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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes


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About AndyGee

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  1. Small update. So i started a gluten-free diet about 4 days ago. First day of it i was the same, gurgling stomach, bowel troubles, bloating etc. By the second day, all the bowel symptoms were gone. Good thing, right? So i bought more gluten free food. Last night was very sick. Sicker than almost i've ever been. All the same symptoms but worse. So, i went back to check the packaging. Yep, gluten-free alright. I havent consumed any gluten. But according to the packaging i've been consuming a lot of milk products, soy, sesame seeds and nuts. I had a snack before i went to bed, these gluten free cracker things. I'm going to list the ingredients because the symptoms hit me about 2 hours after eating this. Incredients: Corn starch, rice flour, vegetable margarine [vegetable oil, vegetable fat, water, emulsifier (mono & diglycerides of fatty acids), salt], modified corn starch, dextrose (from corn), eggs, flavours [contains anticaking agent (magnesium carbonate), acidity regulators (citric acid, sodium phosphates), sulphites and milk], yeast, salt, thickener (guar gum), raising agnts (ammonium hydrogen carbonate, sodium bicarbonate), emulsifier (mono & diglycerides of fatty acids), flavour. CONTAINS EGG, SU;PHITES AND MILK. MAY CONTRAIN TRACES OF SESAME AND SOY. this apart from some gluten free cookies (which i don't have the packaging for any more) are the only two extra things ive added to my diet over the last few days. Any theories?
  2. yes i hadn't changed my diet then. It was in the first round of blood tests i did, before i underwent any invasive tests. i checked all the labels in my cupboard and went food shopping today - only got stuff that was gluten, soy and dairy free. Am i going crazy or do my symptoms represent a food intolerance? I remember when it started it came out of nowhere and it's been getting progressively worse over the past few years
  3. my doc said he did a 'celiac screen' which im not sure what it entailed but it came back negative. Which, from what i've heard, isn't that uncommon
  4. I'm from australia I would have no idea if i were eating soy... as far as i know i'm not... I'm not taking any daily supplements at all so.... *shrug* I've literally been tested for everything... but my doc said from the beginning he always wanted to make sure it was nothing extremely severe like cancer or something. Which i can safely say it isn't after being tested for just about everything. I developed symptoms when i was 18... almost on the dot. But the only travelling i had done before that was 14 when i went to Africa. Otherwise, nada. I'm assuming i was tested for parasites maybe... i'd think the medical profession was a joke if two different GP's, a gastroenterologist, an endocrinologist, a nutritionist and a dietician all didn't check for parasites. Timeline doesn't fit, i don't think anyway.
  5. This is going to be looooooong so please bear with me. Im a 23 year old male and have been struggling with really bad digestion issues since i was 18 (i don't even remember what it's like to feel normal after a meal any more ...) I'm VERY underweirght (skinny runs in the family, but not this skinny... although i've ALWAYS been skinny) When i was a kid i seriously had an iron stomach. I could eat anything with no repercussions. But around late 17 i started to get really bad digestive symptoms. For the first couple of years it was just this incredible pressure-like feeling on my stomach. It felt like, if i had a full stomach, that someone was sitting on it. Very uncomfortable... But apart from that, to be honest my symptoms were nil. I should point out that as soon as my stomach was full, and i stopped eating, i'd have that feeling... and it usually lasted 4 or 5 hours, gradually easing after around the 4th hour. I missed three months of my final year of school because i felt so bad. This time was spent getting every diagnostic test you could imagine. Barium meals, colonscopy, endoscopy, an impressive myriad of blood tests (i was a human pin-cushion) CT scans, ultrasounds, went on strong antacids, antiemetics (to stop the nausea, i wasn't vomiting - although nausea wasn't really the problem anyway) and several different tests on my liver, kidneys, gall bladder et cetera ad nauseum. All came back negative. In a medical sense i was fit as a fiddle. This gave way to depression. Not clinically, but i was depressed about it. After all this, my best friend (who is celiac) suggested i go to a nutritionist or a dietician (can't remember) and she seemed convinced it was a