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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

Mago

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  1. I had an awesome cooking week this week, so I have to post! I made pulled pork from scratch in the crock pot and have been eating it for 3 days straight! On the weekend, I made sushi from scratch (using some fake lobster I found to replace fake crab... the only ingredients difference being the lack of added wheat starch ), then on Monday, I used the leftover lobster and shrimp to make a seafood pasta white sauce.
  2. For me, its been almost exactly a year since going gluten-free. The first 6 months were the worst. I kept on getting glutened from eating out in the past year, which made me feel like I was starting fresh on the diet each time that happened. Right now, I am eating out as little as possible (which I know is hard for some people), and trying to eat mostly fresh, homemade foods (which I know is also hard), but I finally feel truely better (it only took a full year!). I suggest always carrying "emergency" gluten-free foods on you, to make you resist the temptation of letting your guard down. At work, we have meetings where everyone brings home-baked cookies and stuff. When its not my turn to bake, I bring a chocolate bar for myself so that my coworkers don't feel like I'm being excluded. If you're eating out, I suggest go to places that have gluten-free menus, or seem to know what's good for the diet. Chances are, if they don't understand gluten, you'll likely get sick. I hope you start to improve soon! Sometimes it takes a while to find what works for you.
  3. Can't... Stop... Sleeping...

    I've been less vigilant on my diet the past 2-3 months and I've definately been in the same boat. The amount of over-sleeping I do seems to relate to how much gluten I ingest. Right before my diagnosis, I ate a handfull of crackers, and I was so tired I couldn't get out of bed for 2 days! Now I'm in the same boat again for not checking ingredients. I usually drink lots of liquids, eat soups, fruits, and easy-to-digest foods (though I crave everything but when I get glutened), and just sleep it out. It sucks when no amount of anything will keep you awake... I hope you get better!
  4. I'm in pretty much the same boat... I had blood work done 2 or 3 months ago (iron, thyroid, and 2 types of antibody tests - no idea which ones), and it all came back negative so I was told I was not celiac but might be allergic to gluten. I couldn't even swallow bread/crackers/etc. without heartburn/nausea and so I went gluten free anyways. Turns out one of my parents was just diagnosed with celiac (asymptomatic), so I assume that's what I have. I don't think I'll ever be able to eat enough to get re-tested, though. I hope you and your son are able to figure out what's causing your reactions!
  5. Oh wow, thanks ecf. Its pretty reassuring to know where these symptoms might come from. I got the impression from my doctor that if wasn't celiac disease then I have nothing that they could help me with/was medically recognized. Luckily I haven't had too many cc problems so far.
  6. Shauna, thanks for your post, it really helps a lot! I guess only time will tell to see if I have to go the de-contamination route.
  7. I've only been gluten-free for 2 months, and I'm really trying to guage my sensitivity. My bloodwork came back negative, and I was told by my doctor that I'm not celiac, and that the gluten-free diet is working fine so assume I'm just intolerant. On Tuesday, I took my boyfriend out to dinner for his birthday, and my "gluten-free"-salad came with croutons on it. I got the waiter to take it back to the kitchen, but they might've only picked off the croutons. I had acute abdomen pain 20 min. later and have been extremely nauseous/bloated/backed up for the past 5 days from what seems to be only cross-contamination. I also have noticed that my "oat essence" hand cream is causing me problems when I touch my face at all. Basically, I'm getting more questions than answers from all this. Firstly, is it possible to be extremely gluten sensitive and either not celiac or have a negative diagnosis? (I was tested for IgA, possibly IgG, iron and something thyroid-related) Secondly, when you're talking about the ppm's/high sensitivity, would simple cross-contamination be a very high dose for extremely sensitive? Finally, is it normal for the symptom length to vary based on level of exposure? This is my first post, so I hope I'm putting it in an appropriate discussion.