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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes


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Judy3 last won the day on January 26 2011

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  1. I had the gene test because I was too sick to eat at the time and the GI said that there are only two things that can make your insides look like that (ground meat) and one is cancer which he biopsied already and the other is Celiac. My tests were positive for the genes. I've been told that someone with a negative gene test will never be diagnosed with Celiac but a person with a positive gene test will need to be followed for symptoms or biopsied to make sure they don't have damage.
  2. Welcome to the forum. While in the beginning this is all quite overwhelming in time once she is diagnosed you will find that changing recipes gets easier with each passing day. As for your Lasagna... there are many very good gluten free lasagna noodles out there . I prefer Tinkyada brand for that and my family of grown children and a grand child can't tell the difference. We just had a vegetarian, gluten free Thanksgiving complete with a gluten free lemon cake as requested by my grandson and it was wonderful. I have experimented with a flour mix over the years and now I can bake my old family recipes with it, Bread is the exception to that, I'm still working on that!!! My friends that are NOT gluten free ask me to make cupcakes or other sweet treats for parties and they don't have to eat gluten free. Noone can tell!! I've had chefs taste my chocolate cupcakes and from a distance saw the light come on in their eyes so approached to speak to them and when I tell them they are gluten free they are flabbergasted.. It's a lovely feeling to be able to bring that out in professionals with a simple cupcake It will take some time and experimenting to get it right and it doesn't have to be expensive. I see that you are in Canada so not sure if you have Trader Joe's there but their brown rice pasta is the best. 1.99 for a pound bag and comes in many shapes and sizes. The closest one to me is 2 hours away so I buy it by the case when I'm there so we always have pasta in the pantry Good luck with the testing for your little doll and deep breath it's not as bad as it seems at first, your whole family will come to terms with it and it will just become 'what you do' if she is diagnosed. You'll be packing lunches for her with school most likely but you can be creative. My grandson is vegetarian and the schools here don't cater to that very much in the lunch room but he has a nice homemade lunch every day that he is proud to eat with his friends at school. She'll need to learn that she can't 'share' with her friends but because she will be feeling better she will be happy to do it. Good luck
  3. I make my old recipes all the time. The only thing you have to be sure of is if your flour mix has xanthan gum or not. If it doesn't then you will need to add a bit per cup. Don't use too much or it will get gummy or spongy (it's powerful stuff!!!) Xanthan gum (or guar gum) is used in gluten-free baking because it is a binding agent that gives baked goods elasticity. Add 1/2 tsp. per cup of flour blend for cakes, cookies, bars, muffins. Add 1 Tsp. per cup if you are making yeast bread, pizza dough, other baked goods that call for yeast.
  4. Failure to comply with a strict gluten free diet with a diagnosis of Celiac disease can cause many other issues. Digestive, deterioration of the stomach and intestines and could lead to cancer. Other symptoms could arise neurological , psychological, skin conditions.etc... Do some research on the effects of untreated Celiac disease and you may change your mind on the gluten free diet. In comparison to what could happen it's simple. Good luck You are not young for this, it can be diagnosed at any age from small children to advanced years. Consider yourself lucky to have gotten away this long without major symptoms. Some have it not so good.
  5. I've noticed over the years that my reactions are not as severe either.. but I try not to consume
  6. I highly doubt that the diagnosis will changed based on the blood work. They've already diagnosed with biopsy which is the 'gold standard'. My blood work was negative as I was too sick to eat much but my genetic testing and the endo biopsy proved Celiac. Gluten free 7 yrs here.
