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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes


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About Holgate

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  1. Degrees Of Gluten Intolerance?

    The problem I am finding at the moment is that to get my gluten-free food I am having to go to at least 3 diffrent sources in order to get a balance and when costed togther I am paying double of that I would if I brought similar products in my local Sainsburys. Why I don't know, but I know cost is one of the biggest issues for me personally at the moment. Also my doctor and dietician were honest enough to say they didn't know which packaged foods you could get that were gluten-free because so much rubbish is hidden in our foods then there's the fact that some so called gluten-free foods are prepared in factories which deal with gluten based foods...can't win either way on that one. Fruit and Veg are fine as long as they are organic but then again more money spent. We are only just catching onto the idea of buying bags of seeds and nuts so there are still only a few specialist health shops that are doing them. It's kind of ironic that today the supermarket, Tesco announced that it was the first british retailer to exceed the
  2. Degrees Of Gluten Intolerance?

    yes but the problem is when your in a country like the UK which is only just getting to grips with diabeties let alone Coeliacs it is nigh on impossible to avoid all glutens because it is hidden in so many of our everyday foods. At the moment we have to slow the progress down rather than halt it. At the moment it just cannot be done unless we all decided to trot off to the otherside of the atlantic where the problem is better understood.
  3. Yes the toilet end, one thing us British don't do well talking about but I have to bite the bullet and find out about this one. For a few months now when I have been sat down, no even for long periods of time I find I get pain in the base of my spine and into my back passage....to be honest it feels like I have been thumped down there, most unpleasent, very uncomfortable and very painful for a few moments until I stand up (which I have to do gingerly I have to add) Of course I was wondering if that was all part and parcel to the coeliacs what with having problems going to the loo as well or if this was a seperate problem I will have to get investigated at some stage. It does seem strange that this has only started within the past few months and I have never had a problem like it before.
  4. Degrees Of Gluten Intolerance?

    I had my first appointment with a dietician this week and even they don't know how coeliacs can be dealt with, many of them are still on a learning curve themselves as it is a relitivly modern thing. However she did say there are diffrent types of coeliacs, the ones who really can't take anything with glutens in it and those who could tolerate some but as the problem progresses would fall into the first catagory. The problem we have here in the UK is that you simply cannot go fully gluten-free, if you did you would starve as the vast majority of our foods have gluten in them, so for myself and many coeliacs we have to knock out as much as we can to slow down the deteriation rather than stop it in out tracks. In the past few weeks I have found out just how difficult it is to eat out in the UK, and in a couple months I have to attend a confrence away from home and will have to take my own food supply because the hotels just don't cater for it. Even my works summer ball dosen't cater for coeliacs and there are two of us attending. we have decided to get together and make up our own menus to take with us! we shouldn't have to do this, but the UK is only just catching up with the thought of Diabeties let alone coeliacs.
  5. How To Handle This . . .

    I have a similar problem in a couple months when I have to go to a confrence up country. I have to attend the gala dinner as my local referees secretary because it's the only real way to make contacts and get myself known to the select list referees who we would like to come down to our area and talk at some point, however there will be nothing I can eat. I did get a bit worried about it, but I did contact the hotel hosting the event and asked them if I could bring my own food which they were more than happy with and they said they would supply me with as much fresh fruit and veg as I wanted. Most places will accomodate even if they don't understand your diet.
  6. Cd And Sports

    Exeter isn't too bad for shop's there are a couple which I can get ingrediants from. Annoyingly it now involves me having to learn to cook my own food, before hand I could chuck something in the microwave and no problems. I haven't got my suitable food list yet because I am being refered to a dietician who will be able to go into the diet in more depth, so at the moment I am having to grab around in the dark a bit in order to make do. I know I am still getting gluten shots because of some of the food I am eating, but just by taking out breads, cereal and pasta it has made a diffrence.
  7. Cd And Sports

    Meat isn't an option for me, been veggie for years and I'm not likely to revert back. However I have been eating the gluten-free breads and cereals for months now, even before my diagnosis, and find them better than regular cereals, so I will look to replace with those. Protien wise I will have to find some alternitive source to aid the carbs.
  8. Cd And Sports