food intolerance. she wasn't sure which, so she put me on an elimination diet. But this diet was elimination for like - everything! Couldn't have food colouring, lactose, fruit, gluten... you get the drift. It was iffy though, because from what my best friend told me (their whole family are celiacs) that even the smallest amount of gluten can mess you up, which would make the elimination diet useless. But apparently i was allowed to eat hot chips (which have a dextrose batter on them?) I don't know. I'm rambling. She said 6 weeks of that diet will give me an answer. Six weeks passed, symptoms were not completely gone. I can't be specific on if they were better or not, because it was 5 years ago i don't really remember - but it most definitely wasn't as bad as it is today. The nutritionist/dietician (can't remember) told me that because my symptoms weren't gone in 6 weeks, it wasn't a food intolerance. Great. So i gave up. i figured if i was going to get sick no matter what i ate, i'd eat whatever i want. Years pass and about two years ago i had a sudden urge to have another go at finding a definitive answer. My GP thought it'd be a good idea to put me on some cortisol steroids or soemthing to boost my metabolism... i don't remember feeling too bad while i was taking them. Then he referred me to an endocrinologist who couldn't really help me as all my hormones were normal, apparently. Gave up again. In the last year or so (especially in the last 6 months) the symptoms have gotten worse, but i'd say they've been getting progressively worse since it started - just very slowly. Adding new symptoms to the list that have appeared over the past year or so: sometimes when i eat i get an incredible pain around my stomach and ribs - if i get it, it's always straight after a meal. Lying down doesn't really help, but it only ever lasts about half an hour, after i've passed enough gas, it disappears. Sometimes it only lasts 20 minutes even. But the pain is pretty bad. Also to add to the list - diarrhoea and constipation - although i should make a point about this. Over the past 2 or 3 weeks i've eliminated all lactose from my diet - and i haven't had any diarrhoea or constipation YET - although, i'd only ever get it about once a month anyway - could never find a trigger for it. It would always fall into the - i'd have a big meal, 15 minutes later (even sometimes before i'd finished eating) the stomach cramps of diarrhoea would set in - it'd last about an hour, then go away completely. Afterwards, though, i'd be constipated. Not badly though, as a couple of glasses of strawberry juice the next day would sort me out. Back to normal ready for THAT cycle all over again. The biggest thing i've noticed, though, is that my bowels seem to be involved with the reactions a lot more now. Prettty much after every meal within half an hour i have to make a bowel movement - and it's very uncomfortable before hand. There is a HUGE urgency to go, but it also gives me a quesy feeling in my stomach - not nausea just a very uncomfortable feeling - add the that the uncomfortable pressure on my stomach, the bloating and the feeling like all my stomach contents are going to come out of my mouth without actually vomiting or having any nausea - then you ahve some idea of how i feel every day, pretty much constantly. Not to mention the very frequently gurgling of my abdomen! Seems like i don't have many other symptoms that a lot of people relate to gluten intoelrance. I don't really get joint pain mcuh - but definitely sometimes i feel like i could fall asleep after a meal. Not always but definitely sometimes. Nobody else in my family has it,though.... the only odd thing is that my mum can't drink full cream milk or she gets diarrhoea... which is probably some form of mild lactose intolerance because she can drink light milk - i don't know. For anyone who read the whole thing - THANK YOU AND I'M SORRY that it was such a rant - but it's been a constant struggle for nearly 6 years now and i don't know what to do. Anyone have any advice? COULD it actually be a food intolerance or am i battling the wrong thing? It just seems like too many coincidences... especially with mum's inability to drink full cream milk and that one of my uncles has digestive problems that's never been diagnosed... add to that the uncle with down syndrome (which i've heard is closely related?) and you've got a pretty big puzzle of coincidences there. *edit* just realised, something happened tonight even. My best friend (the one whose whole family are celiacs/gluten intolerant) told me that the eczema on the outsides of my arms (where my triceps are) and on my elbows could be because of gluten intolerance? It just seems like everything is pointing in that direction....