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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.


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plumbago last won the day on November 8 2015

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About plumbago

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    Post Nov 8, 2016: ACA, What now?, health, mental health, gardening, organic, recycling, better labeling of GF foods
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  1. That is very interesting that you say that ! (And thanks for clarifying.) I am gluten-free and have been for some time. I used to get that pain fairly frequently (pre gluten-free days) and only occasionally do now. When it does occur, it is right before I have a BM, a lower left side stabbing pain that inevitably happens just before a BM and completely resolves with a BM. I posted about this in October, and bounce around on what I think it could be. What I currently think is that it is some kind of pain that radiates from my rectum (triggered by feces) up to my left side. Could it be a blockage? A diverticulum? Maybe. Could it just be a weird nerve thing? I just don't know enough right now.
  2. The question I ask myself here is if the two things you are describing are connected? Rib pain/pressure pain could be a bleb on a lung (tiny air sac), costocondritis (a very common diagnosis in the emergency dept), any number of things. Then I would ask if you think the left sided positional-related pain causes the diarrhea?? Someone suggested thiamine deficiency and linked to an article describing Wernicke’s Encephalopathy , which usually occurs from prolonged alcohol use and abuse. It results from a lack of B1 or thiamine in the brain. Wernicke’s precedes Korsakoff. The triad symptoms are: confusion, the inability to coordinate voluntary movement (ataxia), and eye (ocular) abnormalities. It can cause leg tremor. In other words, the indications are: confusion, diplopia, nystagmus, ataxia, apathy. I would be fascinated if what you have turns out to be WE, but I have my doubts. Plumbago
  3. This is generally not the way to go to confirm a diagnosis of celiac disease. Generally the patient should have blood tests while on a gluten-containing diet. That is the first step. If enough parts of the tests come back positive, a biopsy is then done via endoscopy of the small intestine. This is considered the gold standard, still. A biopsy should be done while the patient is still eating gluten. I am a big fan of the idea of integrative medicine. The reason I am is that the providers spend more time with the patient. Ideally, they also spend more time thinking about the patient. I believe the idea is to have fewer patients. There are, believe it or not, pros and cons associated with that. The con may be that seeing fewer patients, the provider sees fewer things and is therefore less exposed to different conditions but also different reactions to the same condition. Oh well. Can't have everything! I would like to hear more about your experience with him/her now that it's been one year. But I was a little bit concerned that, pre-testing, your provider was asking you to go gluten-free.
  4. Information from the CDC regarding the shingles vaccine: https://www.cdc.gov/shingles/vaccination.html "Shingles vaccine has been used since 2006. Zostavax® is the only shingles vaccine currently approved for use in the United States. This vaccine reduces the risk of developing shingles by 51% and PHN (post herpetic neuralgia) by 67%. It is given in one dose as a shot, and can be given in a doctor’s office or pharmacy." Vaccine Information Statement https://www.cdc.gov/vaccines/hcp/adults/downloads/fs-shingles.pdf
  5. The gastroenterologist who did my endoscopy met with me directly after the procedure and indicated that he strongly suspected Celiac based on what he had just seen. So I think sometimes docs can tell during the procedure whether there is villi blunting or not. Microscopic examination then confirms it. There are youtube videos showing normal vs flattened villi.
  6. During a typical period, a woman loses approximately 6 to 8 teaspoons, or 35 mL of blood, although yours may be a little lighter or heavier than this Menorrhagia, excessive bleeding, can be characterized as an increase iu duration, increased amount or both. It may be a good idea to get tested for anemia, such as iron deficiency anemia (though fatigue is more commonly a sign than dizziness). Common symptoms of general anemia (low red blood cell count) are palpitations, fatigue. But there are no doubt others. It is a good idea to get your iron and B12 tested since celiac disease is a malabsorption disease, so you may be short on those. As others say, get the thyroid checked. D3, everything. If it were me, and I was having dizziness as you say, like you feel you could fall over, I would definitely see my doctor.