    I will certinally give them a go. Must admit I am not a fan of peanuts, but I will give them a shot as I always react to Sunflower seeds (and oil). Bit of a tough balance at the moment trying to eat the right foods and alsy keep my weight down to maintain match fitness but with the end of the season just a few weeks away I can at least use the summer to adjust.
  9. Cd And Sports

    Having just been diagnosed with celiac disease I am now in a bit of a tough position sport wise. Before my diagnosis my diet on the day of a football match (I referee the game here in the UK) consisted mainly of Cereal, pasta and other high carb wheat based foods. Obviously now I can't do this and while I have been eating the gluten-free versions I have found that my energy levels have dropped hugely and I am getting tried far too quickly during matches. I was lucky today that I managed to go 70 minutes before I started to feel my legs go weak on me because I didn't have enough reserve in my body to keep going. However in the past it's been sometimes 10 minutes into the match and I've suddenly felt that drop in energy. Does anyone have any suggestions as to what food stocks I could use in order to maintain and increase those energy levels. Also what drinks can I have for before during and after the match? Water is pretty much uselss to get me going although it does refresh the body and apparently these energy drinks have gultens in them so my main source of fluid is out at present. Thanks
  10. The UK is so under prepared for celiac disease, doctors never seem to be able to tally symptoms together and even if they do they are retisent about doing blood tests because it costs the primary health care trust money! Funnily enough I always thought the NHS was about health care! Anyway in work last week I had to attend a training course on self halm and sucide prevention which a couple of the health care nurses attended. When I asked one of them if paitents with depression and dietary problems were screened for celiac disease, she said 'No it's not worth it, it costs money and they are only depressed because they got caught and put inside' Even if screening for celiac disease only diagnosed ONE person and his diet was changed accordingly and it avoided the depression then it might well save a man's life. I was a touch annoyed to say the least
  11. well I have been to the doctor and had the blood tests done, just awaiting on the results of that. In the meantime my doc had said to try a bit of an experiment, for a month he wants me to go gluten-free while we wait for the initial results to come back, test again, see what happens than then go back to normal for another month and test once again to see how things pan out. His main concern at the moment is that I haven't had excess weight loss because of glutens, but he hasn't ruled it out. He has said at the very least I could be wheat intollerant so once in a while it won't be too bad if I digress from the diet. I do have to say after just a week of being as gluten-free as possible I do feel slightly better in myself, certinally don't feel bloated any more and the toilet end of things have been a bit better. It will be interesting to see what happens after a fortnight or so. I have to admit I have found the diet slightly easier than I thought I would even though I did waver a bit on the chocolate front (I was advised to hold off on it for a while) today, but one of those things, live and learn.
  12. after a few years of 'getting the feeling' that I had an intollerance to gulten, it seems yesterday everything has been finally confirmed. For years now I have had problems with my sinusus, always blocked, ears bunged up with wax etc, yesterday I had an appointment with someone to have an ear candling done which went well. However after the inital treatment and the facial massage that went with it the thearpist gave me a list of foods I needed to eat and told me I had to be tested by my doctor as soon as possible because she thinks...in fact she was convinced that I'm Celiac and told me to get started on a new diet as soon as possible which I have tried to do to an extent today. The whole strange thing about it was the fact that she managed to say every symptom I have had for the past 6 years without me even saying anything about my diet, she just knew from my skin and even the ear wax there was something wrong. Tireness, irritablity, fizzy minded after meals, blotchy skin (in fact painful spots at times) periods of depression, difficulty with night vision (which I have found almost dangrous while driving in the evenings, bloated, wind etc It actually all makes sense and does seem to have been coming to a head over the past few months. Now I just have to convince my doctor to at least give me a blood test so I can at least confirm it fully although i have made a start. However the problem will be getting diagnosed here in the UK....we arn't exactly moving on in leaps and bounds with diagnosis of the problem mainly because doctors don't believe it is a real problem, although I do have to say on the whole my doc is pretty good and open to suggestions. What does annoy me about this whole problem is that a) I have been mis diagnosed in the past and I went through 6 months (six years ago now!) of taking anti depressants because of 'depression' which could have been down to a simple food alergy and far easier to treat than being given drugs which made me bounce off the walls for months on end. Anyway my main question, how did you cope immediatly after diagnosis and what steps did you take to turning things around?