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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes


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  1. Gluten Withdrawl

    Ok. That poster was me. I should have led with "I'm totally new to this whole gluten free thing. So I may not be the most experienced, but for me..." it has helped me to not feel so fatigued. Perhaps dairy is not the best thing for you. I don't feel like I am having an issue with dairy, but maybe that's because I don't think I could handle giving up another food right now. Maybe I'm just mentally blocked to the possibility that dairy could be a problem. Definitely do more research.
  2. What Am I Doing Wrong?

    It most definitely could be the diet coke. I have been addicted to diet coke for years. I get headaches any time I have tried to quit. I got headaches when switching from caffeinated diet coke to caffeine free diet coke. So you would think it was the caffeine. But I also get headaches when I stop drinking caffeine free diet coke. Which leads me to believe its the aspartame. I think it helps to slowly wean yourself off diet coke. gradually down to 1 a day, then 1/2 a day, then none. It helped me to increase my intake of fruits. I found the more fruit I ate the less craving I had for diet coke. I had been diet coke free for several months when I found out I have celiac. And feeling sorry for myself and everything I have to give up, I started drinking it again. diet coke is bad news on so many levels, caffeine, aspartame. The fact that when you drink it you tend to eat more. and you tend to eat more junk food. Which leads to weight gain etc. So now I need to quit it all over again. but I find myself drinking one in the morning when I start to feel the headache coming on, almost like medicine. It is definitely an addiction. I think your migraines may go away once you go through the withdrawal processes. But it may take a couple of weeks if you've gone cold turkey.
  3. Newly diagnosed, and gluten free for about two weeks. I hadn't expected this, but I have suddenly been super sensitive to the salt in foods I have been eating. Am I crazy? Has anyone experienced this? Practically everything I have eaten in the last few days seems to be too salty. It weird because I have always loved salt. Why am I soo sensitive now?
  4. Gluten Withdrawl

