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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes


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About Brrrandy

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  1. It seems that I have a pretty consistant reaction to gluten overall, but it's always amazed me how much the severity can vary. Have you ever noticed that the form that gluten changes the way you react? Even if they are both essentially flour? For example, there have been times when I've ingested what I know was a very tiny amount of gluten yet reacted very severely-- like when a friend served soup several years ago and included a teaspoon of flour, or when I had sushi with a tiny amount of sauce that contained a tiny amount of soy sauce. Yet there are other times when I've had what would seem to be larger amounts of gluten, and haven't reacted to them almost at all-- like last year, when in a moment of weakness I ordered a breakfast sandwich, took two bites and immediately came to my senses and threw it away. It kind of seems like when it's in liquid it is way worse. But maybe I am just looking for patterns here. Curious to know if anyone else has noticed different types of reactions?
  2. When I accidentally eat gluten, I often get a bit of a rash along with my GI symptoms. It is usually my first sign that I accidentally ate something. Mine always show up as little pink dots on my chest, but sometimes elsewhere as well depending how bad it is. It can sometimes be very mildly itchy, but nothing like people normally describe. Just little pink spots. Which makes me think it's not DH. But it definitely seems to be gluten related. Then again, I haven't had a huge amount of gluten since I figured out my problem-- so maybe if I had more it would turn into full-blown DH? I've always been curious. But not curious enough to try it!!
  3. Thanks guys. I am going to explore my options for visiting a doctor and I'll keep you updated!
  4. Thanks for the input... if it was appendicitis wouldn't it be more sudden then gradual over the course of a month, with no fever?
  5. I was glutened over a month ago, and ever since I have had symptoms that seem to be sticking around. Normally I feel off for a few weeks, but it's been a while now and I'm starting to get worried. I have had stomach pain that varies in its intensity in a very specific spot on the low right of my abdomen, GI upset, feeling really exhausted. It is almost always there though... either a mild dull pain or a more severe sharp or dull pain. Many other small things but those are the main issues. When I massage the area that is hurting, I can feel almost like a lump or blockage that goes away after I massage it. I've read some things about the ileocecal valve, could I just be experiencing problems with that? I don't have health insurance right now, so I don't want to waste a trip to the doctor to be told nothing. At the same time, the stomach pain is worrying me. Is this just normal for some of you after being glutened, something that will get better on it's own eventually? Is there something I could be doing to help myself recover faster? Or should I be trying to find a way to get to a doctor?
  6. I was glutened as a restaurant last week (after asking TWICE about something that was on my plate... should have listened to my instincts), and of course I've been going through all the usual things (nausea, dread of eating, stomach pains, aches, tiredness, etc). My tendency is to ignore that I feel bad and keep doing exactly what I always do, and (surprise) I usually still feel terrible weeks later. I'm sure there are things I could do to help myself recover faster, so I'm trying to incorporate other tactics other than 1) Immediately throw up, 2) have my boyfriend cuddle me. I know this topic comes up on the forum at different times, but I'd really like to compile an arsenal of things to try until I feel better. What's your "glutened" routine, starting from the moment you know and ending when you feel better?
  7. My Top 5 List

    Thanks for your reply, Rosetapper. Metagenics to the rescue! My doctor actually put me on UltraMeal before I pin pointed the gluten issue. I wonder if I should try UltraClear or UltraClear Sustain? They're more specialized for GI issues, right?
  8. Interesting. Has anyone else familiar with the idea that viruses can trigger Celiac, or why? Thanks guys!
  9. My Top 5 List

