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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.


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About Mago

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  1. I had an awesome cooking week this week, so I have to post! I made pulled pork from scratch in the crock pot and have been eating it for 3 days straight! On the weekend, I made sushi from scratch (using some fake lobster I found to replace fake crab... the only ingredients difference being the lack of added wheat starch ), then on Monday, I used the leftover lobster and shrimp to make a seafood pasta white sauce.
  2. For me, its been almost exactly a year since going gluten-free. The first 6 months were the worst. I kept on getting glutened from eating out in the past year, which made me feel like I was starting fresh on the diet each time that happened. Right now, I am eating out as little as possible (which I know is hard for some people), and trying to eat mostly fresh, homemade foods (which I know is also hard), but I finally feel truely better (it only took a full year!). I suggest always carrying "emergency" gluten-free foods on you, to make you resist the temptation of letting your guard down. At work, we have meetings where everyone brings home-baked cookies and stuff. When its not my turn to bake, I bring a chocolate bar for myself so that my coworkers don't feel like I'm being excluded. If you're eating out, I suggest go to places that have gluten-free menus, or seem to know what's good for the diet. Chances are, if they don't understand gluten, you'll likely get sick. I hope you start to improve soon! Sometimes it takes a while to find what works for you.
  3. I've been less vigilant on my diet the past 2-3 months and I've definately been in the same boat. The amount of over-sleeping I do seems to relate to how much gluten I ingest. Right before my diagnosis, I ate a handfull of crackers, and I was so tired I couldn't get out of bed for 2 days! Now I'm in the same boat again for not checking ingredients. I usually drink lots of liquids, eat soups, fruits, and easy-to-digest foods (though I crave everything but when I get glutened), and just sleep it out. It sucks when no amount of anything will keep you awake... I hope you get better!
  4. I'm in pretty much the same boat... I had blood work done 2 or 3 months ago (iron, thyroid, and 2 types of antibody tests - no idea which ones), and it all came back negative so I was told I was not celiac but might be allergic to gluten. I couldn't even swallow bread/crackers/etc. without heartburn/nausea and so I went gluten free anyways. Turns out one of my parents was just diagnosed with celiac (asymptomatic), so I assume that's what I have. I don't think I'll ever be able to eat enough to get re-tested, though. I hope you and your son are able to figure out what's causing your reactions!
  5. Oh wow, thanks ecf. Its pretty reassuring to know where these symptoms might come from. I got the impression from my doctor that if wasn't celiac disease then I have nothing that they could help me with/was medically recognized. Luckily I haven't had too many cc problems so far.
  6. Shauna, thanks for your post, it really helps a lot! I guess only time will tell to see if I have to go the de-contamination route.
  7. I've only been gluten-free for 2 months, and I'm really trying to guage my sensitivity. My bloodwork came back negative, and I was told by my doctor that I'm not celiac, and that the gluten-free diet is working fine so assume I'm just intolerant. On Tuesday, I took my boyfriend out to dinner for his birthday, and my "gluten-free"-salad came with croutons on it. I got the waiter to take it back to the kitchen, but they might've only picked off the croutons. I had acute abdomen pain 20 min. later and have been extremely nauseous/bloated/backed up for the past 5 days from what seems to be only cross-contamination. I also have noticed that my "oat essence" hand cream is causing me problems when I touch my face at all. Basically, I'm getting more questions than answers from all this. Firstly, is it possible to be extremely gluten sensitive and either not celiac or have a negative diagnosis? (I was tested for IgA, possibly IgG, iron and something thyroid-related) Secondly, when you're talking about the ppm's/high sensitivity, would simple cross-contamination be a very high dose for extremely sensitive? Finally, is it normal for the symptom length to vary based on level of exposure? This is my first post, so I hope I'm putting it in an appropriate discussion.