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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes


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plumbago last won the day on January 19

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    Post Nov 8, 2016: ACA, What now?, health, mental health, gardening, organic, recycling, better labeling of GF foods
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  1. This is really a general post about alkalinity and being in the news these days. Alkalinity is totally trendy, but I encourage people to educate themselves about this and not rely on trends. I don’t mean to suggest that I know everything there is to know about this, but, for example this site (http://www.foodenzymeinstitute.com/articles/digestion-in-the-stomach.aspx?list=bydate) states: [Certain enzymes are] only active within the pH range of 3.0 to 5.0 and require the acid to maintain that pH. Pepsin is very specific in its action and is simply incapable of digesting food enzymes, which are very large molecules and are more than just protein. This sites (https://www.livestrong.com/article/459954-the-acid-base-balance-in-the-digestive-system/) states Antacids increase the pH in the stomach, which might make the enzymes in the stomach less effective. I think the focus on alkalinity and acidity in our foods currently en vogue is a huge distraction and a big waste of time. To me, it represents the two steps backwards in the notion of progress. I’ll end with Dr Andrew Weil — https://www.drweil.com/health-wellness/balanced-living/healthy-living/why-alkaline-water/ “Don’t waste your money. Alkaline water is being aggressively marketed for its purported health benefits. It is touted as the solution for everything from helping the body better absorb nutrients to reducing the risk of high blood pressure, high blood sugar, and heart disease, as well as boosting energy, helping you lose weight and slowing the aging process. It is also said to be “more hydrating” than any other type of water. Alkaline water is supposed to achieve all this by correcting the body’s pH, its acid-base balance. In fact, the human body needs absolutely no help in keeping its pH constant. “ /rant
  2. tTG-IgA Tissue Transglutaminase Immunoglobulin A Self The enzyme TTG deamidates gliadin (a broken-down component of gluten). In reaction to the presence of TTG, the antibody immunoglobulin A (IgA) is produced. Raised IgA antibodies indicate short-term immune response, indicating ingestion of gluten 2-4 weeks preceding the test. Not 100% specific: there are other causes of a positive test, including diabetes, heart failure, Crohn’s and others. Also, people who have celiac disease can get a negative result with this test. Machine-read. tTG-IgG Tissue Transglutaminase Immunoglobulin G Self In reaction to TTG, IgG is produced. Raised IgG antibodies demonstrate long-term immune response, indicating ingestion of gluten from 3-6 months, sometimes up to a year, preceding test. Valuable in diagnosing Celiac in patients with selective IgA deficiency. DGP-IgG Deamidated Gliadin Peptide Immunoglobulin G Newer, excellent test that detects an immune response to a very specific fragment of the gluten molecule (gliadin peptide). If both DGP are high, celiac disease almost certain. Accurate for detecting gut damage of celiac disease, so good it is likely to make endoscopy redundant. Does not replace the IgG-gliadin test. DGP-IgA Deamidated Gliadin Peptide Immunoglobulin A (ELISA) measures antibodies directed against deamidated Gliadin peptides (DGP) in human serum or plasma. AGA-IgG Anti-Gliadin Antibody Immunoglobulin G Anti-self (Older gliadin test.) The antibody immunoglobulin G (IgG) is produced in response to gliadin. Raised IgG antibodies demonstrate long-term immune response, indicating ingestion of gluten from three to six months, sometimes up to a year, preceding the test. Not specific & sensitive for Celiac, but accurate as an inexpensive test for evidence of a gluten reaction AGA-IgA Antigliadin Antibody Immunoglobulin A Anti-self The antibody immunoglobulin A (IgA) is produced in response to gliadin. Raised IgA antibodies indicate short-term immune response, indicating ingestion of gluten 2-4 weeks preceding the test. Not specific & sensitive for Celiac, but accurate as an inexpensive test for evidence of a gluten reaction Total IgA Immunoglobulin A Self The celiac blood test panel includes the total serum IgA test because some people (3%) are IgA-deficient. If you have a very low total serum IgA, that can invalidate the three blood tests that rely on your IgA levels. People with celiac disease suffer from low total IgA levels about 10 to 15 times more frequently than people in the general population. EMA IgA Anti-endomysial antibody IgA Self EMA stands for antiendomysial antibodies, which are antibodies produced by the body that attack the body's own tissue. When the EMA-IgA is positive, the patient almost certainly has celiac disease. However, the test also can produce false negative results in patients with celiac disease but only partial villous atrophy. Highly specific (>95%), and >90% sensitive. The EMA antibodies correlate to degree of villous atrophy. Observer-dependent.
  3. Perhaps you know that mucus is actually very alkaline. It's what protects the lining of your stomach from gastric acid. And bile, compared to gastric acid, is alkaline too. I'm sorry you're still feeling so badly, but I'm not sure why you think stomach acid is the source of your problem. I'm not saying it's not, but until you're tested....
  4. Personally, I would be panicking if my stomach acid were NOT a whole lot more than just “slightly acidic.” You want it to be VERY acidic! The pH of gastric juices is among the most acidic thing there is, and it should be. So there may be something I’m not understanding. Does your stomach feel like it’s burning? Do you have reflux? I have never taken an antacid, and I caution against their overuse. Whatever you do, a healthy amount of water should help, I would think.
  5. They did - look upthread and one of the OP's comments.
  6. My only suggestion on hearing this is to take a picture of your abdomen in the morning when it is flat, and then another one later in the day when you look 9 months pregnant, put the two images in one file (like a before and after) to show to the hematologist and ask him or her if that is normal. If his/her office provides web portal services, send it electronically. Good luck and keep us posted. Plumbago
  7. Regarding what you say is severe anemia, if there are reduced red blood cells then often the heart increases output to compensate. But only in really really severe anemia. Is it possible the doctors think if the anemia is corrected then the bloating will be too? You've left the hospital - does that mean the iron deficiency is corrected? So they think you have iron deficiency anemia (though we don't know your levels). How is your B12 level? Lack of adequate B12 can cause bloating. So can hypothyroidism. I recommend a hands-on physical assessment. Seems like such a daring thing to ask for these days. Also, having a tummy is sometimes an adjustment those of us in middle age have to make. I don't mean to suggest that is what it is (we don't know your age), or to make light of anything, but that that may be a possibility. There are many other things that can cause bloating, and a 9 pound gain is something that should not be trivialized. Plumbago
  8. I'm so sorry to hear this. Are you still in the hospital? What did your doctors say about the bloating? It's probably not this, but have they ruled out ascites? I would need a little more background before I try to answer. Let us know. Plumbago
  9. Sometimes I wonder if there isn't an age bias, meaning that doctors associate celiac disease with younger patients and are far more skeptical of the possibility of adults, especially middle aged and elderly adults, having the condition. And they are therefore less likely to order tests for it. I know of entire clinics that have not ordered one celiac test.
  10. Hedonic Substances