    I'm in year one of being off gluten, and I thought I'd list out the top 5 most helpful things to me during this time. For many of us, getting off gluten is just the beginning of the journey. There can be many corresponding health problems or lingering deficiencies that tag along for a while. These are the things (besides just not eating gluten) that have helped me cope and recover. Feel free to post your top 5 (or 10!) and share your knowledge and experience. Anxiety- Running, and a good pair of running shoes. I know, I know. I'm a bit dim-witted if I think anything I say will convince anyone who's not running to run. But seriously, I started to get that weird excess energy feeling, and felt like I needed to take off running, so one day I did, and it's only gotten better since. Major symptoms- Elimination diet and a corresponding recipe book Look it up and do it. Enough said! A good recipe book helps a lot when you're clueless. Recovering nutritionally- Metagenics Ultra Meal Rice, Fish Oil, Probiotics, enzymes, and Vitamin D My nutritionist/acupuncturist/chiropractor put me on this stuff a little while after the elimination diet. It's an expensive regimen. The Ultrameal alone is $35 and lasts just short of a month if you use it every day, but even when I can barely afford rent, I buy this. That's how much I love it. I truly feel this is one of the top things I do for my health, and it actually tastes awesome too. The other supplements are the cherry on top, but in the beginning, they were crucial. I'm not big on supplements, but I can't deny the effect of high quality goods. I credit them with my 180 degree turn around in less than a month. Migraines- Acupuncture I'm pretty sure it was the acupuncture that stopped my migraines. Insight, knowledge and support- The UltraMind Solution by Dr. Mark Hymen Totally dumb name for a book, but for anyone having brain fog, anxiety, depression, or other related mood/mind things, this book is a very interesting and informative read. It completely revolutionized the way I think about health. Lack of support/feeling alone- Crying about it For a while I tried to play things off and be cool, but when I came home to visit my parents after a particularly hard week of having to eat out for business trips, and they offered to take me out to dinner, I broke down and cried. Even though I'd said it, they didn't realize how tough it was for me to swallow fears every time I went out to eat. I spilled my guts about how sick it really made me, and how hard it was for me socially to feel like a princess for being so "picky" after years of gastrointestinal nonchalance. It inspired them to educate themselves and have food ready when I visit. Everything under the sun- my amazing doctor There is something to be said for searching and searching until you find someone to help you. My doctor is a combo acupuncturist/nutritionist/chiropractic neurology specialist. He listens, believes me, and more than anything else, provides results. Don't settle for another doctor who will do nothing. Ok, so I did seven.
  10. In high school I got some strange virus, and around the same time I got dizzy for the first time. In college I got what they called "Mono," and it was the summer after that I had my first major vertigo attack and was diagnosed with Meniere's Disease, which has calmed down (but I still get tinnitus and some fluctuating hearing loss if I drink too much). Then, skip forward, I had many of the usual tell-tale signs of celiac (brain fog, muscle aches, some anxiety, migraines), went off gluten, and felt frickin' amazing. I also consistently have had problems with my neck (lots of cracking, aching, pain near ear). Migraines were fine but have returned after starting birth control. Are any of these connected? Specifically the Meniere's/Virus/Gluten connection? How? Is there some weird superbug that causes autoimmune disorders? Is there a genetic component? Or am I trying to draw intersections between things that are actually just running parallel? I still feel pretty susceptible to viruses of all kinds. Any advice for how to beef up against these? I'd especially like to read some research or articles if anyone's got anything, but anecdotal evidence is more than welcome, for sure.
  11. "tasting" Gluten

    A newspaper summary of the findings can be found here: http://www.examiner.com/science-news-in-birmingham/gluten-degrading-enzyme-found-saliva And the actual journal article is here: http://www.plosone.org/article/info%3Adoi%2F10.1371%2Fjournal.pone.0013264 if anyone is interested
  12. "tasting" Gluten

    I occurred to me after I posted that maybe it has something to do with saliva enzymes breaking down the food, so I looked it up. Apparently researchers at Boston University and Harvard might be one step ahead of me? They've found some enzymes in saliva that seem to break down gluten as you chew. Could what I'm experiencing be the lack of an enzyme to break down a major component in the food, i.e. gluten? Maybe that would create the sensation that the food is just "sitting there" in my mouth-- it's not being broken down by my saliva. It's crazy to think about, but it's definitely the coolest explanation I've encountered
  13. I think I've heard of some OCD symptoms being linked to bacteria in the gut. If your daughter does have a gluten sensitivity, there may be some other things that have come along on the way. It might not be a bad idea to do a more serious cleanse or try to see a doctor who believes in the relationship between stomach issues and psychological issues. "Ultra-Mind Solution" by Mark Hymen is a bit pulp science, but an interesting read for this kind of thing, and might point you in some good directions. Best of luck to your and your daughter.
  14. This is really interesting to me. At the peak of gluten catching up to me, I was beginning to experience some psychological symptoms, brain fog, anxiety, depression-- and part of that was some bad juju mystical thinking. All of it completely went away off gluten. Looking back on it, it seems like a bad dream. I do feel a decrease in that specific kind of thinking, but for me, it's such a relief. Now my spirituality is much more clear-headed, meditation based, and... simple in a joyful way. I knew, during the hardest times, that something was very wrong, and I didn't know what, and I called out for help. And I do still credit the serendipitous way I found my amazing doctor to some force moved by love.
  15. When Do You Speak Up?

    I love this. It's almost a form of non-violent resistance. The gluten sit-in.