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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes


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About kitINstLOUIS

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  1. TTG accuracy isn't good enough, that's why a biopsy may shed more light. I would insist on an EMA blood test. It's important to know that in people with DH, the impact on the bowel may be less than for celiac without DH. Damage may be less easy to find via biopsy. Ask that the # of biopsies taken be at least 6 to increase your odds Also, you could really put the celiac issue to bed if you don't have celiac genes Although these thoughts aren't addressing your question narrowly, you don't have to choose either to wait on biopsy or just go off gluten. There are other sensible options. But yes, there are definitely benefits to taking the trouble to be diagnosed 1. Dietary compliance is much higher when patients have a diagnosis. 2. It's vitally important information for your family if there is celiac disease in the gene pool. 3. There is a lot of medical follow up that would need to be done to repair and protect your health if you have celiac disease. 4. Celiac disease leaves you vulnerable to many other conditions that will need looking out for from now on. 5. Medical personnel and everyone else will take your dietary issues more seriously if you have a celiac disease dx.
  2. Call a dermatologist and ask if they are familiar with dh biopsies. You don't need an endoscopy if you have a dhdiagnosis. Also, why not ask go to a different place for your endoscopy? As long as the doctor has written an order, you can take it a
  3. Am I Losing My Mind!?

    Perhaps a thyroid check is in order...happens all the time with celiac patients; a large number of people have both. Low thyroid can cause dryness, fatigue, poor digestion. You might want to take a look at your diet and see if you might be eating too much sugar and starch. Check out the paleo diet, maybe, to get rid of residual problems. Worked for me!
  4. Feeling Bad

    I agree with the previous post that a vitamin work up is in order, but I would bet my next hard-won meal that you have a thyroid disorder. It's so common with people who have celiac disease, I wouldn't be surprised that it's implicated in the gluten-intolerant as well. Symptoms of hypothyroidism include fatigue (sometimes to the extreme), weight gain, hair loss (the outside third of your eyebrows may be gone), deep muscle and joint aches, insomnia or way too much sleep, dry skin, brain fog, cognitive decline, memory problems, depression (this just tops the list and you may have any or all of these). Many of these are common to all autoimmune conditions, but thyroid disease is the most likely and it just takes a blood test (or a few, depending on your results) and a very inexpensive thyroid replacement prescription. Fair warning: many docs, especially older doctors, are not good at interpreting thyroid lab results. Even older endocrinologists might prefer the older lab references, which many modern doctors feel are far too wide, that is, the normal reference range includes a lot of sick people. You'll want to ask for a Free T3, Free T4 (NOT total T3 and or total T4, that's an old test panel!!) and TSH tests. If your TSH is below 3.5 (the higher that number, the lower your likely thyroid level, yes, it's backwards), then you are most likely in need of replacement hormone and should get tested to figure out whether or not you have Hashimoto's disease, the autoimmune disease that causes low thyroid (it's another blood test of the anti-TPO antibody). I'm not crazy about all aspects of Naturopathy, but Natropaths are really good at figuring out thyroid and hormonal problems. If your doc doesn't seem to know about the panel with the free T3 and free T4, you want to see someone else...(s)he's not up-to-date. At any rate, she'll likely run the TSH, if she does then ASK FOR A COPY OF YOUR TEST RESULTS and check the number. DO NOT take her word for it that the levels are ok. I can't tell you how many mistakes have been made just in my and my family's cases where thyroid testing is concerned, and have heard the same things from many people online in the thyroid forums. To read more, check out Mary Shomon's site. Just google Mary Shomon Thyroid, you'll find it. Low thyroid is an easy fix, but will take some weeks to feel strong again if thyroid is, indeed, your problem.
  5. Licking a butter knife would be plenty to make me sick for weeks. There's a huge variability among us as to the length of time the inflammation caused by a gluten ingestion will be evident, from days to months. In addition, it can trigger other autoimmune responses that will produce more inflammation that can make you feel generally ill. There are a lot of foods that are said to be inflammatory, like green leafy foods, fruits and vegies (as long as you're not sensitive or allergic), red wine, green tea, fish oil... With some luck they'll contribute to calming down your response a bit. Yoga is actually helpful if you can do it. And if you do judge yourself to be this sensitive, you might consider keeping your kitchen gluten-free. I don't even like the idea of preparing food around where a gluten-laden rag has wiped, and I would worry about the dishwasher spreading gluten on to my plate. Not everyone has a mate as supportive as mine, but it is such a relief for me to know that my home isn't going to challenge my health. Best of luck to you, I hope you feel better soon!
  6. Angry About Food In General!

    If you can't vent here...then where? Yes, yes, count our blessings, so lucky to live in a time we can be diagnosed, have so many good substitute products, etc. etc. But damn! Asking one of us to contribute to a pot-luck where we aren't going to be able to take part does rankle! It's the rare observer who understands that we either attend a food-based gathering with our stomachs growling and be constantly exposed to lovely, tasty things we aren't allowed to touch while we listen to others rave or rant about this or that thing they've eaten or prepared, or we just don't attend and we miss out on important social or professional interaction. And we'd better not convey that to anyone! We're supposed to be cheerful and great examples of how healthy we are on our difficult diet, which can be tiring on another level. It can be one more veneer between ourselves and the rest of the world. So, yes, my dear, vent on! We get it! So, I've gone there, and let me go back to my cheerful self to say that my quality of life, in spite of everything, is much better off gluten than on it. It's wonderful to be able to enjoy the tasty food I have the time and luxury to make at home, and I've become one hell of a cook. I've also learned more about biology, medicine, and the business of medicine than I ever would have otherwise.
  7. I have DH (dermatitis herpetiformis) but only get it after ingesting trace amounts of gluten from CC or airborne flour in the grocery store. I never get a rash from someone who has gluten on their fingers or from touching handrails, etc. It's generally considered impossible to have a skin reaction due to celiac disease without ingesting it. I do, however, have a friend who is highly allergic, who even gets a rash if, say, beer is splashed on her at her restaurant job. She gets very typical gluten symptoms if she ingests it, although she has tested negative for celiac disease. A wheat allergy can cause leaky gut and can lead to anaphylaxis which, of course, can kill you. I'd take the skin reactions you have from direct contact with gluten very seriously, and avoid it like the plague. Not that wheat allergy and celiac disease are mutually exclusive, you could have both. The question might be, do you react badly to non-wheat gluten? Like rye or barley?
  8. Sick And Tired Of Doctors?

    I Googled Eye Radiology and could find nothing on it, but I am very interested in the science behind it, if any. I do respect Chinese medicine but I also understand that they have different ideas on, for instance, their responsibility in regard to informed consent. All in all, I think it's wise to be skeptical about anybody trying to sell you services, traditional or not.
  9. Wow! I'd really like to hear how many kids were harmed or killed as a direct result of traditional medical therapy and pharmacological intervention. My guess is that the number is exponential to the harm done in alternative therapy. Celiac patients, by necessity, have become a very self-informed group. I hope each of us can learn by our numerous bad clinical experiences to be curious and skeptical of anyone telling us what to ingest. On the other hand, when you hear the phrase "medicine is more art than science," remember what it means: there is no treatment or remedy that has been shown to be perfect for your specific physiology and chemistry. Proceed with diligent caution. And if you EVER go into a hospital, make sure there is someone there 24/7 to check the meds they give you and make sure people coming into your room wash their hands. The last survey from the NIH says 13.5% of Medicare patients going into the hospital in the US have been seriously harmed or killed because of medical mistakes.