    It may be possible to experience gluten withdrawal, but I agree that it is also likely that you are eating less carbs and even protein. I find when I am feeling really fatigued, if I had a little protein and carb together I feel better in a very short period of time. Usually a little laughing cow wedge on a gluten free crackers (both sold at Sam's) does the trick. I would take a look at what you are currently eating and try to make sure that you are getting the correct balance of carbs and protein. Good luck, I hope you find the right balance and start feeling better soon.
  5. After recently being diagnosed with Celiac, I find myself trying to see the positive in all this. I don't think it does anyone any good to keep dwelling on the negative (foods we can't have, things we can't do). For me... Over the years, I've been trying to find something to make me (force me, really) to eat healthier and cook more at home (we eat out way too much). I've always been an on again off again yo-yo dieter. I think this diagnosis may just be what I need to overhaul my whole diet. And I've already noticed a willingness to try new and unusual things. What has been your positive? other than the obvious reduction in symptoms, of course.
  6. The more I ask, the more I learn. Thanks so much for all the information. Each time I find out more information I have more questions. Sadly, my teenage son (the one diagnosed with ADHD and has had problems in school) wants desperately to go into the military. He does not want to go to college and I honestly don't know if college is the place for him. He has been talking about the military for almost a year and is very determined. Maybe the best thing to do would be to test some of the other kids. If I had one or more kids test positive, I would just put everyone on the diet. They pack their lunches anyway, so the school wouldn't be too much of a problem. I agree that the way to go is to buy 'normal' gluten free foods. My plan has always been to change the way I eat, rather that substitute gluten free versions of items I love. They aren't the same anyway and are expensive (too expensive for a family of 7). I've been eating a lot of rice lately. I hope to broaden my options soon. It is just soo much to learn in the beginning. I have been trying to get my sister and parents to get tested. My mom asked her doctor and he told her at her age he wouldn't bother if she didn't have symptoms. She is 65. I hope that they get my dad tested as he has other issues (paralyzed from waist down). I'm convinced my sister has it. She has had anxiety problems and many other symptoms that are consistent with celiac. But she just lost her job and has no insurance. She is sort of trying a gluten free diet, but without a diagnosis I don't think she will be as strict with it.
  7. So is it best to have the genetic test done, and then blood work if it shows they possibly have the celiac gene? You bring up another point. Can an insurance company deny someone for celiac?
  8. Well I'm new and have only been eating gluten free for a few weeks, but from what I've read here and in books, if it tasted good enough to eat the whole basket, it wasn't gluten free. I imagine if it was truly gluten free, it would not have been soo tasty. However, perhaps when you have been gluten free for a period of time your tastes change and you forget was yummy bread tastes like. At least I hope so.
  9. From what I understand.... You must be completely gluten free - no cheating or your intestine will be damaged. But... To have a biopsy come back positive - you must do a gluten challenge or you might not have damage and the test will be negative. I opted to have the biopsy so that I would know how serious I needed to take this whole thing. The biopsy came back positive (as was the blood test). But I find myself still questioning how grave it will be to eat an occasional morsel of gluten filled bread, or pizza crust, or even the occasional accidental cross contamination. (Pizza will be the hardest to get over.) It seems that the consensus regarding 'cheating' or having a 'little bit' of gluten is that you can't do it. That you have to be completely gluten free. Not even a crumb. Which I have no problem with, but how is it, then, that it only takes a little bit of gluten to cause damage, but if you have been gluten free and want the endoscopy/biopsy you must eat gluten for months to have damage enough to test positive. I understand, to a certain extent, that you can have damage in one part of the intestine but not another and, therefor, it is possible to have damage that goes undetected, but these two statements still seem to contradict on another. Will an occasional cc really do that much damage? or is it just uncomfortable?
  10. So here is some background. April 5th visit with a new doctor. Told her of my lifelong issues with stomach aches and relatively new symptoms of constipation and bloating. She ran blood work which included celiac panel. I got a call the very next day and was told to start a gluten free diet and to do some research. So I did. After just a little research it became apparent that a biopsy is usually done to confirm. And to be honest I really just wanted to know how serious to take this whole thing. So I called the doctors office back to get a referral. My Dr. was out on vacation, but another Dr. sent me to a GI and for a bone scan (which I also requested). The GI doctor did additional blood work that I requested (based on much of the advise I have read on this forum), all numbers were within normal range. No deficiencies. Bone scan was normal as well. The GI also set up an appointment for an endoscopy. So after just two weeks gluten free, I began eating gluten again until the test, which I had last Tuesday. I just got the call that it was positive for Celiac. I have to say, I am relieved in some way. It is nice to have a definitive answer. Not that I am happy with the diagnosis. I at least have had a chance for it to sink in. I really think that going gluten free for two weeks, then eating gluten for 2 1/2 weeks, helped me realize how much better I fell off gluten anyway. As soon as I had the endoscopy I returned to gluten free. This time much less sad and angry about the whole thing. I was eager to give it another try with a whole new outlook and perspective. I'm glad that I didn't have to do a gluten challenge for long. 2 1/2 weeks was plenty! Now, the question is whether or not to test the kids. I've heard pros and cons for both here on this website. My tendency is to have them tested. While none are having digestive symptoms per se, some could be have other symptoms. I have one son who was 'diagnosed' with ADHD. We tried several medicines, but have since taken him off them, they all had side affects I wasn't willing to put him through. He is doing poorly both behaviorally and academically. He is 15. I have another son (11) who seems depressed and I cant figure out what is wrong. He also is having an issue with acne (which seems young at 11) so I'm wondering if it is just early puberty. Or could it be celiac? The other kids don't really seem to have any real issues, but you never know what could happen off gluten. I know if I do test the kids and any of them test positive, it will be a huge battle. I would almost have to make the entire house gluten free. In some ways that could be easier. Does any one have any suggestions regarding testing the kids, making the entire house gluten free etc. Or just ways to cope in the beginning, in general? My hardest thing is eating out. I know it makes more sense to cook at home. But I just hate to cook, and we have always eaten out about half the time. Any suggestions?
  11. How old are your kids? I cook for seven too (when I cook, that is). I usually figure 2 lbs of meat, at least a dozen eggs and a loaf a bread for toast (of course that was before going gluten free). I was recently diagnosed and I am having the most difficult time trying to figure out what to cook for everyone (with just me doing gluten free).
  12. Yes constipation is definitely a symptom. My symptoms were constipation, gas and bloating. Oh and excruciating stomach aches every so often. My blood tests recently came back positive for Celiac. I just had a biopsy (to confirm and check the extent of damage) on Tuesday but the results are back yet.
  13. I'm not sure how long you've been gluten free, but if you think you need an endoscopy you may want to start eating gluten right away. I also recommend that you ask for the doctor's office send you a copy of the results of any test you have had done or have done in the future. It always helps to have a copy for your records and to research the results. It's just good to be as informed as possible. Good luck with your search for a diagnosis.
  14. Vitiligo

    First let me say, that I am totally new to all this. But I also have questions regarding vitiligo. However I don't have it. I was recently told that I have celiac (due to a positive blood test) although I have an endoscopy scheduled for tuesday to confirm. I'm really starting to think my parents have it. I'd like them to get tested. My mom has had vitiligo since at least her teens. She has it all over her body and face and it has always bothered her. Her hair also started turning gray early. I would definitely mention it to the doctor, but you may find they dismiss it. In my experience (which again is not much) the doctors only paid attention to the digestion problem I told them about.
  15. I think a bloated/distended belly definitely can be a symptom. I was off gluten for two weeks after a positive blood test and my belly flattened. I've been back on gluten for 1 week due to (hopefully) an upcoming biopsy (I have a GI consultation this wednesday). I am once again bloated and miserable. I look pregnant. I have also read that nosebleeds can be a symptom.