• Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes


Advanced Members
  • Content count

  • Joined

  • Last visited

Community Reputation

0 Neutral

About TooManyHats

  • Rank
    Community Member

Profile Information

  • Gender
  • Location
  1. I got all my results today. The biopsy from the 2nd portion of the duodenum was negative, "duodenal mucosa showing normal villous architecture. No evidence of cryptitis or dysplasia." Stomach body biopsy: Gastric mucosa showing mild reactive gastropathy. No evidence of intestinal metaplasia. Giemsa stain is negative for Heliobacter pylori like organisms. Colon-Ascending biopsy: Focal, mild acute (active) colitis. No evidence of dysplasia. Colon-transverse biopsy: Focal, mild acute (active) colitis. No evidence of dysplasia. Colon-Rectum biopsy: Focal, mild acute (active)colitis. No evidence of dysplasia. Iron % SAT 37 (normal 20-55%) Anti-Endomysial <1:10 (normal <1:10) TIBC 270 (normal 228-428) Gliadin IGG, ABS <20 (normal <20) Gliadin IgA, ABS <20 (normal <20) Ranges for Gliadin and Transglutaminase Antibodies IgA/IgA (Units) Interpretation <20 Negative ASSAY Information: Method ELISA (INOVA QUANT Lite) New ranges effective 8/23/10 I have no idea what to make of this. I'm told I have colitis and the doctor wants to put me on Lialda, two 1.2 mg tabs x once per day. No mention of what the cause is. No mention of whether this is ulcerative colitis, lymphocytic colitis or collagenous colitis. In fact she told me that very often they don't know what causes this. I just don't understand and don't relish the thought of being on this medication for at least six months, which is what she told me. Has anyone else had results like this?
  2. gluten-free Food Tax Write Off?

    I don't know about the diet as it relates to autism, but I have heard that if we are officially diagnosed with Celiac and the doctor writes it with our name, diagnosis, and date then we can write-off the DIFFERENCE in the cost between gluten free food and "regular" food. For example, if a loaf of wheat bread costs .99 cents, and a loaf of gluten free bread costs 5.99, then you could write that 5.00 off on your taxes under medical expenses.
  3. For those living in New Jersey, I just got off of the phone with Shoprite. Their Certified Organic Butter flavored microwave popcorn is both gluten and soy free. I'm doing the happy dance!
  4. Correspondence With Lipton

    It has soy in it, so I guess it's still out for me. Herb-ox beef (not sure about chicken yet) also has soy. I have no idea what to use in place of that.
  5. Correspondence With Lipton

    So you all consider it safe then? This would be great news at my house!
  6. After realizing that Lipton Onion Soup Mix listed soy as an ingredient, I wrote to them. Here is their reply: Thank you for writing us regarding Recipe Secrets Onion Soup . As of Sept. 2010 our LIPTON SOUP SECRETS ONION now states that VEGETABLE YEAST EXTRACT (BARLEY) as an ingredient. Reason for the labeling change Though it was not required by the FDA, since the amount was so small, we have voluntarily declared gluten within the ingredient declaration. The amount of gluten in Lipton Onion soup and Lipton Vegetable soup is estimated to be 0.09 ppm (parts per million) in ONION soup PER SERVING and 0.04 ppm in VEGETABLE soup PER SERVING. These amounts are negligible and, according to the Celiac Association, are of no risk to those with Celiac Disease.* * Please check with your health care practitioner to determine the best course of action for your family. We hope this information is helpful. Sincerely, Your friends at Recipe Secrets It sounds to me as though the formula itself did not change, but there was a change in their labeling declaration. What do you think?
  7. Soy Lecithin

    Sorry I didn't make that more clear. I was talking about soy intolerant. I guess that's what I am now too?
  8. Soy Lecithin

    Do you consider soy lecithin safe? I've read that the amount of soy protein in soy lecithin is negligible.
  9. Are there any brands of Italian sausage that are gluten and soy free?
  10. Feeling Discouraged

    You've identified the source of today's problem, the chocolate rice chex. Dang, I really like that too! Plain rice chex for me from now on. I couldn't imagine what I had done wrong today and at least I know now. Thank you for pointing that out.
  11. Jicama

    I got this recipe prior to diagnosis, so I'll post it and see how all of you may alter it to be gluten free. It's a delicious recipe and would love to figure out how to adapt it to be gluten free. 3 1/2 to 4 lbs of Napa Cabbage, cut up (sliced) 3 bunches of scallions, sliced 8 oz of toasted almond slices 3 pkgs of Ramon noodles (noodles only) 1 Jicama cut into 1/2 cubes Sauce: 2 cups veg oil 4 Tbsp soy sauce 1 cup rice wine vinegar 1 pkg of flavoring from Ramon noodles pepper splenda (sugar as a substitute?) Combine the cabbage, scallions, almonds, noodles, and jicama and poor sauce over it. Serve immediately. Enjoy! Maybe a chicken bullion cube (crushed) for the Ramon noodle packet? I'd also be interested to see what kind of "noodle" you all would substitute for the Ramon noodles. Obviously, I'd be using a soy sauce substitute recipe in place of the actual soy sauce. I have found one and would be willing to try it.
  12. Feeling Discouraged

    That Old El Paso stuff is just way too questionable for me. I like the recipe for the home-made one and will try that. I really don't want to hear that I'm sensitive to soy too. What will be left? I've never had a problem with soy before and have eaten soy icecream before. This has me very depressed. I'm going to buy that tamari stuff and try that on Friday to see how it goes. Why do these sensitivities crop up all of a sudden?
  13. Feeling Discouraged

    Thank you! This looks good. I figure the El Paso sauce wasn't my best choice to date. I've read on another board where someone said they had been glutened by La Choy soy sauce. I'll be picking up the tammari (SP?) sauce to try for next time.
  14. Feeling Discouraged

    I ate Polenta for the first time today. I wonder if that's it for today? I'm sure it was the Old El Paso enchilada sauce on Wednesday, not on an approved list, I should have known better.