I'm 20, and I figured out that I have celiacs about a year ago after suffering from progressively worsening symptoms for the past three years and many doctor's visits. I am having a rather hard time dealing with this on top of the other things I have to deal with. I have been in and out of the hospital all my life, having had 9 major surgeries, developmental disorders requiring speech therapy and extensive work to develop fine motor skills, possible brain damage, and even one point where the doctors where sure that I was going to die as just an infant. I also have alpha-1 antitrypsin deficiency, which was discovered when I was just a baby.
Aside from the medical conditions, I also was a shy kid who had to deal with an older sister with aspergers, who had been a huge strain on my family. Along with that, and some bad choices in friends to confide in has left me with self-isolting and unable to really trust anyone, even those who really care about me.
I am pretty much at my wits end and am sort of tired of having to deal with everything, since I have never really had many healthy times in my life and I already have a fair amount to deal with and, partly through my own action, no one I can really turn to that understands all this and is willing to be there for me.
I don't know what I really am expecting from this website. But, I could always use some help on this. Part of the problem I am really having is just, it is very hard to have a social life and connect with people when so much of the food and places my friends and others go to have gluten. It is especially tiring for me since I am extremely uncomfortable talking with people and then to always have to deal with and describe celiacs to others, on top of the others things I have, is just getting to be to much.