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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes


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About Dino

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  1. Well, fortunately I don't have anything to add to my diagnosis of Celiac. The doctor said I overdid it and am suffering from some exhaustion. In a week's time I had pulled a 28 hour shift for a law enforcement running event and then went to St. Louis a day after for a four day robotics event. She pointed out that I have a disease (hadn't really liked the term disease so just kind of treated it like a condition) and that I cannot handle life as usual and had to really look out for my health. So I just need to take it easy and take care of myself. I think I am not completely healed....if that is even really a possibility to be truly healed as opposed to be under control.
  2. I think I would rather have it be a thyroid issue than a connective tissue disease...well, actually nothing at all. Not to minimize thyroid disorders but know that in the majority of cases it can be treated with thyroid hormones. I was seen by an endocrinologist and followed by him for a year and a half after concern that I might have a nodule in my thyroid as well as a mother who has a thyroid disorder. just prior to being diagnosed with celiac disease. I am used to some joint pain after I accidentally ingest gluten, but that is only a few days and usually only affects my knees. This time it has been my knees, ankles at times and feels like I have arthritis in my hands, particularly my right hand and has been lasting close to a month now. I also have had a higher level of fatigue that has been on going as well for an extended period of time. I also have had muscle soreness. Played softball last week and was sore for almost a week. Not usual since I had been running and weight training with no issues up to a few weeks ago.........Aaarrrgggg it is so frustrating.
  3. I have a doctor's appointment next week. I do not believe that I have had an ANA test done. My thyroid levels were normal so I believe that they ruled out those issues. One thing I did fail to mention is that I also have Raynauld's which my doctor says is related to the Celiac disease. It has gotten worse over the last year even though I have been gluten-free for two years now.
  4. I was wondering if there is a link between Celiac disease and Lupus since they are both autoimmune disorders. If you have Celiac and then were diagnosed with Lupus, what were your symptoms that moved you toward that diagnosis? Over the last three weeks I either have had a MAJOR gluten hit or maybe something more might be going on. I have been dealing with fatigue, joint pain, brain fog, feeling like my heart skips beats and a loss in exercise endurance (was running 5 miles at a 9 min/mile pace and a week and a half later was struggling to complete 3 miles at close to 12 min/mile pace. I don't have the usual Celiac gi issues at this time though which is why I am thinking it might be something more than just the Celiac disease. Also wanted to hear from the guys as well on this one. I know Lupus in men is less common. Dino
  5. I just checked the website under other concerns and it only states that it is sugar free.
  6. has been feeling better over all, except for the occasional being glutened. Is disheartened though since it looks like I have issues with casein too.

  7. I am not sure but does getting "glutened" affect the psyche? It seems that a couple of days after getting hit and the gut seems to feel better my mood stinks. I get angry much easier and go into a depressed mood. This lasts for a day or two. Anybody else experience this?
  8. Ok, I will lay off the coffee, I hear camomile tea is good for the gut so I will trade in my coffee for now. I also am going to start to take probiotics as well as some L-glutamine and see if that all helps. I have been feeling better over all but am kind of tired of the days when I don't so I will be much more consistent and hopefully these things will help.
  9. How much L-Glutamine have you guys been taking.
  10. I have been gluten free for about 2 months. Things seem to be getting better although once in a while I seem to get hit with something that is similar to a gluten hit. Probably some sneaking in as I get used to the new lifestyle. I do have a couple of questions though. Should I back off of coffee. I enjoy it and it did not seem to cause any problems but it has been suggested that it might slow down healing. Also has anyone had any experience with plant enzymes helping in healing?
  11. On my recent visit to figure out what was going on with me the doctor let me get one sentence out and said "Oh, you are IBS" and started to talk to me about anxiety and such. Finally decided to test me after I pushed on about my symptoms.
  12. I think it started with me about 4 years ago when I had a stomach virus that ended up getting into my heart muscle. Even though I completely recovered from that I never felt quite right. Over the last couple of years I have been fighting fatigue to the point that they though I might be going hypothyroid even though the labs were not quite there. Over the last 6 months or so started to have nagging GI issues, nothing drastic but they slowly were getting worse. Saw my doctor about it in April (2010) who initially said I had IBS but relented when I pushed. Tested positive for Gliadin Antibodies and have been feeling better than I have in a long time since being gluten free for about a month.
  13. It was one of two things I had that was different this weekend. From a 2006 post this was in a reply from Coke. Some minor ingredients in these products are manufactured from plants that gluten-sensitive people could react to, so we are unable to state categorically that they are totally gluten-free even though they may have undetectable levels of gluten in them. I will try it again later to see if it bothers me. The other thing was a dinner that was prepared gluten free but will have to go back and check ingredients or was cross-contaminated, but the result was the same as when I was eating gluten. Living and Learning
  14. I was looking at gluten free grocery guides. Since I am new to all this, I find them very helpful but I have an old copy that was given to me. I want to get a new one but saw a couple options. One is from Cecelia's Marketplace called "The Gluten Free Shopping Guide" and then one put out by Triumph Dining called "The Essential Gluten Free Grocery Guide. Which one is best or are they both the same. I have begun to learn to read labels carefully but it is nice to be steered to particular items instead of wading through the sea of labels. Thanks, Dino
  15. Well, my doctor called yesterday. Was shocked that he called me on a holiday. Sounds like he actually looked at everything and as a result of a positive blood test for Gliadin Antibodies and my symptoms as well as the lessing of those symptoms on a gluten free diet he says I am gluten intolerant/celiac. I do have to say it is nice to have a doctor make the statement even though a dietitian and myself had come to the same conclusion with the help of input by those on this site. I have been gluten free for about 5 weeks and have begun to feel better than I have in a long time, although I may have ate something that was cross contaminated or the Coke Zero which was new this weekend, and had a brief couple day return of GI symptoms. Now gluten free is the way for me.