• Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes


Advanced Members
  • Content count

  • Joined

  • Last visited

  • Days Won


plumbago last won the day on November 8 2015

plumbago had the most liked content!

Community Reputation

32 Excellent

About plumbago

  • Rank
    Advanced Community Member

Profile Information

  • Gender
  • Interests
    Post Nov 8, 2016: ACA, What now?, health, mental health, gardening, organic, recycling, better labeling of GF foods
  • Location
    Washington, DC

Recent Profile Visitors

11,714 profile views
  1. Sorry, I meant swansons, not stouffers.
  2. Note to self: post during the DAY. Too tired at night! Swanson's!!!! I mean. And it does appear to be gluten-free.
  3. I thought this one would be relatively easy, but it's proving difficult to track down (this site; Google). Are Stouffer's chicken broths gluten free? (Feel free to weigh in on the other broths too, but I'm mostly concerned with the chicken broth).
  4. This seems like a good time to ask what happened with the 2014 FDA regulation on the labeling of gluten free foods. First, has it gone into effect? Second, am I correct in reading that it is voluntary? Really?? What good is that? Anyway, does anyone have any news or experience with this? Plumbago
  5. Inflammation of one side ?

    Hello, I’m not capable of explaining exactly what’s going on with the left-sided only symptoms, beyond suggesting a possible association with nerve damage, but really a doctor should be the one to weigh in. The advice to continue eating gluten (and there are guidelines as to how much) before a celiac test is good, and worth following. If you are concerned about your heart, write down your symptoms and tell your doctor about every one of them, noting when they started, when they occur (if they are not constant) and any associated symptoms or triggers. Also, there are cardiac markers that your doctor can test for, and you can also get an EKG if you are really concerned, but really an EKG just captures what is going on at that very moment, and you may or may not be having cardiac symptoms at that time. There are other tests as well (including a stress test). Plumbago
  6. Hi everyone, I recently listened to a medical podcast (The Curbsiders Internal Medicine podcast) during which the docs said that it is impossible to be allergic to an essential element the body has and needs (iodine) and just because one is allergic to shellfish (which has iodine) does not mean one will be allergic to contrast dye (that also has iodine). This paper also wonders how the two got linked. https://www.allergysa.co.za/Content/Journals/2015June/IODINE ALLERGY_ A MEDICAL MYTH.pdf I realize the discussion is not centered on the direct iodine link, but I thought that was interesting, and thought I’d share.
  7. Has anyone been had their Hep B titers taken? I got the whole series (three Hep B vaccines), and then had to submit proof of responsiveness (or immunity, though I'm not sure that is the correct word, exactly), and my blood draw indicated I was not immune. So I got a booster, which seemed to satisfy everyone at the time. However, yesterday I saw on this site an article on "Celiac hepatitis," and from reading that article I came across links to other articles on the possibility of people with celiac disease struggling to get immunity via the Hep B series. Obviously, the thing to do (to have done actually) is to get my blood drawn again to see if the booster worked. I'm surprised I never did this, a little surprised that my doctor didn't do it either. Hopefully I'll be immune, it would stink if not. Has anyone been in a similar situation with the Hep B series? Plumbago Read more at https://celiac.org/celiac-disease/understanding-celiac-disease-2/celiac-disease-vaccinations/#bKORI6BDl4KyPg5I.99
  8. Mysterious me!

