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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

notme!

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  1. a friend of mine, who has been diagnosed celiac, is also being tested for ms she was hospitalized because they thought she had a stroke and she was having trouble using her left side. it seems like every other day they are poking at her and testing her and changing her dx. (i don't think she's doing the diet in 'detail' and i keep urging her to come here and ask questions, but all these doctors are taking a pop at her..... ) i'll ask if she's had a spinal tap, being as that was one of the questions she had: whether celiac can *cause* ms, and if so, can it be cured/reversed. poor kid, she is such a sweetie...
  2. thank you i will look for it. i was switching around ( culturelle, walgreens probiotic, walgreens probiotic with enzymes, just plain digestive enzymes) so, i know what you mean. at that point, i couldn't tell what was messing with my gut and what wasn't bothering me. ima try those, and *just* those and see how it goes. thanx again!
  3. i did exactly the same thing: went off them because i was uncertain if they contained gluten. (also, i stopped with the digestive enzymes for the same reason) but lately, i am wanting to try them again. what brand tested safe, if you don't mind me asking?
  4. i eat at MY red robin all the time - whoever said it's so nice to feel 'normal' and grab a burger, how right you are!! so, the one closest to me (knoxville) hasn't done me in yet but i did eat at one in madeira ohio that was not safe (it was the one at the mall, not the other one) so, it depends on which one i guess. the one in rockaway mall in nj is also very good ps - they will sell you the buns - not cheap, i think they're a buck apiece - but they come frozen in sealed, individual packages and are soooooooooo much better than any burger buns i can find at the supermarket. (i get like, 8-10 and bribe my gluten-free brother with them lolz)
  5. is that the disease that makes you incredibly shiny and irresistible to truckers???!! i think i have that. explains the husband, too......
  6. next weekend we are meeting the besties in concord nc and we will be traveling from east tennessee. i was looking around asheville to maybe stop for lunch/brunch. just wondering if there's places to eat around the racetrack (staying 1/2 mile from the track) or even concessions inside the racetrack that would have safe options. still going to bring safe food, but it would be nice to enjoy a meal or two without having to fuss over it. also, eating with other people is nice any race fans out there to help a motorhead girl out? lolz (I'M SO EXCITEDDDDDD!!!!!! YEHHHH!!!!)
  7. ditto - also, find me gluten free is not infallable, i usually look for recent reviews and celiac advice. buzzwords: dedicated kitchen space, celiac friendly, etc, but i have found it to be very helpful in being able to enjoy some safe meals not fingerprinted by ME (which is sooooo nice!!) but, ya know, human beings are writing the reviews and some people are just stupid. we all have different degrees of sensitivity, other issues going on, and different stages of healing. i don't have crohns but i have other food allergies that i need to be careful of. one size does NOT fit all in this disease and i will thank everyone to be reminded that we are all in the same boat and to use some consideration and respect. *the more you know* rainbowwwwwwwwwsssstarrrr
  8. i think they just like chucking the word 'natural' in there, so it sounds healthier. and gluten free or not, i'm not eating that weasel..... eewww....
  9. truth! lolz! i still used my kitchen aid mixer, but always was paranoid about 100 years of regular flour sneaking out of the mixer itself (it used to be my mom's and it was well worn) last Christmas i got a shiny new red one that doesn't sound like a bulldozer. so, ya know, if hubs really wants to be a butthead, hit him in the wallet
  10. ^^^^^^ good info, tips and tricks^^^^^^^^^ yes, crumbs will make you sick. also, breathing flour/pancake mix, etc that is in the air because eventually, you're going to swallow some.
  11. don't forget how sneaky celiac is: i never noticed how incredibly awful i felt (and it was over a long period of being undiagnosed/never heard of celiac until it almost killed me) because it creeeeeeped up. a little migraine here, a little neck pain there, allll the gi symptoms, a little rashy rash here, a little pneumonia there, a little less energy here, a little weight loss there. it's not, oh, i ate gluten and now i feel like a truck hit me and you can pinpoint exactly what you ate. nope. it's constant inflammation that messes everything up and causes symptoms that most people don't connect as being caused by the same thing. i never knew how terrible i felt until it started going away. and even then, it was like peeling an onion: things went away a little at a time (haha i had a 'background headache' that i didn't even know i had until one day i woke up and it was gone!!) good luck
  12. (*ahem*) IF it was legal in my state, i would tell you that it is ridiculously helpful because it would be the only thing that would make me more hungry than dreading eating. i would tell you that it will stop hiccups, so it soothes nerves and it has been shown to be advantageous in the treatment of so many different conditions - even ptsd and parkinsons - i don't see the reasons why it is not available medically nationwide. but, i am not a politician, i am just a lowly celiac sufferer. it WOULD calm my gut, if i were able to say that legally it wouldn't take very much, so, i wouldn't be walking around all stoned, and it's not addictive, so i wouldn't be selling my grandma's jewelry to get some...... but, alas, it is illegal in my state, so, i can't say any of these things.
