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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.


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About ljgs

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  1. Hi, I'm the original poster here. Thank you SO MUCH, everyone, for your responses, whether to commiserate or ask me to clarify things. I truly appreciate it! Just to clear a few things up...my teen is really pretty chill about her celiac. She has been taking her own food everywhere for awhile. To be honest, this issue is my own irritation with my mother-in-law. I pretend it's my daughter feeling awkward but it's really me being pissed off that she's putting forth zero effort after inviting us over!!! Like I said, my daughter is used to eating before she goes to peoples' houses or bringing gluten-free cereal to hotels that offer buffet breakfasts. The thing that gets me about this situation is that it is her OWN GRANDMOTHER, and she should not have to tote a bag of gluten-free bagels to her own grandmother's house!!! My in-laws definitely have worked with us in the past with accommodating her. It's not that they don't care about her--they do, and once we're at their house they will be careful when it comes to cross-contamination, etc. But Adalaide, you are right: They are lazy in the kitchen in general, not so careful about their own diets, so they don't seem to want to go out of their way to find the safe food in the first place. They have done so in the past, but seem to be getting lazier about everything. I guess they figure we have the gluten-free bread at home, so why not just ask us to tote it along instead of making an effort to go to the gluten-free section at the store. Meanwhile, my brother-in-law runs around to different stores to find things for my daughter when he cooks for her once or twice a year. Such a difference in effort, and so very much appreciated!!! Frieze, you asked if my in-laws are on a fixed income. Not in the least. Plenty of cash there. That is not the issue at all. Massagemamaof3 and Mommy2krj, I'm so sorry you've had to deal with thoughtless relatives yourselves. I guess there is a whole spectrum of behaviors, from indifference to downright hostility. Wow. Let us all take deep breaths and smile and move on, right?
  2. Grrrr.....I just need to vent. My 16-year-old was diagnosed 3 1/2 years ago, so all the grandparents have had plenty of time to get educated and used to this. My mother is an excellent cook, and my parents always go out of their way to be careful during holiday dinners so my daughter has safe choices. If my kids are staying at their house, they will have gluten-free breads, cereals, etc., for my daughter. My in-laws, however, while always aware of our daughter's needs and concerns, are much less interested in going out of their way to get food for her. Several times over the past year, when we've been invited over for take-out food (they don't cook), my MIL will ask me to please bring something for my daughter to eat. This weekend, she and my father-in-law are hosting a bagel brunch at their house. She just sent me a message this morning to please bring along gluten-free bread so my daughter has something to eat. Are you kidding me? You invite us over and AGAIN ask us to bring our own food? Is it so much to ask that she throw a package of Udi's bagels into her cart??? You can find them everywhere here. I took a deep breath and nicely explained to her, yet again, that it really makes my daughter feel singled out to have to carry her own supplies with her everywhere and that she feels much more included when the food is waiting there for her, like it is for every other invited guest (the key is the word "invited," isn't it?) I understand that some people aren't comfortable cooking for a celiac, but come on! We're talking about bagels! What is the deal with her????
  3. It certainly is good to know I'm not alone!!! While I do my best not to worry about things that are unlikely or largely out of my control, when I hear about someone being diagnosed, I do worry about my daughter. She has the DQ2.5 gene, but then again almost all celiacs do. And her father has both DQ2.5 AND DQ8 and is neither celiac or diabetic. So the odds are good she'll be fine. Thank you all!!!
  4. My 15-year-old daughter was diagnosed with celiac disease two years ago this week. She has been extremely compliant with the diet and her antibody levels quickly normalized. But I remain terrified that she will develop Type 1 diabetes. Every time I hear about someone developing this disease, I worry all over again. There is a lot of talk about diabetic children developing celiac disease, but not as much known about celiac children developing diabetes. Can anyone offer any consolation or advice? Chances of developing Type 1 diabetes? Thank you.
  5. Maximoo, if your daughter has only been gluten-free for six months, there's a good chance that eating gluten all those years affected her nutritional absorption and is the reason she is still petite. Now that her body is absorbing nutrients, she may catch up in height. On the other hand, her father is quite short and so she may very well top out just over five feet. But that's okay!!!!!!
  6. I understand that some celiacs don't have any outward reaction to gluten--my teenage daughter does not get any of the obvious symptoms that hit some celiacs so hard, but her diagnostic biopsy last year showed enormous damage to her intestines. My concern is for people who believe they are okay with a little contamination because they don't "feel" it, when inside the damage is being done!!! Takala, thank you for the info about soy sauce. We do use gluten-free soy sauce at home, of course, but what this friend of a friend's daughter is doing is simply eating Chinese food anywhere and everywhere without inquiring. And I'm sure that the overwhelming majority of little mom and pop Chinese joints are not bothering with gluten-free.
