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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes


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About SonjaM

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  1. Hot Stomach

    Thanks for your answer. After chidhood, I never suffered any symptoms of celiac disease (but I used to have terrible headaches up until 20 or so). I developed a tremor when I turned 30, and after a neurological workup revealed nothing, I decided to go back and get tested for celiac. Nothing! I do think I'll get tested again after our 2-month gluten fest (daughter is ecstatic and trying to hide any signs of diarrhea so that she doesn't have to go back to a gluten-free diet). I think the elimination diet is a great idea; the only problem is that without a diagnosis of celiac, it becomes too easy to slide back into occasionally eating gluten, since it seems to be in everything. And without the diagnosis, I feel overly demanding with family and friends who invite me to dinner and who then either have to make something special for me, or watch as I disdain their food for my own. The diagnosis would make my behavior less neurotic-seeming. I'm torn between wanting my child to have a firm diagnosis of something we can "fix," and wanting the tests to come back negative so that she can experience the joys of bakery breads, pasta, etc. etc.
  2. Hot Stomach

    Hi- I just joined celiac.com expressly to answer your post!! When I was 5-years old, I too complained of a "hot tummy" to my parents. They were never able to get a better description from me, and frankly, at this point, I have no recollection of how a hot stomach feels. It was my mom, not the doctors, who first suspected celiac disease. This was the mid-seventies and there were ABSOLUTELY NO gluten-free foods that tasted good (or at least, none that my mom we willing to buy or try). I remember not being able to eat any treats or goodies for 6 months. My mom tried to reintroduce gluten on my birthday and gave me birthday cake, but I immediately regressed and started to complain of a hot stomach again. Six months later, she tried again, and I was able to eat gluten and have been eating it ever since. (About 10 years ago, I had my blood tested and an endoscopy, and there were apparently no signs of celiac disease; just a high IgG). I really don't get it, because my symptoms were so extreme at age 5. I now have a 5-year old daughter, and she seemed to be developing the same symptoms I had and so we took her off gluten. A couple of months later, she started developing similar symptoms even without gluten - cramping and diarrhea -- and we found out she is lactose intolerant. After taking her off lactose, she seemed much better, so we reintroduced gluten. There were no dramatic consequences, but about a week later, she started complain of a "hot tummy" and started to have diarrhea again (no cramping this time). Our gatroenterologist told us to wait a couple of months while she keeps eating gluten, and then they'll try the blood panel and if necessary, the endoscopy. (I have to admit that when I was eating gluten-free with her, my stomach felt better as well) Oh, and the dr. had never heard of the hot stomach symptom!