something for the diarrhea. Has anyone had a similar problem? Positive celiac biopsies and negative blood tests? Or continued intestinal problems with safe foods? Thank you for any advice or help you can offer!