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Scarlett January

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About Scarlett January

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  1. YESSSS! I so relate to this (argh, it is really hard to type right cuz two of my fingers are numb from an accidental ingestion of gluten 3 days ago). I am also in a 12 step program for ED and although I have had binge-purge free periods I do still struggle with it occasionally. I went gluten-free about 8 months ago, without any formal diagnosis because I had such strong suspicions and no doctor would take me seriously. Well, surprise surprise, when I went gluten free I stopped having gastro-intestinal problems, and stopped having numbness in my hands, joint and muscle pain, night sweats etc. But I really struggled at first, particularly when I wanted to binge. It took me a while to completely switch to gluten-free, even for my binge foods. Eventually the suffering from symptoms after a gluten-filled binge became too much and I now no longer "cheat" and eat gluten on purpose...EVER! In fact, normally I can't keep any sweets in my house AT ALL or I will binge on them. Now when there are sweets in my home that don't even list gluten ingredients but which I cannot confirm to be gluten-free I am not even tempted to eat them. This is simply amazing for someone like me who has struggled with an ED for 16 years! (You probably understand what a big deal that is.) I understand that it is very hard to accept this as someone with an ED. Sometimes the meals I will eat in a day are the reason I get out of bed in the morning (god that sounds pathetic...but sometimes its just true.) i have found some relief from the sense that I am being deprived by really putting in the time and energy to find REALLY REALLY DELICIOUS alternatives. They are out there! I am fortunate to live in a big city where there are a lot of options. Also, I have done a lot of experimenting with gluten free cooking at home. I think the thing that I miss the most are the "fast food" options and by that I don't necessarily mean junk food, I just mean the convenience of being able to grab a quick and convenient snack or meal somewhere. To solve this problem I cook big batches of stirfries, pastas, traditional meat and potatoes type dinners, soups etc and freeze them in single servings. Then, if I know I will be out for the day and will need something to eat I just take one or two with me and I can always stop by a 7-11 or somewhere with a microwave to heat up my food. voila! "Fast food". I hope this is helpful. If you have any specific questions about dealing with celiac with an ED I would be happy to respond again. Please remember: you are not alone in this! :-)
  2. Hi! I too have struggled with constipation, however mine started long before I went gluten-free. It seems that no matter what I eat (or don't eat for that matter) nothing changes significantly in terms of bowel movements and stool consistency. At one point I even had to have an 'emergency' colonoscopy (normally where I live you wait a couple of months to get one and they had me in the hospital to get it done in fewer than 48 hours!) because I hadn't had a bowel movement in 3 weeks! Of course the colonoscopy came back normal and I was no further ahead than before. After trying many more diet changes, laxatives, supplements etc. it was recommended to me by a gastroenterologist to try MILK OF MAGNESIUM. It is normally used as an antacid but when taken in larger quantities it acts as a laxative. She told me it is safe to use regularly and to just start with a low dose (1Tbs or less) once a day and increase slowly until I start having regular bowel movements. There is no pain or cramping. It is very gentle. In fact, the only effect it seems to have is--miracle of all miracles--I am actually having a daily movement (and have been now for about a year) for the first time in years!!! For me, personally, 2 and a half Tbs is the magic number, except when I have eaten something containing gluten and then I usually need about 3 or 3 and half for a couple of days to a week. I feel really weird posting all of this information about, of all things, bowel movements haha, but I am super passionate about it because milk of magnesium has given me so much relief...more than these words can convey! I hope this helps. Also, if anyone has heard any negatives of using milk of mag long-term I welcome your input. Up until this point I haven't seen anything negative about it. One last note: the doctor said magnesium citrate pills will not do the trick and in my experience she is right (I had already tried them with no effect) and also just make sure there are no extra additives in your milk of mag because they can be irritants for people like us with sensitive digestive tracts. Personally I use Phillips brand. Good luck. I hope you find a solution that works for you :-)
  3. Oh my god, YESSSSSS! I was looking at a thread about people's symptoms and no one mentioned the sweating. Night sweats have ALWAYS been a symptom for me. For a period of several weeks at one point, before I knew what the problem was, I would wake up several times a night so soaked I had to shower. And yes I literally could have rung the sweat out of my shirt and pajama pants (as someone else mentioned they had to.) Ugh! It was awful. I can always tell I've eaten gluten when I wake up the next day feeling achy, sweaty, and cold with numb/tingly hands.