  7. Beau's lines can be caused by malnutrition and malnutrition can be caused by Celiac. Nails grow very slowly so it could take some time for them to go away if they do. Maybe see a dermatologist if you haven't already Also do a search on this site, or on Google and it will bring you back here. There are a lot of old topics about this From https://glutenfreeworks.com/health/horizontal-and-vertical-ridges-fragile-nails-2/ Beau’s lines occur due to temporary cessation of growth of proximal nail matrix at the nail base. As the finger nail grows at the rate of 0.1 mm/day, the time course of the illness can be estimated from the position of the Beau’s line from proximal nail fold.1 Beau’s lines are frequently seen in nutritional deficiency states, bacterial illness, acute stress, and systemic disease. The conditions where Beau’s lines have been described include severe systemic illness, chemotherapy, malnutrition, zinc deficiency, trauma, paronychia, pemphigus, and Kawasaki disease.2 Beau’s lines are commonly seen in patients undergoing chemotherapy.3
  8. Look for sweet rice flour with the asian products or visit an asian food store. The combination of flours needed to make an 'all purpose' flour is a science. You need to get each type right or it won't work. I use white rice flour, sweet rice flour, sorghum flour and tapioca flour to create mine, Sweet rice flour is also called glutenous rice flour (not to be confused with gluten ) 5 parts white rice, 4 parts tapioca, 1 1/2 parts sweet rice, and 1 1/2 parts sorghum. Parts can be Cups or lbs or whatever your quantity your mixing,. Mix well and store in the cupboard. Don't forget xanthan gum to stabilize. Less is more with that.
  9. Angular Cheilitis

    I have this as well. My dentist diagnosed it first 7 yrs ago and said you know this can be a sign of Celiac. This is how I got on the correct road to diagnosis when I told my doctor what she said and showed him the cream she prescribed. He said that's when the light bulb went off for him and he sent me to a gastro doc. Blood tests and endoscope proved she was right. Celiac and now I've been gluten free for almost 7 yrs and never felt better. I take B12 supplements and an antifungal cream on the corners of my mouth. It comes and goes now. I don't take B12 regularly anymore but when it flairs up I take it for a few days and use the Nystatin that the dentist gave me and in 24 -48 hours it's gone. Don't know what triggers it ,no one really does. So when it flairs up I use what's worked in the past. I love my dentist!! If it hadn't been for her the 2.5 yrs of misery before diagnosis could have been a lot longer because my doctor didn't have a clue...
  10. Overnight Hospital Stay

    I agree totally, the last time I was hospitalized I had the same experience nutritionist, band on wrist, doctor wrote in large letters on my door.... still they brought me food with gluten. I refused to eat unless it was something with a manufacturers cap on it (milk, pudding, yogurt...) or fresh fruit that I made them wash in my bathroom. My doctor was livid that they did this to me. Potatoes with gravy with a roll on top!! In a hospital wow If I ever need to be hospitalized again I will be more scared of eating than why I'm there.
  11. You could very well be gluten intolerant and not Celiac. Celiac causes the damage he was looking for, gluten intolerance does not although the symptoms are much the same if not identical. If I were you, with those numbers for IgA and IgG as high as they are I would try gluten free for a month now that you've had the tests and biopsies and see how you feel. If it helps continue, if it doesn't pursue other things. Just my opinion but your numbers suggest Celiac and the endoscope showed no damage so I think you maybe do have Celiac. I would go for genetic testing, it's expensive ($400?) but it will tell you one way or the other. A person has to have one of the two genes associated with Celiac to have it. https://celiac.org/celiac-disease/diagnosing-celiac-disease/
  12. I would agree with you that putting a child under for a test would normally not seem right but in this case she probably has Celiac based on the test results you show above so a positive endoscope is the only way to get a confirmed diagnosis. For the rest of her life without a definite diagnosis it would be difficult for her and for you in social situations and with new doctors. This way you know. I was not diagnosed until adulthood and suffered a lot over the years with everyone's 'home diagnosis' and treatments for what ever ailed me. Had they done the tests as a child (they probably didn't have as good of tests when I was a kid) my life would have been different. Now that I'm diagnosed and gluten free life is pretty good. I would have the endoscope done , it's a one time thing and then you know. Better to attack life with knowledge than ignorance. Good luck
