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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes


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About pumpkin65

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  1. thanks...I just wonder if she is IGA deficient if a blood test would ever be right?if you are IGA deficient at age 11, are you always IGA deficient, or does that change? Her other IG readings were <3mg...I wonder if that means they were deficient also. ???? She will have new bloodwork in the coming weeks, so we will see what is up. Who knows...the hair loss could be because her thyroid meds are off. She is devoted to the diet - I have to give her a lot of credit. I am impressed with her label reading skills.
  2. I figured one of us would have to have given her the DQ 2.5. But many people have DQ 2.5, correct? Neither he or I have symptoms...I've always had a slightly irritable stomach - but that's it. It's hard to say how she is doing on the diet, since her gut problems were very sporadic and not terrible. One of her bald spots is filling in, and no new spots have shown up. Her psoriasis looks the same. She has not complained of neuropathy. She is not irritable - and she can be at times. She did have diarrhea one day - don't know why. She is being very positive about the diet and adjusted easily. We did not go down the gluten free path because of GI issues - I got a suspicion she was malabsorbing nutrients because of her delayed growth, hair issues, skin issues - so started researching and learned many of her auto immune issues are shared with folks who have celiacs. I was surprised at the 'clustering' of illnesses and the similarity with others. I also became suspicious because my just aunt died after an illness that seems eerily like undiagnosed celiacs. As we put all the facts together, I can't help but think it was. Thank you for your help.
  3. checking back in...her genetic test results came back today...I might post another thread to see if anyone can decipher this, in context with her other symptoms. It said she has DQ2.5 (HLA DQA1*05:DQB1*0201) and other non-risk alleles. will the endomysial antibodies, and deamidated gliadin peptide test be accurate if she has been gluten free for around 5 weeks? Because she really hasn't had too many 'gut' symptoms, I am not sure if a biopsy would tell anything. And her gut symptoms could be explained by random illness.
  4. All recent bloodwork is specific to monitoring her thyroid only. If the genetic test comes back as "positive", I guess we truly need to do some more blood work, and maybe biopsy? or more bloodwork regardless of the genetic test? It looks to me like they tested for the other IG stuff 3 years ago, but it looks 'normal' - but it seems I see others saying these can be falsely negative?
  5. Hello all, First post...mom of 14 yr old daughter with a variety of auto immune issues, trying to learn if she might have celiac's. She has had cough variant asthma, which seems to have resolved in the past 3 years. She is hypothyroid, and on synthroid (not yet diagnosed at this point with auto immune thyroid disorder, such as Hashimotos). She has had alopecia (hair loss) twice - we thought this was BECAUSE of her thyroid problem. She has had SEVERE constipation in the past (again, we thought because of thyroid), periodic diarrhea, and vomits more than our other daughter. The severe constipation has gone away since the thyroid meds. The alopecia has recently returned. She has pretty severe scalp psoriasis, and occasional spots on her body - either eczema or psoriasis. She had spots on her bottom last week. When she was younger, she had pigment 'dropping out' on her legs. I don't see that any more. She sometimes describes having what I believe is neuropathy - shooting pains in her feet. She has ADD, and takes concerta which has worked well. She has had slowish growth, adult teeth are late to come in, puberty is happening but slowly. Anyway, I was looking at some 3 year old bloodwork (I don't have recent bloodwork handy) and I see she has a low serum IGA? It says 12 mg/DL. On the same report, it says her gliadin AB is <3 U/ml. Tissue transglutaminase as IGA <3 U/ml and tissue transglutaminase as IGG <3. What does a serum IGA in this range really mean, in light of the other readings, which I guess are normal? I will update in a few days with the genetic tests. We are in the process of getting genetic results back from Prometheus. Should have in a few days (this is for DQA2 and DQA8 - I guess???)