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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes


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About Mothering3

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  1. The cauliflower comes out impressively grain-like!
  2. Blend cauliflower in your food processor until it is the size of a grain. This is your couscous. Boil in salted water for about 2 minutes, until tender but not mushy. Drain and rinse with cool water. Add a few T olive oil, 1/2 cucumber chopped finely, 1 can of chick peas, 1/2 carmelized onion, 1/2 cup toasted pine nuts, 1/8 cup toasted sesame seeds, 1/4 cup soaked dried currants, finely chopped chives, cilantro, mint, and parsley, juice of one lemon, salt to taste, red pepper flakes.
  3. Tomorrow (EARLY) I see my gastro/internist/hepatologist guy. I am already diagnosed through blood test through my MD. What questions should I ask him? What tests should I request (if any)? I have had impaired liver function. Now I have been gluten-free for 3 weeks. I think I am going to decline the biopsy/endoscopy as I am not comfortable with bringing gluten back into my diet.
  4. I can't eat egg, or most grains right now. I'm going bonkers from eating the same thing over and over. Also its hard to have to make every meal from scratch. Tonight I tried making these salmon burgers that turned out pretty good. Also, I really can't afford to eat much salmon any more, so I try to figure out ways to use the canned stuff cause its so much cheaper and still good for you. (Though admittedly not as fabulously delicious as the fresh stuff, still totally good when used well) 2 cans of canned wild caught salmon, drained 1 cup brown rice (or your choice of another grain that doesn't make you sick) chopped green onions chopped onions fresh herbs (I didn't have any, but if I did, I would have added them) seasoning Blend all ingredients in the food processor. Make patties and fry in a little coconut or olive oil till crisp. My kids ate them on Udi's gluten-free bread with mayo and tomato. I ate them with a fork, with tahini dressing and avocado. You can freeze these and have quickie dinner.
  5. My favorite veggie sides are: *Roasted brussel sprouts...use a lot of oil and let them roast till the edges get slightly crispy. Season with your favorite seasoning. *Asparagus...with some olive oil, salt, and fresh herbs wrapped in parchment paper packages with the edges twisted shut. Bake at 300 for a loooong time (1-2 hours?) and they are so flavorful. *Sunchokes (Jerusalem artichokes) are really good either as chips, sliced thin and fried in oil till slightly crisp and seasoned with salt and rosemary, or steamed and mashed with potatoes and carrots. They are super nutritious. *Greens (kale, collards, mustard) cooked in a little bacon grease, and add a little water to the skillet to cook the greens thoroughly. Serve with chopped bacon, a little brown sugar and sprinkle of apple cider vinegar (This got my kids so into eating greens...they always yell "More kale please!"). *Any veggies I have, stir-fried. Simple and always good. I use some gluten-free soy sauce or fish sauce and some garlic. *Steamed or boiled beets, cold with chopped onion and cucumber, a dressing of sour cream or plain yogurt, apple cider vinegar, a little honey, salt, and dill. *Roasted fennel bulbs. They really don't need anything fancy, imo. They are good just plain. But when I'm tired, I just stir-fry. Or make the greens minus the bacon.
  6. I am on an pretty limited diet right now, so I guess boredom drove me to create this yummy breakfast. Sorry, I'm not sure the measurements so you'll have to experiment. Cook amaranth, one finely grated carrot, and 1 t ginger in coconut milk. Serve hot with a dollop of coconut cream on top. No sweetener necessary, though I admit I might have added a little honey if I was allowed to have it. Also, I was going to serve with sliced mango on top but my mango had past its prime. Enjoy.
  7. Hepatologist- Portland, Or

    Ooh. I just found out that hepatology is actually a specialty area for internists, and the GI I am seeing that was recommended by others here, Dr. Alan Kaynard, specializes in hepatology. Hooray! Two specialists in one. Now I just have one to go.
  8. Oh yeah, I wasn't intending to stop the aspirin without talking to a doctor. I was just thinking one reason to see a neurologist is that if we could find a connection, it might make sense to stop the aspirin. Wouldn't mind having one less pill to take!
  9. What Does Everyone Eat For Breakfast?