  7. If by attachment you mean the online dialogue, that's great. I read through the responses just now and there are some really good suggestions of possibilities, I thought. The ones I saw don't involve much about getting one's back checked (a few do). If it were me, I would never ever let anyone check my back, let alone manipulate it, unless such a person was an MD and there was something unquestionably wrong with a disc. Be very careful with your spine, guard it, protect it, love it. Don't put it in the hands of (just) anyone. Sorry, that is just me. Anyway, here were two suggestions that stood out to me: Again, from that last one, me personally - I'm gonna be very wary of letting anyone do any kind of "adjustment." Better yet is to understand the situation backwards and forwards, and try to make adjustments on my own. I have one spinal chord, and that is it! Finally, caffeine can stimulates respirations and heart rate (may cause palpitations) - this may or may not cause lightheadedness. And, are your pds heavy?
  8. I just want to make sure I understand -- your husband is concerned and wants to get an endoscopy done, but he's not too worried about cross contamination?
  9. I have a friend - a guy - who has that kind of bunion - by the baby toe on his left foot. He used to play soccer. Not sure what he did about it, but I can offer my perspective of having a big toe bunion, which I've had for over 20 years. "Bunionectomy" is a possibility, but I've been warned by a relative not to do it. Meanwhile, I've met a lot of people who've had it more recently than my relative who are happy with it. What's lacking from their testimonials is the perspective of time: the most it had been for those recent bunionectomies was 5 years, which is not really sufficient to say yay or nay, IMO. More relevant, though, is what I do about it now. It's kind of a pain, but I will often wrap it/tape it. And, as the kind of bunion I have was caused by walking on built up heels, I tend to do the opposite and build up (but just ever so slightly) the forefoot in my shoes (a little like a moonshoe, if you've heard of them). Anyway, lots more to say on the topic, and what I've said is not directly applicable to your situation, I'll see if I can find something more useful. Plumbago
  10. Are you dehydrated? Do you have diabetes? Are you taking any kind of medication? Have you had any kind of recent injury? (https://www.nytimes.com/2017/02/06/well/getting-specific-about-dizziness.html) What is your blood pressure? Do you have any kind of anemia? Have you had recent lab work? What are the results? Everything ok with lungs and heart? Are you pregnant? Document when you feel lightheaded, what you’re doing, time of day, whether or not you ate or drank, position, everything you can think of. Just really get into details and think if someone was asking you why they are lightheaded, and all the questions you’d have, to try to pinpoint the answer. Good luck. Adding: Here is a dialogue online about lightheadedness when sitting: http://www.steadyhealth.com/topics/lightheaded-when-sitting-at-computer-not-moving
  11. In terms of inflammation, weight gain, possibility of insulin resistance, I don't think honey is any different than plain old sugar or HFCS.
  12. Update-- I went 7-8 days sugar free, and it was fine. I suspect there was a reason I saw only a modest weight loss (0.5 lb) but I’ll spare the gents the TMI details. As for the benefits I’ve already spelled out those in the OP, above, and I'll add one long-term one - now that I am back to allowing myself to eat whatever I want, I notice that I don’t rush right out and buy sweet things. Well, I did, but I’m not really eating them (desserts are mainly what I'm talking about). But I’m back on the chai lattes in the a.m. and some honey on the biscuits. One thing that is very interesting is that I’m also back to having PVCs, more commonly known as heart palpitations. I had zero when I was off sugar. Zero. This is shaping up to be as huge news as going gluten free, at least to me. I said that above I was gonna spare TMI, but sorry, here goes, so stop reading now! I also had no loose stools on no sugar (and so far, they haven’t returned yet). That your husband is not on any medications at 72 should be shouted from the rooftops of every doctor’s office neighbor and public health clinics'. What are we doing by not getting this front and center? What idiots we are! As Gary Taubes says: cigarettes are to lung cancer as sugar is to diabetes (and so much else too). (He says it’s not salt that leads to HTN but insulin!) Next up, is Lent. That’s 68 days!! I will definitely be going sugar free again, in at least 1 week chunks if not more. I find it’s better to go long stretches without it, as opposed to every other day or something like that.
  13. I would love to see some of those sugar free recipes, so please share. As for the quote above, I thought it was a good idea to cut down too. But I'll just leave you with some thoughts from Taubes who observes that the docs never say to cut down on smoking do they? Smile. No, they say to give it up altogether. He says cigarettes are to lung cancer as sugar is to diabetes (and beyond). Just thought I'd pass that along....