KarenAnne replied to KarenAnne's topic in Celiac Disease - Parents of Kids or Babies With Celiac DiseaseYou all are so WONDERFUL! I just joined, I asked my question, and got so many replies full of information, opinions and suggestions. I feel suddenly supported, that I've found a community. THANK YOU. Any more suggestions are welcome. We have decided to put off the appointment until summer since I didn't want the symptoms to affect his time in school. Please let me know more about the gene testing -- that is different from the blood test he was given, right? And it would work even if you are on a gluten-free diet? Is there a web site where I can get more info on gene testing for celiac? We were told only the biopsy would give a conclusive diagnosis. They will do the blood test first and then discuss whether further tests are needed. Thank you, Karen Anne
KarenAnne posted a topic in Celiac Disease - Parents of Kids or Babies With Celiac DiseaseWe need help coping with symptoms returning when my son goes back onto a gluten diet in order for him to be conclusively tested. My son (9yrs old) has been on a gluten-free diet since he was 5 1/2. His dad was diagnosed six months previous with celiac disease. My son had similar symptoms: mainly lack of bowel control and frequent potty accidents, very loose stools since he was born. He was given the blood test which came back negative. However, since the gluten-free diet helped him, we decided to conclude that he too had celiac disease -- I didn't want to subject my son to the same invasive tests my husband went through. Now, we've been told in order to get a conclusive test, he needs to go back to eating gluten (doctor reccommends 1 piece of bread per day). I am very anxious about my son coping with diahrea and potty accidents, especially while he is in school. Does anyone have any suggestions -- even practical ones like reccommending disposable underwear for nine year old or how to talk to his teachers about this? Thanks.