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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes


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About xabbar

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  1. Hi Amanda, I realise your post is a few months old but was interested that a lot of symptoms have begun since you went gluten free. All the advice you have been given is very relevant - I went gluten-free over 2 years ago and felt great for a while only to start getting bad reflux again (tight chest, something in throat etc.) after about 1 1/2 years. It was very depressing as I had been feeling so good, but it led to me giving Enterolab a try - they test for many food intolerances via your stool. I live in the Caribbean and was able to order the test and send it back from here overnight. The interesting thing is that I have discovered I am also intolerant to dairy, soy, egg and oats - many gluten intolerant/sensitive people have a hard time with these foods also, it is very very common. I cut out all of these and my symptoms have pretty much cleared up. Because dairy doesn't affect me as much as gluten, I sometimes have milk in my tea, but I definitely feel it the next day with mild acid reflux and sometimes headaches. Once you clear your body of these foods it does become much more sensitive. By the way, you can be gluten sensitive and not have celiac disease. The harm to the body and symptoms are the same though. Dr Fasano at the Center for Celiac Disease Research at the University of Maryland has recently published very interesting information regarding this. Hope you are feeling better and good luck - it can be a long road full of self diagnosis and research but definitely worth the effort. P.S. Not sure if they have enterolab type testing in Australia - but I highly recommend it
  2. I know most of you are familiar with those nasty 'gluten headaches' - lately I have found that I sometimes get them even when I am sure I haven't eaten any gluten at all. This mystery was cleared up after another round of Enterolab and finding out that I am dairy/soy/egg sensitive as well. Even so during a recent bout of flu I took extra strength tylenol, as usual, and kept getting really bad headaches, even after the flu cleared up. My mother suggested I try taking some type of acid inhibitor as she felt the tylenol was causing acid reflux type problems. Lo and behold, I took some pepto and 10 or 15 minutes later the headache cleared right up. I've tried this since when I've felt a 'gluten headache' coming on and it has worked every time (about 3 so far). Just thought I would share that in case it works for anyone else. Those headaches are enough to drive anyone crazy.
  3. Thanks for the recommendation of Cybele Pascal's baking book. I have been gluten-free for 2 years and recently found out I also react to Dairy/Soy and Egg. To make it even more difficult my 13 year old is Gluten/Dairy/Soy & Egg and my 10 year old Soy and Egg! Aaaaaagh! I live on a small island in the Caribbean and have very limited access to any kind of health food store so the challenges are beyond ridiculous. Have downloaded this book to my iPad and look forward to trying out some of the recipes. Thanks again.
  4. Just wanted to mention that it seems once you take gluten out of your diet and then ingest some, accidently or not, the effects seem to be more intense and quicker. I'm not an expert but I would guess your body becomes even more sensitive once you are on the diet. Also it might be worth checking your sensitivity to dairy - many people who are gluten intolerant/celiac cannot deal with dairy either. Good luck! xabbar
  5. Hi Meggielynn13, I was just reading your experiences and wish you the best of luck with the diet. I was diagnosed celiac 2 years ago after years of bad health pain etc. My nephew who is 12 next month has suffered too and afer a negative biopsy and negative gluten sensitivity panels and everything else in between, my sister ordered the Enterolab testing. He is conclusively gluten sensitive, dairy intolerant and has the genes for celiac. I suggest you do these tests, its worth knowing for sure. Good luck xabbar
  6. I made a recipe last night with soy sauce which didn't say 'gluten free' on the label but none of the ingredients had gluten. This morning I have a headache. Am unsure how this could be. Most soy sauce actually says Wheat under ingredients but this one didn't. Am I missing something?
  7. Thanks everyone for your feedback. He has had blood testing and it was negative. His mother (my sister) is well aware of the whole gluten free diet thing and how it changed my life. Interesting comment regarding Crohns and that diet is essential for 'controlling' it. Will bring it up from this angle and see where I get - its very frustrating though because she herself has many symptoms of celiac disease/gluten intolerance but because her blood test was also negative will not go further with it. Oh Well! As they say, you can lead a horse to water........
  8. I was diagnosed with celiac disease almost 2 years ago. Lots of my family members have symptoms but refuse to get tested. My 11 year old nephew has many gastrointestinal problems and headaches as I used to before diagnosis - he had an endoscopy/biopsy done last year and the result was negative. In the meantime he has been poked and prodded and checked for everything possible, diagnosed with Crohns and put on large amounts of steriods with no change etc. etc. My question is, is it possible to have a negative biopsy but still have celiac disease? I swear I watch this child suffer and am convinced that his problems would all clear up on a gluten free diet. Unfortunately because his biopsy was negative they refuse to put him on a gluten-free diet to see if he feels better. Does anyone know? Xabbar
  9. Annatto

    Friendly's vanilla icecream has annatto and I think I reacted to it and have done in the past. If it is gluten free, maybe it is just hard to handle with a damaged gut.