• Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

Npealer

Advanced Members
  • Content count

    14
  • Joined

  • Last visited

Community Reputation

1 Neutral

About Npealer

  • Rank
    New Community Member

Profile Information

  • Gender
    Female
  1. Last week was the 2 year anniversary for me being diagnosed with celiac disease. Overall I feel 100% better than I did two years ago. Like most of you I have a few vitamin deficiencies to deal with. So here I am still dealing with other issues. For the last year and a half I've gained 15lbs (i know this can be related to celiac disease) Extreme tiredness for the last 4-5 weeks, I have had issues with my hair and skin being dry, Brittle nails. I get 8-9 hours of sleep a night and yet still tired daily to the extreme. Tired of being tired. I have been tested for my thryroid but it's been a year or more since the last test. I have emailed my doctor about following up with her. So for all you who have been gluten-free for awhile does this seem par for the course? Knowing my luck my Doc will tell me it's all still related to my celiac disease but not much more I can do at home to be gluten-free at this point. Have any of you had normal thyroid test and then within a year that changed? TIA for any info you may have.
  2. Did You Have Hair Loss From Celiac?

    I had a problem as well, my Dr tested me for a bunch of things and for me I had a Folic Acid Defiency. Since I started taking Folic acid daily it has improved and the excessive hair loss has stopped.
  3. I have been gluten-free since Feb 2011 but in the last few months I have been getting frequent heart burn, even while eating things that aren't typical culprits. Has anyone else had frequent Heart Burn after going gluten-free or is this just me getting old LOL?
  4. I second Ancient Harvest Quinoa pasta. By far the best tasting. I buy 10lbs at a time. They are in FB if you want to get more info from them.
  5. Celiac And Hair Loss?

    I had this problem after I was diagnosed. I went to my doctor and she tested me for multiple vitamin defiencies. I have always been borderline anemic. My test came back and I was definetely lacking in many vitamins as well as Folic Acid. Once I started taking a multi-vitamin and folic acid everyday my hair stopped falling out. I highly suggest you talk to your doc and get tested to see where you might need to add certain supplements to your diet.
  6. Thanks everyone for your responses. I went in to see my doc today and she is retesting my thryroid (had it done in Feb 2011 with normal results) She is also testing for other vitamin difiencies. I have always been borderline anemic my whole life so I am sure that may have something to do with it. Now it is a wait and see. I ended up walking out of my pharmacy $80 poorer this morning LOL
  7. Hi All, I hope someone can point me in the right direction or has had some similar symptoms. I was diagnosed with Celiac Disease in Feb 2011 and I have been on a gluten-free diet ever since. I am still having problems and I am not really sure if they are all related to my celiac disease or maybe something more. In the past 6 months I have had to consistently deal with Insomnia, headaches, dry skin, hair loss, muscle aches, occasional numbness in my fingers, shortness of breath and slight weight gain (5lbs) <-- I know not much but still, dry eyes, and wierdly enough it seems like my skin is thinning. I feel like the smallest thing will leave me scratch that takes forever to heal (like an older person). I'm only 33 yo and I am tired of feeling like crap even afer be gluten-free. Anybody go thru something similar? I have an email out to my doc to see about all these symptoms I have been experiencing. She diagnosed my celiac disease relatively quickly so I can only hope she will continue to be agressive in treating me. Thanks in advance
  8. Just Diagnosed

    Hi Pat, I just found out 2 weeks ago that I had Celiac's. I actually found a lot of answers to my questions here I saw a nutritionist last week and she didn't really have anything to tell me that I hadn't already learned from here. I'm still doing plenty of learning about celiac disease but anytime I am not sure about something I have found answers on here. Hang in there
  9. Thanks Ada! I feel like I have learned a ton in this last week but have miles to go. I am sure I will be asking a lot more questions in the weeks to come
  10. YES! this is what I experienced for the most part before I was diagnosed last week. I didn't have the typical stomach issues I had fatigue, brain fog, bone/joint pain that radiated my whole left arm, neuropathy, insomnia. My Doctor ran test for everything under the sun and Celiac's is what came back positive. So I feel your pain literally. I have been gluten-free for 6 days and have noticed a small improvement but still have a long way to go.
  11. I hope that you can find something when you go out. I just was diagnosed last week and went out with a friend today for lunch, thought I had ordered something safe but now I am not sure The best advice I keep seeing is don't be afraid to ask. Goodluck!
  12. Hey Strawberry we were diagnosed the same day So I am in the same boat as you for the moment on trying to get my life as gluten-free as possible. I just wanted to wish you luck and to let you know someone else is starting from scratch just like you on this new gluten-free lifestyle.
  13. Hi everyone, I am newly diagnosed with Celiac's (as in the last week) and I am curious how many other's have stories like mine. I have never been someone who had a lot of allergies, stomach issues or anything else of the sort. I really thought that I was going to be diagnosed with RA or Fibromyaglia. For the last couple months I had more of the brain fog, fatigue, insomnia, bone and joint pain as well as neuropathy in my hand and arm. My doc ran a blood panel on me that just about tested for everything under the sun, I even had an MRI done hours before my official diagnosis came in. After reading some of your stories how you had years without any real help or correct diagnosis I feel lucky that I was diagnosed rather quickly. Of course it is not what I thought it would be and as soon as I learned what was wrong I went home and started reading labels. I meet with a nutritionist tomorrow and I am taking my husband with me so he can understand exactly what my diet restrictions are. So I was just wondering how many of you had more of the symptoms I had VS the stomach issues more commonly associated with celiac disease? I have been very strict with my diet this last week and I already am starting to feel much better. I finally got rid of the headache that had been plaguing me and I already feel like my sleep is starting to return to normal. My next challenge will be to navigate my diet thru a weekend in Vegas.
  14. Las Vegas Experience

    I am so happy I found this post!! i just found out that I have Celiac's last week and we are headed to Vegas on Saturday. I've been worried that I would have a hard time finding things to eat but you just helped me so much. Thank you and Congrats on your marriage