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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes


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  1. Annoying Friends!

    I know Somehow that's less weird-sounding than gluten... it's oversimplifying but these people aren't cooking for her anyway.
  2. Annoying Friends!

    My 13 year old daughter had a big issue at first with people acting all sorry for her in an annoying way. (Especially her grandparents....) Now she emphasizes what she can eat and it helps. As in "I can eat ALL fruits and ALL vegetables and ALL dairy and ALL meat and ALL rice and ALL potatoes.... just not stuff that has been cooked with bread parts." When you put it like that it downplays the different-ness. It has helped.
  3. Our biggest challenge at social gatherings is CC. My daughter's 13, and friends like to share their and her food, but it's easy for them to forget that they can't eat one of their cookies and then dip into her bag of M&Ms. She tells them, and they try, but she has to be constantly vigilant. I promise you it will be MUCH easier to make the whole party gluten-free. Fruit salad (served with toothpicks -- kids will eat anything they can stab with a frilly toothpick), cheese and gluten-free cracker trays, chips, gluten-free pretzels, candy, veggies and dip -- this is all very easy and doesn't scream gluten-free to your guests. For protein -- tacos (the corn shells, of cours), homemade meatballs, deli meats rolled up to be finger foods, nuts. You can serve things in small cupcake liners to make them pretty.
  4. My 13 year old daughter was diagnosed via blood work (and confirmed via biopsy) in August. We started a gluten-free diet right away. She rarely had any stomach problems, but was tested because of short stature - under 1st percentile. She had grown less than a centimeter by October (2 months) but had grown 4 cm and 2 lbs by her March checkup (7 months on the gluten-free diet). The doctors are very happy with her progress. I was very small as a child but am now average height, so her height wasn't a red flag until her growth curve suddenly flattened. You didn't say how long your son has been on a gluten-free diet, but I'm sure it takes some time for the intestines to heal and be able to properly absorb nutrients. I can't speak to improvement of psychological symptoms, because she didn't have any before switching, although it has occasionally been hard for her on her new diet.
  5. My gluten-free daughter and I just got back from Disney two weeks ago. I've never had it so easy dining out with her, and I was SO worried before I left! I had packed an entire small suitcase of food she could eat - everything from pretzels to bags of nuts to fruit snacks -- and we ended up using almost none of it. They really do take it seriously, and even in the quick service places no one ever gave me that blank "gluten free???" stare when I mentioned it. At quick service places, like a resort food court, the gluten-free choices are pretty limited. Yay that there's gluten-free pizza, but that was about it for hot food at our resort, except for waffles (which my daughter had every morning and never got tired of). The restaurants were always fantastic. We had such a good experience at the Rainforest Cafe in Downtown Disney that we actually went back a few times. The Hard Rock Cafe at Universal was also surprisingly wonderful. Disney never makes you feel as if you're imposing, or causing them extra work. I haven't felt so comfortable dining out with my daughter since she went gluten-free in August! For example, one of the stores was making fresh fudge, and I questioned the cashier about it. (Most fudge is fine, but still....) In about a second she had pulled out a book of ingredients and flipped to the correct page. We didn't have to "walk away rather than take a chance" and it was a very good feeling. Kudos to Disney! You pay for the wonder, but in this case, you get what you pay for.
  6. Jealousy?

    FWIW, we have a toaster oven, and rather than buying an entire new one I was able to call the company and get another rack. We wove foil around the edges so there can't be any confusion, and it's stored in the cabinet with the gluten-free baking supplies. Our nutritionist, GI, etc doctors are completely okay with this. We have a Black and Decker toaster oven (it was about $150 and it's rather large, so I really didn't want to duplicate it unnecessarily) and the rack was about $10, with free shipping. Just a thought.
  7. Thanks so much. I'll look for Bette Hagman recipes!
  8. I was out of it for a few hours after mine, but totally fine by the afternoon. My daughter was groggy for about 5 minutes after she woke up from hers, then was fine on the car ride home and went to a friend's house that afternoon. Your mileage may vary, and I'm sure they wouldn't want you operating heavy machinery or mountain climbing that day, but aside from possibly being a bit tired you're probably fine! Have a great time
  9. Michele, It's great to hear how well it has worked out for you. Personally, as I'm new to this, I could always use some tips on gluten-free cooking.... I made a roux last night with gluten-free flour instead of the usual AP and the sauce was denser and gummy, not at all creamy as usual. For my daughter's sake everyone pretended they didn't notice, and she didn't complain at all, but I could see she was disappointed. I didn't make a big deal of it and mentioned that I'll be learning a lot in the upcoming months, but I wonder what I did wrong. I bought the flour that supposedly can be used straight as a substitute, ($10+ for a small bag, grrr) but with the gluten-free things I have tried so far I don't believe anyone who says they can't tell the difference! We've always eaten healthily (eg lots of vegetables, lean protein, very few chips/fried foods, whole grains instead of white, etc) so this isn't a "step up" for us diet-wise. She has always eaten better than her friends, so unfortunately that's not a selling point to her. I've never had an even slightly negative attitude around my daughter, and I don't get the impression that the OP does either. In my case, at least, what I'm worried about is the social aspect. I've heard of kids who have been excluded from parties because the birthday child's parents thought it would be kinder, or were excluded from playdates/sleepovers because the parents were uncomfortable with the food situation. I'm casually spreading the word that my daughter knows what she can eat, knows what questions to ask if necessary, and that people don't have to make any special accomodations for her at their houses -- she'll pack some food just in case. I've bought gluten-free cookies for her to share with her friends. I'm doing a lot of research and trying a lot of recommendations, but somehow I still feel sad about it, as if my genes and I have failed my daughter.
  10. My daughter's asymptomatic, except for short stature. Her doctor was concerned at her 12-year-old physical that her growth curve had leveled out, so sent us to an endocrinologist.... and surprise (3 weeks ago) she has celiac. She has always been small, but so was I, and now I'm 5'5", so no one thought it strange. Apparently all of her numbers (blood tests, endoscopy biopsy results) are off-the-charts positive so there's absolutely no question. We're all in shock. She's always been such a healthy girl. She doesn't even have any allergies or lactose intolerance although her fraternal, non-celiac twin sister has. She's a very athletic competitive gymnast whose favorite foods are pasta, bagels, and take-out pizza. We're meeting with a nutritionist on Tuesday to learn more about transitioning her to a gluten-free diet, and I just feel so sad for her. I'm very positive and upbeat around her, but my heart is breaking. She's about to enter 7th grade and has loved gluten all of her life. It's going to be a tough year!