• Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

Alice66

Members
  • Content count

    3
  • Joined

  • Last visited

Community Reputation

0 Neutral

About Alice66

  • Rank
    New Community Member
  1. Joint Pain

    yes I realize that not everyone is affected by maize but I cannot it it normally or use cornflour without it upsetting me. When I did try the glucosamine again just to make sure it was that which was upsetting me, I felt like I had been drugged and also got even more shaky than usual. I would really appreciate some advice on other forms of joint pain management.
  2. Well it looks like the last 17 months that I thought I was gluten free have all been wasted. This week after being in hell for the last 7months with inflammation of the lining of the brain I have realized that the vegetarian glucosamine that I have used for the last 21months is pure maize. Its been poisening me. I just feel like crying. I left it off a week ago but now all my joints feel even worse than they did while I was on iteven joints that never ached before are aching, my body feels like its collapsing, although the pain in my head is now beginning to lift. I loose one problem and cause another. I cannot stomach glucosamine with sea creatures like shrimp or crab and I am wondering if it is safe to use bovine glucosamine or chondrotin. I am so upset with myself I just cannot beleive that I didn't check this glucosamine out before it just said pure vegetable powder.
  3. Gluten Neuropathy

    Hi Twitchy. I can understand how you feel as I have numerous neorological symptoms. I was diagnosed with Chronic fatigue 20 years ago and only 18months ago did I realize that I was gluten intolerant. I didn't have a diagnosis but as soon as I went on the diet, all my stomach problems subsided. Unfortunately my neorological ones didn't and I suffer with bad muscle weakness which lead to tremours, twitching and shaking. Over the past 10 years I have taken different supplements and one which I take regularly is Pantothenic acid (B5). 6 months ago I started to get excrutiating pains in the head which left me unable to speak, I thought I had a tumour as I also went deaf in one ear. I eventually had an MRI scan which showed I had inflammation of the Menancoccal lining of the brain, which my dodctor couldn't explain. Anyway to cut a long story short I have found out that my diet, which is rich in Brown Rice and also I drink Rice milk, together with the B5 is making my head pains worse or could be causing the problem. I went onto google and saw the symptoms for overdose on Pantothenic acid which mirrowed mine. The only conclusion that I can come up with is that I must now be ingesting the vitamins in my diet as I have been gluten free for 18months and the Pantothenic acid is just too much for me to cope with. I still have all the neorological problems, like twitching and tremours, pounding in the head. I am exhausted most of the time and now that I cannot eat Brown Rice its another blow because the diet is even more restricted as I am intolerant to Soya, Milk Oats, Maize, goats milk. The B5 acted like a steroid as it feeds the Adrenal glands, so I am going around like a rag doll at the moment. Is there anyone else who sounds like this?