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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

notme!

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  1. consider just one crumb can make your body attack itself - for much longer than the offending crumb is actually in your body, because it causes all sorts of inflammation. so, yeah, get yourself some new condiments and mark them (i use the skull & crossbones - because if you gluten me i will kill you lolz) so that they are yours only! it's very likely that cc is keeping you from feeling better. until you remove all of it from your diet, you will stay in that vicious cycle. so, of course, it's affecting your mood, this disease is systemic - it affects every part of your body - depriving you of good vitamins and minerals that your body uses for self-soothing and mood alteration (and nerves and anxiety, etc) personally, when i get glutened, it takes 14 days to get myself back to 'normal' - then it feels like the fog lifts and everybody doesn't look like a punching bag any more lolz i was constantly glutening myself in the beginning because i couldn't stop licking my fingers! i know, gross, but i'd be making lunch for kids and test the temperature of (chinese food comes to mind as memorable haha) and then lick my fingers - MISTAKE! - didn't even realize i did it until i had to run for the bathroom. so i started using those disposable plastic food service gloves whenever i made food for a while until i could break myself of the habit. evidently i won't lick plastic?? lolz if you are using hand sanitizer, you are not cleaning gluten off your hands, you're just making it sanitized. wash your hands with soap and water whoever said they don't need a new toaster, you can use toaster bags, or when i'm traveling, i use other peoples ovens with tinfoil (top rack! unless it's covered) i would def get a new colander (o, who am i kidding - i used my dx to get alllllll new kitchen stuff ha ha ha - silver lining ! or should i say stainless steel lining ? ) you have some good suggestions from people who have been on the journey you are on - i am sitting here remembering my meltdown at the grocery store the first time i went after dx - it was not pretty! and i left without buying anything haha. if you are still having symptoms, try keeping a food journal. it's easy to forget what you've eaten if you get a delayed reaction which is the case with many of us (mine is usually 24-48 hours after ingesting the poison) i would skip eating out for the time being until you get a handle on what is safe and what to run away screaming from ( sorry - this is turning into a book ) looking forward, be patient and when you get clear for a while, your immune system will run like a champ!! everybody got the pukey flu recently and guess who's got two thumbs and didn't get it? (it's me ) i am never sick anymore and i am surrounded by germ-flinging kids. my husband even got bedridden by this one and i didn't have so much as a sniffle. so, take heart! you're gonna be so good at this! so healthy you won't even know how to act yeah, and tell your kids: this might be your future as it is genetic. joke's on them welcome to the forum
  2. doesn't matter - i always get the old guy riding the donkey.....
  3. imitation crabmeat has wheat. check to make sure your omelette isn't thickened with pancake batter or flour (some restaurants do this) i would not eat at a chinese buffet (or any buffet lolz) in your case, i would make everybody go to pf changs or eat ahead of time and enjoy a glass of wine with pleasant company at the restaurant
  4. a grandma purse lolz - i have one, too, although i call it my 'let's make a deal' purse <bc i'm also old enough to remember that show
  5. gem: MY BROTHER FINALLY JUMPED ONBOARD THE gluten-free TRAIN!!!!!! i think that watching me navigate the gluten-free diet gave him the conviction he needed to try it. he is amazed at how many things don't bother him when he eats gluten-free - doctors gave him every diagnosis you can think of before he went to a gi doc who connected the dots for him! i'm pretty darn happy and so tired of watching him chase his tail. now, if i could ever get through to my (very angry/exhausted/sick all the time) sister............. after all, we (supposedly) have the same mom & dad (maybe she knows something i don't lolz )
  6. this is good advice & it worked for me (i had to do it many different times as i am a slow learner) because, you really don't remember every single thing that goes into your mouth (at least i don't!! lolz) it's been over 6 years for me and i am still improving. sometimes, i need to adjust my diet to eliminate *a particular thing* for a little while, then if i don't go nuts with it, i can usually eat it occasionally (chocolate comes to mind.......... le sigh.........) in the beginning, i couldn't eat dairy, raw veggies, anything with soy in it <soy is still my enemy, but it doesn't cause celiac damage, my intestines just hate it, but i still eat it, just avoid it as much as possible) but i've been able to add dairy back (in moderation) raw veggies (again, as long as i don't go nuts with it) - lots of stuff i've eliminated and been able to add back. trial and error (you're in the 'error' part - get back in 'trial' lolz) experiment with the times that you eat certain things (as others have said) if i want to eat yogurt, for me, i have to eat it in the afternoon, preferably early but certainly before dinner! otherwise, i might as well just spoon it into the commode, hahaha. also, my celiac was undiagnosed for 25 years (trigger was the pregnancy/birth of my son) so, the damage that i have/had was significant. you are now eating the correct diet, so it stops further damage, but if your intestines need to heal, certain things are going to irritate them for a while. YES you are one big science project, isn't it fun? lolz - hang in there, we all had to figure this stuff out individually (and still making adjustments!) because, there isn't a one-size-fits-all. welcome to the club you never wanted to join
  7. i just use the unflavored kind. no problems
  8. whenever i am glutened, i am cranky and mean. try not to take it too personally, mom. i can say this from a mom's point of view, having had to deal with my 19 yo son when he got diagnosed with type 1 diabetes - when he is low, he is a crab and a half. of course, he is least likely to listen to advice when he is feeling like that. it was awful to have to be patient with my growling, nasty offspring but eventually he realized that i wasn't lying to him and he actually felt so much better when he took care of himself. he is 30, now, and eats carefully and gets plenty of exercise (so, take heart, eventually she'll figure it out for herself!) what you want her to understand is that she can break the cycle of gluten making her miserable. give her the power (because, honestly, she's the only one who can control EVERYTHING she eats - you can supervise all you want but it only takes that one cookie when you're not looking ) i like the idea of making your home gluten-free, but i don't know if it's from a common sense stance or a more personal one (ie: gluten is poison for me) haha, but eventually she'll get hungry and find a favorite gluten-free food(s) because she won't have a choice to eat gluten. does that make sense? lolz - good luck - raised 4 myself and grandson is a teenager. i still waste my breath telling him he needs to take a jacket...............
