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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes


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About Nen

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  1. Yeah I was betting that would be the best one. I wonder would the Celiac Disease Antibody Screen also be a good one? I know that one is missing the IgG. Isn't that the antibody that some people produce only that one and not the IgA? The cost looks a little less scary on that one vs the Celiac full panel, but then again the full panel might catch something the antibody screen does not.
  2. I am trying to figure out which blood testing to get, I talked to my doc and he doesn't directly do blood testing anymore so I would be working directly with a lab (I order the test, they draw the blood then tell me results). I hope it is ok to post this here, there are different ones offered, all blood tests: It is through requestatest .com search for celiac and the list comes up. 1) Tissue Transglutaminase, IgA Testing (Tests for: Tissue Transglutaminase (tTG), IgA) 2) Tissue Transglutaminase, IgG Testing (Tests for: tTG, IgG) 3) Celiac Disease Panel (Tests for: Endomysial Antibodies, Tissue Transglutaminase (tTG) Antibodies, Total IgA) 4) Celiac Disease Antibody Screen (Tests for: Deamidated gliadin IgA; tissue transglutaminase IgA; serum IgA quantitation) 5) Celiac Complete Panel (Tests for: Deamidated gliadin IgA & IgG, tissue transglutaminase IgA & IgG, serum IgA quantitation) 6) Tissue Transglutaminase Tests, IgA and IgG, (Tests for: tTG, IgA and tTG, IgG)
  3. Looks like it would be a direct testing through LabCorp, and the panel tests for Deamidated gliadin IgA; tissue transglutaminase IgA; serum IgA quantitation. Does this sound good? I never know what all that means. Looks like it costs about $140 to get.
  4. Eh well a little more road-blocks put in the way. I guess our doc no longer draws blood in his office anymore at all so we would have to get ahold of a lab company and figure it out for the cost.
  5. Made the call to the docs today to find out the cost of testing, and waiting for them to get back to me!
  6. Thanks for the reply. That is the thing with me too, the symptoms are such that I can attempt to "reason them away" with such thoughts like "well of course I'm tired I work all day!" and "well I can still do stuff its not like I'm totally bedridden or anything I can drag myself through ok". Still though like you say this can just lead to a continuous putting-off until it really does get too late and the body is damaged.
  7. Thank you for the replies. I probably should just bite the bullet and get tested. That way I can know for (at least somewhat) sure or at least have something more to go on. Are there percentages for the accuracy of the blood test? What I mean is is the percentage of false negatives high or is it low enough that the blood test can be a somewhat reliable barometer? Of course there are those who the blood test was negative, but the biopsy showed trouble. At the very least the blood test would be a start. ETA: One other thing, I do have brief periods of feeling alright, like for a few days I'll realize my head isn't hardly hurting and I feel good, but it always comes right back again with one or a combination of any of these symptoms: (head pain, sinus problems, sore throat/glands, intestine issues, tired weak feeling, sore muscle/joints, tingling novicane feeling in various places, off balance spaced out feeling). These brief periods of feeling ok, can that still happen with celiac undiagnosed?
  8. Yeah I have been a member for awhile. I do lurk here from time to time. The thing is I'm not sure if I should just go with the gluten-free diet first, or get the nerve up to try to get tested first, which means convincing my doc. The thing is sometimes my symptoms seem to lighten up so much that they are just about not there (for very brief times like a few days maybe) and I think to myself "oh you're just being silly see? Now you are feeling ok so you're fine", then another round comes again of feeling cruddy that I have to push through. I still have worked through all this never taking a sick day, though I've dragged myself through many times. I keep going back and forth with myself in my head alternating between "really just get friggin tested!" and "don't be dramatic you're fine! Its probably not anything to do with gluten". Ugh.
  9. I would think that if one has celiac or a gluten problem, wouldn't the symptoms come soon after ingesting the offending food? I suppose what I am getting at is, after years of eating gluten does the body just become basically "inflamed" to the point where it would be difficult to pin down gluten as a problem since you pretty much feel a base-line crappyness most of the time anyways? I do feel cruddy on and off with health issues that I think I've just gotten so used to (especially in this past year with the lovely addition of headaches). I would say in this past year I have gone only one full week being able to truthfully say that I felt great. I will deliberately have days where I try to eat a lot of gluten containing foods (bread, pizza crust, cookies, more bread, etc) and I will feel just fine the rest of that day or even the next day, but not for long. So wouldn't all that gluten just stab me and make me keel over if I have a problem with gluten? Or is it more just an ongoing general health problems that are tougher to actually pin down because the body is so worn down anyways that there aren't any dramatic flareups?
  10. Good point, I just didn't know if taking a multivitamin would mess up test results somehow, but that wouldn't make sense that it would, you know like going off gluten before taking the gluten test can mess up the results.
  11. I am wondering, do I have to stop taking all vitamins for a time before I test for vitamin deficiency, or does it not matter? I wouldn't want to give false reading due to taking a multivitamin. Or will it show if I am deficient regardless of the multivitamin I am taking? ETA: I also am taking about 1000 IU vitamin D a day too.
  12. Thanks for the replies. I just keep trying different things and hope something sticks.
  13. I don't know if this sounds possible for something like celiac, I've been keeping a journal for about the past year. I get these phases where I feel bad (Sinus problems, near constant one sided dull head pain/pressure, achy and stiff, fatigued, odd nerve problems on same side of body as dull head pain/pressure, nausea). These phases last about a couple weeks, then for a week or two I feel GREAT, then its back to feeling bad again for a couple weeks, then I feel GREAT like a new person for a week or two. I've never heard of anything that can cycle through like this. Can celiac symptoms come and go with that much frequency? I thought maybe allergies, but even allergy meds don't really help.
  14. Interesting you posted this. I swear exercise NEVER gets any easier for me. I feel like its always some super uphill climb that just doesn't get easier. Years back I remember me and my dad tried running 1 mile about 3x a week for a month. It actually got EASIER for him, he was in his 50s at the time!! For me it never got easier, I always felt like crap. I must have been in my late teens/early 20s.
  15. I am thinking I should just go ahead and try to get tested. What are the most accurate tests to get done? I would be first looking at trying for a blood test. What would be the top 2 best ones to have done?