  7. Thanks, all, for agreeing with me. When I met the father last year and he told me that she eats soy sauce, I immediately wondered what the deal was with this family. Also, the mom told me that after being diagnosed at age two they never bothered getting the kid any further bloodwork or follow-up testing. My daughter was diagnosed a year ago and we have been SO CAREFUL. Her TtG at diagnosis was 169 and now it is 2. She had tremendous intestinal damage and very few symptoms. I know from experience that if she accidentally eats gluten she does not feel it. But those biopsy pictures proved all the damage. I think this family is pretty ignorant, but of course they know better because after all their daughter has had it for 17 years and mine only one!
  8. A friend of a friend has a college-age daughter with celiac disease, and she says that the girl was tested for something called "contamination celiac," which is when you are sensitive to the remnants of gluten. Apparently this girl is able to eat cold cuts lifted directly off bread or pick croutons out of the salad and then consume the salad without any ill effects. She says you can test specifically for this. Her father also told me that she can eat Chinese food because she doesn't react to soy sauce. I have to admit, after he said that, I was very skeptical that this family was really doing everything they could to keep their daughter safe. I have never found anything online about a condition called "contamination celiac." My understanding is that celiac is black and white--you either have it or you don't, and if you have it then you absolutely cannot eat things that have touched bread, and you cannot eat soy sauce even though there may be just a small amount of wheat in it. Thoughts, anyone?
  9. My 14-year-old is visiting London for the first time with her grandparents this coming April. She is 7 months gluten free and normally does very well. She knows how to read labels and how to ask for things in restaurants, and her grandparents have been well prepped. They're staying in a flat with a kitchen, so breakfast will not be a problem, and I have scouted out several restaurants in South Kensington, where they will be staying, that have gluten-free options. They will make a trip to Whole Foods to buy supplies. I wonder, though--are the food labels the same in England as they are here? In other words, if it doesn't say "wheat" or "barley" in the ingredient list, is it definitely safe? Do they have gluten-free Chex cereal in England? Best place to buy Genius bread, which I've heard is great? Another concern is when they're out all day--lunch! At home she takes either a gluten-free sandwich or a thermos of something hot to school. Where can she safely eat while at a tourist venue? Are there any quick-service chains that she should be okay at? Any restaurant suggestions would be great, too.
  10. Thanks, all. He was tested for celiac antibodies and was definitely negative. And you're right--he is not that short. In fact, we took him to an endocrinologist last year who said there was absolutely no cause for concern. So I do feel a little like I'm overreacting by taking him off gluten. But it turns out, now that I've really scrutinized my pantry, that all four of us are eating less gluten than before just as a result of my daughter being celiac. I still buy regular wheat bread and cereals, but I'm going to encourage my son to eat the gluten-free stuff for now--even if it's just for a week--and see how he feels. I don't want to take him off gluten if it's not medically necessary. I know some people hate gluten and act like the gluten police, but all the dietitians say that if you don't have celiac or a true sensitivity, it's healthier to eat gluten.
  11. My daughter was 13. She had been having on and off stomach pains through 7th grade. Nothing debilitating, but I just felt something might be "off." Boy, was it ever!
  12. My 13-year-old daughter was dx with celiac six months ago. Her bloodwork was sky-high and the biopsy showed damage. She's done beautifully on a gluten-free diet. My 10-year-old has no obvious symptoms of celiac and his bloodwork was negative. The only issue has had had is that he is on the short side, maybe in the 20-25th percentile while the rest of us are fairly average. A few weeks ago he had several episodes of seemingly random joint pains along with a little bit of urinary discomfort. We had a lot of bloodwork done and everything was negative--Lyme, rheumatoid factor, sed rate, etc. Basically, all the markers of infection. The rheumatologist feels this is a classic case of reactive arthritis (an autoimmune reaction) following an upper-respiratory infection he had last month. There was also a terrible gastro bug going around his school that he didn't have symptoms of. Right now he has no joint pains or urinary discomfort or anything, but a friend of mine who is an integrative medicine physician told me I should try taking him off gluten to see if that prevents any joint recurrence and to see if it encourages his growth. Obviously there is autoimmune disease in our family. She is very against gluten in general and has all her children avoid it even though they don't have celiac but rather a bit of sensitivity. What do you think? Is this overkill?
  13. I found it this week at Whole Foods in NJ. My daughter, who is not a fan of raisins, gasped audibly when I made her two slices of French toast last night using the bread. It was so good, we made more French toast and she reheated it this morning for breakfast. A definite thumbs-up!
  14. I'm sure she had all good intentions, but don't take a chance. Bake some gluten-free cookies yourself and just keep smiling.
  15. Anyone know if the TJ's bacon-wrapped beef and bacon-wrapped scallop dishes in the freezer section are gluten-free? They don't seem to have any gluten ingredients, but they don't appear in the official TJ's gluten-free list. Corporate never e-mailed me back so I'm waiting for a call back from my local store, which said they'd contact the buyer and ask. Want to serve them tonight!!!!