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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes


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About leivasfamily

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  1. Rotation Diet

    My daughter is going through similar issues and wondering if you came to a head with your health problems. Any suggestions that have helped you that you can recommend? I hope you are doing better than when you last posted. :-)
  2. Feeling Discouraged

    My daughter and our entire household has gone gluten free, with a few exceptions, but have designated counter for gluten items. I finally had her checked for other allergies that cross react with gluten, and sure enough she was allergic to almost all of them. We recently cut those foods out and it's been 2 weeks, so we hope she starts getting better. She has celiac and her she shows it in edema due to her low albumin that has landed her in the hospital 3 times already. Do you also get affected in similar way? I would imagine most of you get affected with lower/low albumin, no? She vitamin levels are all fine, but she gets iron infusions every 3 weeks or so and b12 shots. It will be interesting to hear from any of you if you have similar symptoms. I'm scared to check for other allergies, because honestly I don't know what else is left for her to eat. We are trying to follow the gaps diet....grain free, dairy free, egg free, sugar free, and gluten free in her case.
  3. I Can't Do This

    I hear ya....I felt the same way with my daughter who already has so many limitations being Downs Syndrome, Hypothyroid, Type 1 Diabetes diagnosed in 2009, and now Celiac. I tell my husband when he thinks its ok to eat things she loves in front of her that it's like the drug addict or alcholic that you drink or do drugs in front of them when they are trying to recover. Same thing.....People have to be conscioentious of that. Now that we eat brown rice pasta, I prefer that over regular pasta. It's great and light. You can just buy the one from Trader Joe's. Many Italian restaurants now have same, you just need to call ahead and talk to manager beforehand and tell him you are coming in, so when you ask, it's not a big deal. Corn tortillas are the best filler foods you can include in your diet, as long as you don't have issues with corn. UDI's bread is good and you can make your grilled cheese sandwiches at home....most likely they are not offered in restaurants. Hang in there.....just imagine it can be worse. There is always others out there that have more issues and can't do anything about them. You have control of your life and you can make it work!! Have faith :-)
  4. Hello Everyone, My daughter has been on a gluten free diet for over 8 months and continues to have protein absorption issues or maybe protein loss. Her albumin is 1.4 and has been receiving iron infusions and b12 shots. Her b12 shot up over 2000 about a month ago, we so figured she was absorbing from the food. Her last iron infusion was a month ago and her recent blood test both show below normal again. She has a celiac genetic test performed and had a high of 16%? something like that. Her new gastro doctor thinks she may not have celiac, but maybe protein losing enteropathy. I feel she still has celiac, but maybe still has absorption issues that she may need enzymes for. The other thing can be lactose...I never took this out of her diet until recently. Her new doctor put her on a medium chain triglycerides oil and she can not eat any other oils, milk, cheese, etc for 4 weeks to see if she is better. My question is can she just need protease enzyme to help her absorb the protein? I have her on probiotic pills as well. She is 20 years old and has: Down Syndrome, 2009 diagnosed with Type 1 Diabetes, and 2010 diagnosed with Celiac based on endoscopy that was not clear cut positive. We hardly ever eat out and I make all the food at home, except gluten-free bread and crackers and maybe pretzels that she snacks on. Please advise.
  5. My daughter was diagnosed with Celiac since July of this year. We've been on a strict diet and have done the following: Cook 95% of meals at home using all gluten-free products, replaced toaster, replaced cookware and utensils, replaced toothepaste, soap, shampoo, conditioner, cream, etc., only drink diet sprite/z-up, propel, and Life water. She was also diagnosed with Type 1 Diabetes last August and is Downs' Syndrome with hypothryoidism. So her vitamin levels are all now up to the norm and she seems to feel a little better. New blood test results as of this week are: Albumin 1.7 Calcium 7.1 Vitamin D and B12 are all normal now Iron is high, but was on supplements and recently taken off Iron 167 Iron binding capacity - 175 Iron Sat - 95 She also has swellen of the feet, legs and abdomen and low blood pressure 78/55 Anyone have any idea why her albumin would be this low and the other factors?
  6. Hello All, I have a 19 year old Downs' Syndrome daughter with hypothyroidism and who last August was diagnosed with Type 1 diabetes and just days ago diagnosed with Celiac Disease after 3-4 months of being Iron deficient, B12 anemic, Vit D deficient, Calcium deficient, amenorrhea, swelling of ankles and legs, hair loss, Low TSH levels, Low Albumin 1.8, fatigue, and moodiness. Trying to find a good website to find information for food ideas for diabetics and celiac disease. Her diet has always been good, but now adding the celiac disease to the mix, it's going to be a lot tougher. Also looking for a support group in Murrieta or Temecula, California area. Any wisdom any of you would like to share that relate to my daughters condition, would be greatly helpful. Thanks much!
  7. Support Group Meeting 6/18

    Is this support group still around? If so, where can I find information on meetings?