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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes


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About poopedout

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  1. See my reply on your new thread. I think it helps to answer some of your questions.
  2. I found another paper that says that the anti-tTG levels usually drop in people with refractory celiac disease who are adhering to a gluten free diet. There is another substance that is characteristic of RCD. "Taken together, the antibodies persisting in the sera of RCD patients adhering strictly to GFD were IgA antibodies to CRT, while IgA antibodies against gliadin and tTG were below cut-off values." I will see if I can send a link. http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2527357/ That's the best I can do. The old copy/paste technique. There may be some other reason for your increasing anti-tTG levels. The villous atrophy does persist in RCD.
  3. I found a couple of papers that dicussed failure to respond to a gluten free diet. One said this: "The case patient is among a small proportion of individuals with celiac disease whose illness does not respond to a gluten-free diet. The 3 main causes of treatment failure are (i) inadvertent or unintentional failure to adhere to a strict gluten-free diet; (ii) other complicating or coexisting conditions such as small-bowel bacterial overgrowth, lactose intolerance, or microscopic colitis; and (iii) disease refractoriness to a gluten-free diet." There are two types of refractory celiac disease, polyclonal and clonal. The clonal type is more serious and usually people with it have more weight loss which is persistent. I don't think there is a test to distinguish the two types yet. It is only done in research.
  4. On The Couch For 2 Days!

    Perhaps you have microscopic colitis. I read that anyone with celiac disease who does not respond to a gluten free diet should be tested for microscopic colitis.
  5. Thank you for the reply. You have answered my questions about the gluten sensitivity genes and now I know why I can't find information about them except from Enterolab. I did stop eating gluten before I knew anything about Enterolab and I was better but still had diarrhea. I am only back on gluten because I am having a tTG Iga test soon and I want to give it my best shot. I now have lots of evidence that going gluten free again is my best option.
  6. Thanks for the great answer. That was just the kind of information I was looking for. I don't have any ataxia, but my husband might say my brain is missing something. I seem to have the genes that are commonly found in people with microscopic colitis. My symptoms fit that and microscopic colitis responds to a gluten free diet.
  7. What they say is that I have two copies of a gene that predisposes to gluten sensitivity so that means that each of my children will have one copy of the gene. What I am not sure of is whether there is a gene that predisposes to gluten sensitivity. I cannot find any information about it except on the Enterolab website.
  8. My problem is that I have received this report stating that each of my children has inherited a gluten sensitivity gene from me. I need to tell my sons about this but I do not know if this is bogus science or if it is real.
  9. My question is about the difference between the genes for celiac disease and the genes for gluten sensitivity. I did not know that there were different genes for gluten sensitivity and I have not found anyone else talking about them except on the Enterolab website. Is this just an Enterolab disctinction or is this something that is commonly held to be true?
  10. So is it only Enterolab who calls these genes gluten sensitivity genes and tests for them?
  11. Dr. Peter Green says in his book that there are two types of gluten sensitivity. One is patients that improve when gluten is removed from their diet and relapse on re-introduction and the other is patients with positive blood tests for celiac disease but normal intestinal antibodies. I'm not sure what he is calling intestinal antibodies and which are the positive blood tests. He does not write about any genes for gluten sensitivity in his book that I can find. Is that well known that there are genes for gluten sensitivity?
  12. Should my GI take these results seriously? He is the one (also my family doctor) who said I am too old to have celiac disease. I suppose he will say it is "just gluten sensitivity".
  13. So if I am just "gluten sensitive" I can keep eating gluten and it will not harm me. They also mention "immunologic gluten sensitivity" which can be more severe with having two genes. Does that mean that I probably produce anti-ttG antibodies but it will not lead to villous atrophy?
  14. I posted quite a long time ago and I decided to have genetic testing by Enterolab. I have not had much help from the medical profession. I saw the GI doc and he refused to do the gene testing and grudgingly agreed to do a ttg IgA but not a total IgA. I have not had that test yet as I had to go back to eating gluten after being gluten free for six months. I have been eating gluten for almost three weeks now and I am worse on gluten but not drastically so. The results of my gene testing is : HLA-DQB1, Allele 1 0301 HLA-DQB1, Allele 2 0602 The interpretation is that I have two copies of a gene that predisposes to gluten sensitivity but not to celiac. Since I have two copies, I am more predisposed to having gluten sensitivity and it could be more severe. I am not sure how to interpret this. It looks like eating gluten will not harm me. It will just make me sick, but it will not cause villous atrophy or blunting or whatever. How do I know if I have gluten sensitivity since there is no test for it other than my own subjective and biased interpretation of what happens after I eat gluten? Does anyone know if I could have celiac with these genes or if they are present in other conditions like microscopic colitis? Please help me to solve the mystery.
  15. I think it just means you have inflammation of the lining of the small bowel. The lymphocytes are the troops that fight inflammation.