    Hi, When you went gluten free did any symptoms improve (and then return)? If they did improve, for how long? Have you been to an ophthalmologist? A quick google turned up the possibility of TMJ "Inflammation and irritation caused by friction in the temporomandibular joint can irritate and cause dysfunction in the trigeminal nerve which in turn leads on to pain and discomfort in the eye socket." Also, thyroid - but doubtful, as that's usually hyperthyroid, and you'd probably know beyond a shadow of a doubt if you were hyperthyroid. And your blood glucose is ok, right? From what you describe it sounds kind of like a congestion of sorts. Are you sure it’s not sinus-related? Please keep checking back in. Plumbago
  9. Hi, I belong to a diabetes forum (I don’t have diabetes, I just like to learn) and came across this recent post on the four kinds of neuropathy. The poster says you can get a nerve conduction test, EMG. http://www.tudiabetes.org/forum/t/four-kinds-of-neuropathy/64211/10 Yes, I’ve heard gluten can damage nerves, but I don’t know much else about it. It may be other things instead or as well. I would keep plugging away! Plumbago ETA: Here is what Medscape has to say: “Neuropathies occur in 2 forms: an isolated deficiency (usually of a B vitamin) or a complex deficiency resulting from several concurrent metabolic disorders (usually including malabsorption). “Gluten-sensitivity neuropathy (celiac disease) “Antibodies to gluten in wheat, barley, and oats in susceptible individuals also attack Purkinje cells and other neurons, leading to cerebellar ataxia, myoclonus, neuropathy, and neurologic symptoms. Adhering to a strict gluten-free diet may stabilize neurologic symptoms.” Nutritional Neuropathy (medscape) https://emedicine.medscape.com/article/1171558-overview?pa=ppfieNWKrxMLXBni5%2FC7jPwRs7%2Frj7E1ILBmZdAYkuDjDHg7dUEG0MRzgdhKvqYFd%2FsGPYa%2BToEoLjuhFnUEHw%3D%3D
  10. "I will be working closely with a Functional medicine practitioner in the near future" Excellent! I was going to suggest that. Do as much research on yourself and your issues as you can. Learn as much as possible before the appointment, which will make it so much more worthwhile. Ah, now I see why you were wanting to know about hypothyroidism and possible connections to celiac disease. "Hashimoto thyroiditis has a markedly higher clustering of other autoimmune diseases, including pernicious anemia, adrenal insufficiency, celiac disease, and type 1 diabetes mellitus" SOURCE: http://emedicine.medscape.com/article/120937-overview#a4 "Consider keeping a food journal." As always, this is one of the best pieces of advice! It's so basic and yet so fundamental. Not sure about today's government, but just a few years ago, the USDA hosted a site where you'd create a login and enter in your food. It was a great at-a-glance view, of course as long as you entered in everything. I took a nutrition class and had to do that. It was very helpful. Not so sure about the lifetime sentence of autoimmunity, either. But I won't argue over it. I have many favored authors (Weil; Taubes; Wahls) that guide me through a lot of nutrition thickets. I recommend cultivating your favorites and spending time with them and pen and paper (or keyboard and screen). Plumbago
  11. A. Duodenum Biopsy; Mature benign small bowel mucosa with a normal villous architecture. Abdominal pain/bowel issues/Wt loss. R/O Celiac. Findings: Mild gastritis. EGD. ___________________________ It looks like you have "normal villous architecture," in other words, no damage to your villi. It would be good to know how many samples for the biopsies they took. I do not think that means that you do not have celiac, even though the endoscopy is also known as a gold standard for Celiac diagnosis. The second part means that they wanted to rule out celiac, but are saying you have mild gastritis. And under C. they're also saying you have Chronic Esophagitis with Rare Eosinophils. Plumbago
  12. But does he put it in your mouth after putting all the gluten-containing wafers in other parishioners mouths? Anyway, nice that he lets you do it considering that the church decided against gluten-free wafers recently. Plumbago
  13. I looked at your past posts, but I’m not sure i know what you were eating then and what you’ve stopped eating now. Also what sort of medical workups you’ve had and what were the results. I understand your biopsy was negative - but I also saw on one post that you were worried they only took one biopsy. Do you have the analyst’s result report there with you? Does it say how many were taken? It’s hard for me to hazard any kind of a guess without a little bit more information, including any medications you are taking. I’m sorry you are feeling so awful. What symptoms are you having? Plumbago
  14. Desperate for help

    I’m so sorry you feel you must steal, that must be awful. The only thing I might consider is that it can become a habit, especially the self-justification part. Not that I'm recommending it right now for you , but with a ketogenic diet, the body goes into ketosis, not ketoacidosis, which is something that people with Type I diabetes can go into: in addition to their bodies burning fat, they also have insanely high levels of glucose in their blood. There’s no risk of ketoacidosis on a ketogenic diet, and in fact in the old days before insulin, one of the remedies was a ketogenic diet. It’s still often used for seizures as well. Plumbago
  15. I don’t know a lot about this, except to say something similar happens to me. I’m a woman. And in my case, a full bladder (especially at rest, when asleep) seems to cause a flop sweat and I will have to get up, go to the bathroom. No more heat and sweating after that. I also find that if I drink less fluid in the late afternoon and early evening hours, it's not that bad. I have always associated this with a phenomenon similar to autonomic dysreflexia in people with spinal cord injuries, in which a person can go dangerously hypertensive with a full bowel or bladder (a seemingly small stimulus, full bladder, triggers an overreaction of the sympathetic nervous system). They are not the exact same thing, but I believe the same concept/mechanisms may be at work. In my case case, it is probably hormone related. And now it's interesting to hear you give it a name and that it’s something that really does exist, similar to autonomic dysreflexia, but on a less dramatic scale. I too would be interested to hear from others about this. Plumbago