  13. Hi Foxtrot, welcome to the board. My thoughts on your situation and questions. First of all, Celiac is a lifetime disease, it won't go away. You will need to be 'completely' gluten free because even a little will cause symptoms and damage to occur. Some people, myself included are very sensitive to even a crumb or two... After only a week, you may see some improvements but it could take months for you to recognize that you are feeling better all around. Stick to absolutely gluten free and be careful of cross contamination. If you live in a house where others are eating gluten you will need to be extra careful. For instance in my house my son does not have to eat gluten free but he does at home for the most part when we have a shared meal. He is very careful to avoid cross contamination with shared foods. Like peanut butter, jam, condiments etc... if a knife goes into those products that have been in contact with gluten filled breads it will make me sick so his theory is he gets one shot to get what he wants out with a knife or a spoon 'before' he hits the bread. It works quite well with squeeze bottles of some things.. mayo, jam etc... Once you heal (months) you should be able to introduce other foods on your list of culprits one at a time to see if you can tolerate them. When the 'gut' is damaged all sorts of things can happen. I for instance had food allergies for 25 yrs that were severe (Seafood, fish, tree nuts) and was tested positive for all of them. Now after being gluten free for 6 years I was retested and food challenged and they are all gone... Our immune system is mostly in the 'gut' so if it's damaged from something else all sorts of things can show up. Give it some time, eat what works for now and give it some time. Rice and meat and low fiber veggies for now might work for you. Season your food well so that it's not bland. As I said once that works and you know your feeling better try one new veggie at a time for a few days to see how it goes. Good luck to you.. Just know that the beginning is the toughest part.. once you learn about what you can eat and what causes symptoms you will be able to adjust to it and it will become second nature. Hang in there... and welcome to the other side...
  14. You are not crazy... I myself had a host of food allergies fish, seafood, nuts of all kinds etc... for many years 24 to be exact. I was retested this fall for all of them and many more and they are now gone... Not allergic to anything. My allergist contacted my gastroenterologist and they together have concluded that the 'allergies' were triggered by undiagnosed Celiac which I was diagnosed with 5 yrs ago. I have been strictly gluten free for the last 5 yrs and now the allergies have gone away as well as the damage in my 'gut'.. Our immune system resides in the gut, so if the Celiac was destroying the gut undiagnosed for years ( I was the sick kid in the family) then it could trigger some pretty intense other autoimmune reactions that would not be recognized as 'traditional' Celiac symptoms. As I said I've always had stomach issues but not bad enough to slow me down until 7 yrs ago, then I was a mess. Stomach pain, nausea, diarrhea, fatigue, insane muscle pain and joint pain.. I've had blood tests, biopsies, and genetic testing and was finally diagnosed based on the biopsies and the genetic tests as my preliminary blood tests were negative. We know now that the original tests were negative because I was so sick I was living on cottage cheese and jello at the time and they are both gluten free so I was not consuming anything. I remember my gastro doctor saying two things to me. 1. There are only two things in this world that can make your insides look like raw meat and that's cancer and Celiac. He knew I didn't have cancer because he did that biopsy first. 2. Now that you are diagnosed you have to be strict with gluten free for the rest of your life and I bet the allergies either go away or get better.. (that was 5 yrs before the allergist!!!) Gluten free eating is not difficult at home, sometimes scary eating out and always scary eating at other peoples houses. Christmas eve my cousin was excited that she had gone out of her way to make most of the food gluten free and then proceeded to take a cracker and run it through the shrimp dip I had brought. I put a spoon in it on purpose and we discussed it about guiding the guests to take some on their plate and not dip crackers but that didn't happen so I had coffee and caramel corn (that I made and brought) that night . I laugh at this because it's a learning curve.. But I digress... My comment was supposed to be about you not being crazy about the allergies it's a real thing.. I am living proof. !!!
  15. Yeah $300 - 400 but well worth it because it tells the tale. If she has the DQ2 or DQ8 gene with the highs on the other tests. She has Celiac. You can have Celiac unless you have one of these genes. If you don't it could be gluten sensitivity which has the same symptoms but doesn't cause the damage of Celiac.