  9. well, that is just disgusting.......... what is their 'ingredient name' going to be ? (all natural!! lolz)
  10. we were just there in january (stayed in pigeon forge) and there are 2 mellow mushrooms in pf, one in gatlinburg. ate at both in pf and was safe (one on the island and one on the parkway <the one on the parkway had a bigger menu) margaritaville on the island was delicious and safe (the manager even came out to our table and asked if there were any other dietary issues the kitchen should be concerned with) and we also ate at hurricane harrys on the parkway <also delicious and safe) i know these are sort of chain restaurants, but we were on a schedule, so, no time to explore off the beaten path. there was a candy store in gatlinburg on the strip that had gluten-free candy (caramel! yum!) and i bought some yummy mustards from a place called 'all sauced up' lolz look on find me gluten free app - there were a few places i wanted to try/had good reviews, but were not open or we weren't able to fit them into our schedule when they were open. one was the pigeon forge deli, the other was crystelle creek (gatlinburg). if you try any of those, please let us know how they were! i had a good, safe visit. welcome to tennesee
  11. bonefish is one of my 'go-to' restaurants as i can usually find one nearby and have had very good luck i've eaten at one in knoxville, tn, one in johnson city, tn, one in winston-salem, nc, and one in panama city, fl. on one hand, i wish they had a bigger gluten-free menu, maybe make one of the 'specials' gluten-free. on the other hand, i'm thankful i can eat out with relative confidence. and if you're in cincinnati, oh, DON'T eat at the red robin at the mall in madeira!!
  12. it's flu season, here, too. they shut the schools down the week before last because their attendance was so low due to illness. two of the grandkids got it (i watch a bunch of kids) but i didn't get it. again hope you feel better!
  13. for the first few years, i would freak out once a month over my sudden lack of digestion - what was i eating wronggg?????!!! but it was my hormones (pms) just something to remember in case that affects you. lolz, after i remembered, i just ate whatever (gluten-free) junk i wanted, because it wasn't going to digest well, anyway...... you are not doing it wrong. if you can tolerate (gluten-free) bread, pasta and cereal, by all means, eat it! if your taste buds are happier, you will find it easier to stick to the diet honestly, i think when the inflammation goes, you lose alot of water weight. i was so malnourished that i gained weight almost immediately. like others have said, many of us 'level out' with our weight but in the beginning it may fluctuate. welcome to the club you never wanted to join (but we're cool. and we have snacks )
  14. (raisins = blech, lolz) would psyllium fiber be good? the america's test kitchen 'how can it be gluten free' cookbook has some baked good recipes that have psyllium in them - pizza crust comes to mind what 6 y.o. doesn't like pizza
  15. gluten dude is a major whiner, in my opinion. (and shouldn't it be 'gluten free dude' ?) i believe he makes his living off of the website, so why wouldn't he continue to cry about it? after all, he's been gluten-free since 2007 - you would think he would have a handle on this disease by now, especially since he's THE gluten dude. we all mess up now and again, we take our lumps and we carry on. for me, it's 2 weeks feeling crappy <literally lolz) then i'm back to good. better than ALWAYS feeling terrible, which was the norm for me pre-dx. and, the first year or so after i went gluten-free, i skipped the church potluck (nothing i could eat) and events that were centered around eating/food. i USED to go to the fundraiser at the zoo which was a local restaurant tasting - basically walking around the zoo and eating. you know, can't eat, what's the point of going? so, i get where you're coming from. but, once i got my 'rhythm' going, got in the gluten-free 'groove' <haha you can tell i'm old!!) i started socializing again and i was surprised at how many people i know who have to eat gluten-free!! but if i never went to these events, i would never know. so, when i make something to bring that is gluten free, i'm making some other people happy, too! just last night, one of my friends who has a gluten-free daughter and knows that she has to be very careful (she knows the 'rules' lolz) made a chocolate cake that i could eat small victories, but victories all the same!! you'll get there