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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes


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About J4K

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  1. I am an RN in an allergy/asthma office. Our allergist's usually do a skin test (also known as a scratch test) to foods that the child normally eats and then will back it up with a blood (also called a RAST) test. If these are negative, then they usually suggest an elimination diet to those food which you suspect your child may be allergic to even if they test negative. (there can sometimes be false negatives or positives which is why they do both tests) For an elimination diet, your take the food out that you are suspecting for two weeks and then gradually add it back in. This is done one food at a time. Also, if the food has tested negative, the MD may choose to do a food challenge test in the office. This is done by giving the child small increasing increments of the suspected food. This usually takes about three hours or more as they want to observe the child for a long period after ingestion. Usually the MD chooses the in office food challenge if the child has had a reaction to the food in the past but has tested negative or very low positive to the skin test or RAST test. Hope this helps.
  2. I agree. Get him tested. Start with an allergist. The tests, though not always fun, are easy and you can leave the office with hopefully some answers about actual allergies. Kids with allergies often have what we call shiners under there eyes. And his allergies will also trigger his asthma. I'm not sure where you live but if you google "find an allergist" you should be able to find one in your area. If his allergies end up being environmental, allergy shots are always an option to help control his symptoms as well. If his symptoms are food related, food allergies can also be tested in the office. Some MD's will have a blood test done (RAST) as well as skin testing. However, food intolerance is a whole different ball of wax. If allergies are ruled out then go back to your pediatrician and ask about testing for celiac disease. If he/she won't do it, find someone who will. Taking him off of gluten prematurely will alter his tests and you will have to put him back on for a month in order for them to be accurate. You are your child's best advocate! I unfortunately have learned it the hard way. A lab test was missed by my daughter's doctor two years ago. Because I am a nurse I started investigating and found she had a blood test drawn that was positive which would have led to her celiac diagnosis in April 2008. I trusted the Dr. when I was told all was negative. In January 2010 I found the result and immediately got her in for an endoscopy to confirm celiac. She has been on a gluten free diet for three weeks now and feels so much better. I'm not telling you this to get you not to trust the medical community (as I am a member). Always ask for copies of results and don't be afraid to ask questions. It often takes a week or so to get most blood results. Be patient but you haven't heard from your child's MD in a week to ten days, call them. As for your son's dad, he will come around if you have the medical community supporting you. Although not perfect, most doctors have your child's best interest at heart and will help your find answers. Good luck! And hope you get answers for your questions!
  3. I'm finding from most of the comments from other moms that their kids are diagnosed as small children or at least preteens. My daughter was just diagnosed at 14. I think I'm having a harder time adjusting than she is but maybe I'm just fooling myself. She just knows she feels better (just three weeks in). Wondering if anyone knows of a book addressed to celiac teens? I know as time goes on she will have more questions and will at some point will be leaving the safe haven of home. For now, I'm cooking everything. I can't seem to get her interested in learning how to cook it for herself. Again this is all new. Any suggestions?