    Me? I like to eat at her house.
  10. Yeah, I should add I have 3 kids as well: 10, 5, and 2. All my pregnancies were healthy, and I had really beautiful, natural births without complication, and breastfed all my babies too. Maybe I would have been even healthier if I was gluten-free back then, but in any case, it was a great experience. I would even think about doing it again if my husband hadn't put his foot down! lol
  11. Its true that pregnancy puts stress on certain systems of the body. However, it is also 'what our bodies are designed for'. (I put quotes, because I don't intend to imply that everyone is "meant" to get pregnant and have kids...I believe we are "meant" to live diverse lives.) So really it is a stress that could be compared to the stress of rigorous excercise. Yes rigorous exercise can stress systems of our body. Like pregnancy, it can even cause injury or illness. But also *not* using our bodies that way, when they were designed for such activities also takes its toll in certain ways. There are health benefits to pregnancy, and for some people who have autoimmune diseases, their disease goes into remission during pregnancy and breastfeeding. (There are also people who have their disease triggered...) So I would definitely not rule pregnancy out. Also, I have to say that in my own experience, having babies was such an incredibly cool experience in terms of trusting my own body and seeing what it is capable of. I think this could be an even more awesome experience if you have struggled with health challenges. (I had babies before I developed health problems.) In any case, the choice to have children should be based on whether you really want to raise children. If you do, then even your physiology needn't stop you. If you can't become pregnant, you can make your family in a different way (adoption, etc.) and I would encourage you to. If its what you really desire, don't limit yourself. And if its not really what you desire, or if you desire it only for more trivial reasons like your ego thinks it would be good to pass on your lineage or whatever...meh. Forget it. Its so much work, and anyone can have a rich life and enjoy kids without having their own. Best wishes in your discernment.
  12. Hepatologist- Portland, Or

    I expect I will be having regular follow-ups with my doctor regarding all of this. She did discuss with me the option of seeing various specialists, including a hepatologist. She said she would refer if I wanted, but she did not know of one to recommend. She did not feel strongly that I needed to see one, but neither is she against it. She talked about the importance of choosing specialists who do understand celiac and support my choices for holistic health care.
  13. Hepatologist- Portland, Or

    I expect I will be having regular follow-ups with my doctor regarding all of this. She did discuss with me the option of seeing various specialists, including a hepatologist. She said she would refer if I wanted, but she did not know of one to recommend. She did not feel strongly that I needed to see one, but neither is she against it. She talked about the importance of choosing specialists who do understand celiac and support my choices for holistic health care.
  14. I did have those tests done at the time of both of my TIAs and have not had any neuro symptoms since then. They did not find anything. I think they would have seen lesions if that's what was causing the activity, but I don't know. My understanding is that it is common for TIAs to not show up on a brain scan, though sometimes they do. But what defines it as a TIA as opposed to a stroke is that there is no brain damage. If there is brain damage, even slightly, it is considered a stroke. I guess sometimes there are some other signs on the scan that some activity has happened, but oftentimes there is not. Also, since I went straight to the hospital at the onset of symptoms, they could also potentially see a migraine on the scan, but did not. Migraine has not been ruled out. Migraines are typically: accompanied by a headache or visual disturbances, last an hour or more in length, come on gradually, if numbness is involved it is typically bilateral numbness. TIAs typically: come on suddenly, no headache or visual disturbances, last 1 minute-1/2 hour. come on suddenly, if numbness is involved it is typically unilateral. My episodes fit all of the criteria for TIA and none for migraine. (Also involved aphasia, common TIA symptom). But it is definitely possible to have a migraine aura with no headache that seems like a TIA, it just seems less likely than a TIA to me given my symptoms.