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About KarenAnne

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  1. You all are so WONDERFUL! I just joined, I asked my question, and got so many replies full of information, opinions and suggestions. I feel suddenly supported, that I've found a community. THANK YOU. Any more suggestions are welcome. We have decided to put off the appointment until summer since I didn't want the symptoms to affect his time in school. Please let me know more about the gene testing -- that is different from the blood test he was given, right? And it would work even if you are on a gluten-free diet? Is there a web site where I can get more info on gene testing for celiac? We were told only the biopsy would give a conclusive diagnosis. They will do the blood test first and then discuss whether further tests are needed. Thank you, Karen Anne
  2. We need help coping with symptoms returning when my son goes back onto a gluten diet in order for him to be conclusively tested. My son (9yrs old) has been on a gluten-free diet since he was 5 1/2. His dad was diagnosed six months previous with celiac disease. My son had similar symptoms: mainly lack of bowel control and frequent potty accidents, very loose stools since he was born. He was given the blood test which came back negative. However, since the gluten-free diet helped him, we decided to conclude that he too had celiac disease -- I didn't want to subject my son to the same invasive tests my husband went through. Now, we've been told in order to get a conclusive test, he needs to go back to eating gluten (doctor reccommends 1 piece of bread per day). I am very anxious about my son coping with diahrea and potty accidents, especially while he is in school. Does anyone have any suggestions -- even practical ones like reccommending disposable underwear for nine year old or how to talk to his teachers about this? Thanks.