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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

zebaldwin

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About zebaldwin

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  1. Thanks Shauna! Ya...I'm still confused. I get a migraine usually without fail about 21 hours after eating dairy (mainly cheese)...yet some days where I didn't have cheese or anything dairy the day before I still get a migraine. So I am in the process of doing a daily, in depth food journal. (something I should have started years ago...but better late than never!) Thanks for the response
  2. Elisa

    Ya, that's what I was afraid of. I am having the hardest time pinpointing anything...especially because I am almost positive whatever it is has a significant delay with reactions. I recently started keeping a very detailed journal, so hopefully that will help
  3. Just curious if anyone here has had the ELISA testing done, and if it was helpful or not. I keep getting so close to finding the answer to my health problems, and I am still convinced it is food related...just looking for a means to find some real answers. Is it accurate? Is it helpful? Also, is it something my GP could do or do I need to go to an allergy specialist? Thanks!
  4. I actually was thinking that was a possibility too since I eat a lot of lunch meat and things with "caramel color, natural ingredients, etc etc" that I have read could contain casein. However, over the past few weeks where I was headache free I did eat some of those things problem free...which is why I'm confused (and discouraged)
  5. For yesterday, I am sure. I checked every label. All I ate was oatmeal with water and sugar, a sandwich with turkey, lettuce and tomato on whole grain white with 100% natural potato chips, and then popcorn chicken and frozen french fries later in the day...checked he label and saw no dairy. However, the day before, I had pasta with a SMALL amount of parmesan cheese. I guess there is a possibility it could be a 2 day delay...not sure
  6. About a year ago I actually became a member here and was very active on the board, thinking I definitely had celiacs. I got most of the tests you listed as well as a colonoscopy and biopsy. On top of the that, on my own, I did a FULL gluten free diet for about free months (down to all new cooking utensils and shampoo) with ZERO positive results. At that point I assumed it was safe to rule out gluten. And like I said in the earlier post, the only long term relief from the headaches I've had in years was when I completely cut out dairy.
  7. I've had many chronic symtoms over the past probably 7 or 8 years...getting worse over the past 2 years. The core symtoms are chronic nauseous, dizzy, headaches/migraines (nearly every day), general fatigue and weakness, and brain fog. I've seen MANY doctors. Multiple GPs, multiple neurologists, a GI, an ENT, eye doctors, dermatologists, therapists, you name it. Have also had a brain MRI and have been tested multiple times for celiac (blood and biopsy, all negative). For a while I thought it might be celiac and went on a gluten free diet for several months with no results whatsoever. The past few months I sort of gave up. About 3 weeks ago I decided to completely cut dairy out of my diet after reading an article on food allergy related migraines. Well, my migraines disappeared for the most part. One night I ate pizza to "test" things out, and exactly 24 hours later the migraine hit. So I came to the conclusion that I had diary related migraines with a 24 hour delay (which I've heard is common). A lot of things clicked. When I was eating gluten free, I was dairy free for about a week, but re-introduced it so that I could get more protein. One of the weeks I remember feeling pretty good I was in Ireland and ate no dairy that I can remember. However, today I got the headache. Yesterday I ate absolutely nothing with any trace of dairy. I guess my question is, what in Dairy would be giving me the headaches? Is it something that could be in other foods that I'm not aware of? Am I wrong that dairy is causing my problems since I got a headache today? I got really really excited that I had at least a small breakthrough and figured out one of my problems...but today I am just depressed thinking of why the headache would be back. I'd appreciate any input that anybody might have...sorry if this is a little vague. I'm trying to sum up A LOT in a few words. Thanks guys!!
  8. Thanks for the reply! Ya, the only things that really changed were the vitamin D and the diet...got a new script for the D, and trying to stick to a better diet. For the biopsy, do I still need to be on gluten for 3 months? (ive gotten the bloodwork done twice by 2 different doctors while eating gluten, both negative) Thanks again!
  9. Thanks love2travel. I have only had bloodwork done. If I wanted to get a biopsy or something, is 6 weeks eating gluten enough or no? Just don't know what to do next :/
  10. Well the problem is that I felt better going OFF the diet...which is why I am so confused. I guess my bottom line question is could it take 6 weeks OFF the diet for the gluten to start affecting me again? You said that this sounds "dangerous" a few times...what exactly do you mean by that?
  11. I haven't posted on here in a while. I have had a lot of health issues over the past year or so, and decided to try gluten free on my own (negative blood work) I was gluten free for over 3 months with no (noticeable) difference, so I went off the diet. I have been off for about a month-6weeks, and most of that felt a little better, noticeably better...but only noticeable now because for a week I have had all my exact same symptoms (bad brain fog, weakness, some digestive issues, etc). Is it possible that gluten free really was helping? I just dont understand how I felt great while eating gluten for almost 6 weeks. I am so lost as to what to do. I can't think of much else that changed in the last 6 weeks (I did stop taking a high-dose of vitamin D for a deficiency...per doctor's orders.) I would appreciate any input on this issue. thanks!
  12. Thanks again guys...and sorry for all the complaining. I guess it boils down to what you were saying...you saw SOME symptoms go (like maybe stomach problems) within the few months...but I haven't. My stomach is worse than it ever was and everything else is the same. I guess that's where my doubt and discouragement comes from. Also, I think me wanting this to be the reason so badly is clouding some of my judgement...and just making me even more upset. It's hard. And I know that everyone on here knows that (which is nice being around people who can relate!) I guess I just have to figure things out... ALL the advice you have ALL given is invaluable. Thank you so much.