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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes


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About RyanP

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  1. Celiac typically manifests as smoothed or blunted villi (which are microscopy little finger-shaped projections in your small intestine). I'm not a doctor (nor do I play one on TV) but I don't think this would show up on a small bowel series. There usually isn't a significant amount of swelling, which is what would appear on the x-ray/CT scan used in the small bowel series. Good luck with the rest of your testing! -Ryan
  2. Whoa! I would be extremely suspicious of this if I were you. It is basic science that you can't test whether something is gluten-free. Most ELISA tests I've heard of are accurate to a specific gluten content. IE, less than 20 or 10 or 5 parts per million. There is no test that confirms something is "gluten-free". That is impossible to test for. Anyway, regardless of that, the risks due to cross contamination, etc. just seem WAY too high. That's just my opinion though. Maybe somebody here has had good luck with it? -Ryan
  3. Welcome to the club! (Ok, so it's not always the most FUN club...) but the good news, as you are already finding out, is that you are going to start feeling a lot better! I wouldn't be overly concerned about finding other things wrong when you get your biopsy results. The doctor will typically take biopsies from other locations while doing the endoscopy. Usually your lower esophagus and stomach in addition to the upper part of the small intestine (which is where Celiac will show up). Things that commonly show up there are some swelling in your esophagus due to chronic heartburn (if you're prone to that), or overall swelling of the stomach. There are some other scarier things, but these aren't really related to Celiac. In all likelihood, your doctor wants to discuss the results in person because this is a conclusive finding that requires some major life changes. He/she will hopefully fill you in on the overall findings from the endoscopy, tell you (again) about celiac, and talk about what the next steps are. (Thats how my post-test appointment went down anyway.) More than any of that though, they will want to answer any questions you have. (Which if you're like me, you will forget or not be able to think of on the spot like that.) Good luck, and enjoy your recovery! -Ryan
  4. Odds are, if your butchers are serious about their craft, they will either know the answer, or be happy to find the answer for you. If all else fails, have you considered making sausage yourself? If you plan to use it in pasta sauce, you can skip the casing altogether. Just mix up some ground pork and spices, refrigerate it for a day or to two to let the flavors combine, then brown it down and add it to your sauce. Penzey's spices sells a variety of sausage seasoning mixes, and last I checked, all of their products are gluten-free (with the exception of some of their soup mixes). Good luck! -Ryan
  5. I'm not 100% sure for kids, but I for adults there don't seem to be any special precautions that need to be taken with anesthesia. I've had two rounds of it since being diagnosed, and neither one was an issue. I would definitely make sure the ENT doc is aware of your son's celiac disease though. It seems to be fairly typical for nurses in the recovery room to offer you a snack, so you also might want to pack a couple of gluten-free cookies or some crackers for him when he wakes up. Good luck! Ryan
  6. My GI recommended Florajen3. I think they sell them at most drug stores, usually in the refrigerated section. (They're supposed to be kept cold). They seem to be pretty effective for me. I stopped taking them for a month, and definitely felt significantly worse for the last couple weeks of that month. -Ryan
  7. Hi! So, here's some info I've amassed over the years about coffee: -'Decaffeinated' coffee can be decaffeinated any number of different ways. Some methods utilize ethyl acetate to remove the caffeine. That sounds scary, but its a substance that can be derived from fruits, and either way, the end product beans contain essentially no ethyl acetate (we're talking a few parts per billion. Much much higher concentrations are found naturally in red wine.). The other major method is the "Swiss Water Process", which uses only water and a special charcoal filter. (This is different than the water process, which uses some chemicals.) Another method using carbon dioxide is also gaining in popularity. (This uses only CO2, no other chemicals) -A cup of decaffeinated coffee typically contains 5-10mg of caffeine, vs the 80-100mg in a cup of regular. So, the answer to whether or not the caffeine is "better", is not very clear. It really depends on what you're looking for. Provided you don't have super high blood pressure or a hypersensitivity to caffeine, it seems unlikely either one would hurt you. (Some studies have suggested a net health benefit from either regular or decaf). If you are concerned about the possible chemical residues in decaf, then find a decaf made using the swiss water process. (These include both Caribou Coffee and the Coffee Beanery). As far as regular coffee goes, I usually buy from a small coffee roaster here in town. I've spoken with the owners, and know for certain their beans are gluten-free. I haven't ever found a brand that claimed to use gluten in un-flavored coffee, but it is possible. (Roasted barley is used to make a caffeine-free coffee-like beverage in some parts of the world). All that being said, coffee is not famous for being gentle on ones digestive system. It took me a year or two after being diagnosed to really be able to tolerate coffee. I'm now a big fan of regular coffee.
  8. Hi Monica, I've had great luck with Rancho Gordo (www.ranchogordo.com). They only do mail order (or I think they also sell at some San Francisco area farmers markets. They ONLY do beans, and are a relatively small operation. They are a bit pricey, but REALLY good beans, and a lot of varieties you can't find elsewhere. Hope this helps! Ryan
  9. Honeymoon Suggestions?