    Interesting take on modern affliction of addiction, by Dr Robert Lustig, endocrinologist. From the Guardian. The pursuit of pleasure is a modern-day addiction Robert Lustig https://www.theguardian.com/commentisfree/2017/sep/09/pursuit-of-pleasure-modern-day-addiction Too much dopamine and not enough serotonin, the neurotransmitters of the brain’s “pleasure” and “happiness” pathways, respectively. Despite what the telly and social media say, pleasure and happiness are not the same thing. Dopamine is the “reward” neurotransmitter that tells our brains: “This feels good, I want more.” Yet too much dopamine leads to addiction. Serotonin is the “contentment” neurotransmitter that tells our brains: “This feels good. I have enough. I don’t want or need any more.” Yet too little serotonin leads to depression. Ideally, both should be in optimal supply. But dopamine drives down serotonin. And chronic stress drives down both. Too many of our “simple pleasures” have morphed into something else – a 6.5-oz soda became a 30z Big Gulp drink; an afternoon with friends gave way to 1,000 friendings on Facebook. Each of these momentary pleasures is just that – momentary. But chronic dopamine from your favourite “fix” reduces serotonin and happiness. Our ability to perceive happiness has been sabotaged by our modern incessant quest for pleasure, which our consumer culture has made all too easy to satisfy. Robert H Lustig is the author of The Hacking of the American Mind. He is Emeritus Professor of Pediatrics and the Institute for Health Policy Studies, University of California, San Francisco He is featured in the Sept 2017 podcast of Public Health, available on iTunes from uctv.
  11. The organization or web site, worstpills.org, just gave olmesartan a DO NOT TAKE designation, in their January 2018 newsletter, fyi, for the reasons detailed above.
  12. Have you heard of Dr Terry Wahls? She is an Iowa doctor in a VA there - she herself has MS, and has written about it. I recommend doing some googling and maybe checking out one of her books from the library.
  13. How often are you taking the 500 mcg? As for injections (the most effective absorption method), a lot of times, clinics will give daily shots for 5 days then weekly shots, and taper thereafter to once a month. Usually that is for people with pernicious anemia. It is important to find out the reason you are B12 deficient, and, for example, to rule out pernicious anemia. Sublingual seems to be more effective than oral tablets. You can talk to your doctor further about the possibility of getting injections. You can even ask them to teach you how to do it, so you don't have to go to the clinic or office every time. It's easy (I do it myself). I don't have PA, as far as I know. The key in all this, in addition to finding the root cause, is also to check your levels after a steady consistent period of the sublingual supplementation. Maybe it really is working, and injections are not needed. Also, you may give it more time. A few months is not that long (to me). But get your levels checked before deciding on a different route of supplementation. Peripheral neuropathy, is such a large, almost vague term, and it has many causes. Are you by chance on any medication for blood sugar control? I'm guessing no, that you would have mentioned it if so. You may try experimenting with other ways of eating and, for example, to see if reducing grains and sugar help. The forum is great, I agree! Plumbago
  14. It is. It's not as "elegant" as the Medscape article presentation, and doesn't include everything, including the table (see below) and of course the comments. Thanks for linking to it.
  15. Table 1. Prevalence of Diagnoses in People With and Without Celiac Disease (P < .0001 for All) Diagnosis With Celiac Disease, % Without Celiac Disease, % Odds Ratio Migraine 18.6 4.1 5.5 Anxiety disorder 25.9 8.7 4.0 Arthritis 28.9 8.4 4.9 Dermatitis herpetiformis 1.3 0.0 4563.5 Liver disease 23.2 4.2 7.1 Gastroesophageal reflux disease 36.8 13.0 4.5 Eosinophilic esophagitis 0.6 0.1 8.8 Atrophic gastritis 3.9 0.1 8.0 Glossitis 0.4 0.1 4.4 Pancreatitis 15.8 0.7 25.0 Disorder of the pancreas 17.2 1.1 19.0 Cerebellar ataxia 0.1 0.0 4.1 Autism 4.0 0.2 19.9 Colitis 25.9 4.2 8.4 Turner syndrome 0.1 0 17.8 Down syndrome 0.6 0.1 8.1 Common variable immunodeficiency 0.2 0.0 10.2 Surprising Number of Conditions Linked to Celiac Disease - Medscape - Nov 21, 2017.