  13. this is a very common subject on here. personally, most of my tests were negative, but i did the same thing you did (stopped eating gluten before the tests) my gi advised me to continue eating gluten free because i was so malnourished and when i stopped the gluten i actually began to gain weight. in other words, i think she was afraid for me to do the challenge bc it might kill me lolz. some people want a definite dx if they have kids that need to be tested in the future, some will not follow a strict g//f diet without a firm diagnosis (they think they can cheat just bc they were never formally diagnosed) what happened with my scope is the dr saw evidence of damage. that and my response to the diet were enough for me. she advised me to stay gluten-free and i agreed. it's been tough sometimes, but i never purposely cheated (that's how near death i was - swore i was dying of the big 'c'.......what a relief to not have that and my 'chemo' is 'impasta'. or fake bread. ) welcome to the forum and good luck with whatever you choose
  14. meeeeeee!!!! i used to get pneumonia every single winter!!!! and all the flus and colds, etc - i am surrounded by kids and germs, but when they all get the flu, i do not. my husband (mr-play-through-the-pain) even got knocked down (spent 2-3 days in BED miserable) by the last round of virus, but not me. not to mention no headaches, no migraines, etc. hormones and the dreaded menopause, like hellodee2 said, is a whole 'nother ballgame lolz glad you are feeling better
  15. consider just one crumb can make your body attack itself - for much longer than the offending crumb is actually in your body, because it causes all sorts of inflammation. so, yeah, get yourself some new condiments and mark them (i use the skull & crossbones - because if you gluten me i will kill you lolz) so that they are yours only! it's very likely that cc is keeping you from feeling better. until you remove all of it from your diet, you will stay in that vicious cycle. so, of course, it's affecting your mood, this disease is systemic - it affects every part of your body - depriving you of good vitamins and minerals that your body uses for self-soothing and mood alteration (and nerves and anxiety, etc) personally, when i get glutened, it takes 14 days to get myself back to 'normal' - then it feels like the fog lifts and everybody doesn't look like a punching bag any more lolz i was constantly glutening myself in the beginning because i couldn't stop licking my fingers! i know, gross, but i'd be making lunch for kids and test the temperature of (chinese food comes to mind as memorable haha) and then lick my fingers - MISTAKE! - didn't even realize i did it until i had to run for the bathroom. so i started using those disposable plastic food service gloves whenever i made food for a while until i could break myself of the habit. evidently i won't lick plastic?? lolz if you are using hand sanitizer, you are not cleaning gluten off your hands, you're just making it sanitized. wash your hands with soap and water whoever said they don't need a new toaster, you can use toaster bags, or when i'm traveling, i use other peoples ovens with tinfoil (top rack! unless it's covered) i would def get a new colander (o, who am i kidding - i used my dx to get alllllll new kitchen stuff ha ha ha - silver lining ! or should i say stainless steel lining ? ) you have some good suggestions from people who have been on the journey you are on - i am sitting here remembering my meltdown at the grocery store the first time i went after dx - it was not pretty! and i left without buying anything haha. if you are still having symptoms, try keeping a food journal. it's easy to forget what you've eaten if you get a delayed reaction which is the case with many of us (mine is usually 24-48 hours after ingesting the poison) i would skip eating out for the time being until you get a handle on what is safe and what to run away screaming from ( sorry - this is turning into a book ) looking forward, be patient and when you get clear for a while, your immune system will run like a champ!! everybody got the pukey flu recently and guess who's got two thumbs and didn't get it? (it's me ) i am never sick anymore and i am surrounded by germ-flinging kids. my husband even got bedridden by this one and i didn't have so much as a sniffle. so, take heart! you're gonna be so good at this! so healthy you won't even know how to act yeah, and tell your kids: this might be your future as it is genetic. joke's on them welcome to the forum