    Hi Kate- I was dx'ed a few months before getting married back in 2007. Our honeymoon was the first big trip I took gluten-free, and I have to say it was a bit intimidating. My wife and I ended up going to Kauai and had an absolutely fantastic time. (Since you haven't mentioned it here, I'll skip over the details, but I will say I did not end up getting glutened once) I do have some experience in central america, as well as europe, so here were my experiences: I took a trip to Costa Rica last year, and had a blast. I'm not a very good Spanish speaker, so it was pretty hard to get my point across/understood. (This was my fault. If I could do it over again I would have tried to learn a little bit more of the language.) That being said, the national dish of CR is gallo pinto (Rice and beans), usu. with some grilled meat so finding naturally gluten-free food was not a huge issue. The Guayabo Lodge outside of Turrialba is run by a dutch woman and her uruguayan husband. This was a very nice lodge in the mountains, with easy access to rafting, canyoning and hiking. I can't say enough good things about this place. They cook all their food on premises, and were more than happy to accomodate a gluten-free dinner. On the same trip we also spend a few nights in Manuel Antonio, on the Pacific coast. A little bit touristy for me, but fun nonetheless. If you happen to pass through here, Cafe Milagro (on the main drag at the top of the big hill) has the best coffee I have ever had, and was also happy to accomodate a gluten-free diet. (The owner is an ex-pat from Wisconsin,and super nice). As far as Europe goes, I've travelled to both the UK and Netherlands since I've been dx'd. Both were super easy to find gluten-free foods, especially if you can find a place to stay with a kitchen and do some of your own cooking. Amsterdam in particular was a very easy place to eat. I didn't really eat anywhere fancy, but most places were happy to accomodate. In London, I highly recommend the mermaids tail on Leicester Square. (Gluten-free fish and chips! For real!) Anyway, thats my long, rambling two cents. If you have any questions, I'm happy to try and answer them! Good luck, and congrats on getting married! -Ryan
  10. Support Groups In Madison, Wi?

    Hi Sami- I'm in Madison as well. I haven't ever been to meetings, but you're in luck as there are two support groups in town: -MAGIC (Madison Area Gluten Intolerance Chapter) http://www.glutenfreemadison.org/ -Gluten-Free Badgers-- This is a relatively new group at the university. (Which I think is open to the public). Unfortunately I don't have much info, but the Badger Herald (campus newspaper) had this article a few months back: http://badgerherald.com/artsetc/2010/11/08/celiac_sufferers_fin.php If you have other questions about gluten-free in Madison, I'm happy to help! Good luck! -Ryan PS: if you haven't already, you should check out Jac's on Monroe St. They have Bistro-type food (including AMAZING gluten-free frites), and offer a pretty big gluten-free menu (including Silly-yak bread for sandwiches/burgers). They are extremely educated about CC issues. I've eaten there ~5 times, and never had an issue.
  11. This is a pretty interesting study. I'm curious to see what falls out of it, particularly since there already seems to be some ties between Isotretinoin (aka Accutane aka 13-cis retinoic acid) and inflammatory bowel disease (see the study below). Reddy D, Siegel CA, Sands BE, Kane S (2006). "Possible association between isotretinoin and inflammatory bowel disease". The American journal of gastroenterology 101 (7): 1569
  12. Five Guys

    I've had really good luck with Five Guys. It is one of the few fast food-type places where the fries are gluten-free and not CC'd (they ONLY serve fries. No onion rings/cheese sticks/etc). At the locations I've been to (Madison and Cleveland), burgers are cooked on one griddle, and buns are warmed on a separate one. The burgers are 100% beef, and gluten-free. Each burger (whether to-go or eat in) is assembled on a piece of foil, so there is limited potential for CC from the counter area as well. I'm not sure about their hot dogs. Have fun and Enjoy!