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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes


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About Linus

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  1. The half life of the antibodies (iga ttg) is 4 to 5 months. As long as gluten is not present, the antibodies are harmlessly floating around. Don't expect dramtic chanes in 5 months.
  2. Sleep Apnea

    Indirectly this can happen. Inflamation is a reaction to gluten. Air passages can be affected. This is similar to joint pain. Inflamation is the cause there too. Sleep apnea is caused when the airway is blocked because of flesh in the neck bears down on the airway. This stops air flow. UARS is upper airway resistance syndrome. This is the restriction of the sinuses and nasal passages. More likely this is indirectly related to celiac in the inflamation response earlier mentioned. Sleep apnea is most likely a condition of being overweight (much of the sleep apnea population is overweight but not all). It is possible to get in a feedback loop. Sleep apnea makes one tired. Lack of sleep results in lack of activity. Lack of activity results in weight gain. Weigh gain results in a worsening sleep apnea condition. This cycle repeats itself. It can happen the same way with gluten. Gluten triggers a inflamation response. Airways are restricted. Sleep is interrupted. Activity is down, weight increases. Gluten and gliadin can increase appetite. Weight increases and sleeps apnea starts. Cycle repeats. Add in joint pain from inflamation and increased wieght and more activity is lost. Treatment for both is the use of a cpap machine. It is a device that creates positive air pressure in you airways while you sleep. The positive air pressure splints open airways so breathing is not restricted. I have the UARS variety. I am pretty lean but my nasal sinuses are restricted. 3 years of use has dramatically changed my life. Going gluten free has helped with my sinuses too, but I will always need to use the cpap device since my sinus anatomy is restricted. Gluten free obviously changed many other aspects of my life besides sleep issues. Incidentally, an issue that I was having with my cpap lead to the discovery of celiac. I was swallowing air at night. I had a checkup with an endoscopy. Celiac was discovered.
  3. I have had issues with sweetened drinks for 20 years. I could never figure it out. I thought it was HFCs acid etc. diet sodas are fine for me. Fruit juice and sweet wine hurts. Mixed drinks with sweet mixers hurt. I do not know what the issue is either. Now that I am gluten free, I still have the same problem. I guess it is better to avoid such drinks, but it sure is frustrating. I thought I was the only one with this issue.
  4. First off, it may be hard finding gluten free beer in a bar. Stick with moderate distiled drinks. I did try a beer called Off Grid Pale Ale. It is excellent. I love IPA beers. After going gluten free, I missed it. This beer is the replacement for an IPA. Good luck in your searches, remember however to drink in moderation.
  5. Thank you. Your information is helpful and to the point. Much better than the information from Milstone. They can say so much with so little information. It is laughable. Again, many thanks. Just in case, here is the Millstone response: Thank you for contacting The J.M. Smucker Company regarding our Millstone
  6. I am wondering if Millstone flavored coffee contains guten. My wife and I share a coffee maker with separate components (carafe, filter housing and grinder). We have had that arrangement because she does not like my French roAst coffee. I do not like flavored coffees. Occasionally the parts are mixed up. I really would like to know so there is less to worry about. I have contacted the company but no response has arrived yet.
  7. dextrose is fine. It is highly processed and known to not contain gluten. If it is sourced from wheat, by law that would need to be disclosed on the package in the USA. Earlier I posted some information. I just finished a book called Wheat Belly. It is pretty good. You might want to check into it. First howvever I reccomemd a book strictly about Coeliac. It will help with the questions that you have about ingredients.
  8. Don't worry, giving up gluten is not hard. There are lots of alternatives. The fiber you lose from bread is easily gained back with a very small serving of veggies or nuts. There are lots of books now about coeliac that will help. You are lucky to find out. Your life expectancy will benefit. Coeliac is something not to ignore. A year before I was diagnosed, I stopped eating bread, pasta and pizza because I felt something was wrong. Occasionally I ate a sandwich and that was it. My doctor was amazed at my cholesterol and triglyceride levels. They had dropped. I felt better, but just that small amount of gluten was enough to still damage my intestines. My endoscopy and blood tests came back as a strong positive. My diagnosis was accidental. Anyhow, for the first 5 months I ate a lot of gluten free alternatives since it was clear now what was causing symptoms. What I can say about the gluten free alternatives is watch out. For me, my triglyceride levels raised again. This is because the carb consumption was higher than normal, and I was absorbing food better than ever. You might be getter off enjoying a wheat barley and rye free diet that is low in carbs that are starch related. Stick to whole foods with moderate levels of protein. Your carb intake should be from vegetables and fruits if possible. Everyone is different. I am genetically predisposed to higher triglyceride levels. Your situation may be different. Either way do some research and see what you can gain from others here. They are very helpful.
  9. Holiday Party At Work Today

    Bummer. I have started to deal with this issue since I was diagnosed five months ago. The worst thing for me is to be called into an all day meeting and find out lunch is ordered in (sandwiches). I cannot really feel too bad since lunch is provided free. I look at it differently now since I have learned to pack a lunch.
  10. I found out with endoscopy first (did not expect it due to few symptoms) and a follow up blood test. My daughter has it too. I needed a diagnosis officially for any concerns regarding her school. An official diagnosis in my opinion should end at a blood test. One advantage to a diagnosis is a tax write off for the cost differential in gluten free foods. If your medical costs are over the threshold, you can start deducting. It is a lot of work, and not worth it individually. As a family it makes since. Sometimes other family members need proof of the desease (not in the head).
  11. About 5 months ago, I was diagnosed with Ceiac. I had a follow up iga ttg blood test last week. My numbers are slightly lower than half of their original amount. Should I keep testing yearly? What are some other people's experiences here in this area?
  12. Melatonin Rules For Sleep Issues

    Meletonin is not so great during the winter. The short days are enough to tell your brain that it is time to sleep. Meletonin works on the same areas in the brain. Personally I have found that winter use resulted in aa zombie like feeling during the mornings if you get up when it is dark in the morning. It works fine for me in the summer. I stopped using it after starting a daily work out regimine.
  13. My sister, daughter and I were all asymptomatic or symptoms that were pointing to Celiac. Afterwards we all noticed things change that were with us all our lives. Most notably were changes in hunger (less) and absence of joint pain. We also had a lot of other changes (bowel related). I guess for us, we have been living with celiac for so long (most of our lives) that we did not recognize the symptoms. The symptoms we had were considered part of everyday life. Only after removing gluten did we notice changes that made us feel better overall.
  14. Still Angry Sometimes After 2 Years

    I think most doctors are not specialists in our issues. It is ignorance. I knew nothing about celiac until a friend of mine was diagnosed. I was even more surprised when I was diagnosed. My diagnosis was accidental. I went in for a endoscopy for acid reflux. My primary care doctor also did not know about celiac, but I am glad that he sent me to a specialist. I spent a great deal of time educating myself about the desease and I share my information with my doctor. I guess I am really lucky, he is willing to take on this information and do further research rather than be skeptical. I feel for everyone out there because an earlier diagnosis would be better for all. I pushed for my daughter's testing and she was diagnosed. We all should focus on what we can do to help heal and educate others. I do believe that any doctor who withholds diagnosis willingly should be removed from practice. Ignorance is going to happen. Education is the best way to deal with it. What really makes me mad is not the ignorance of doctors, but the refusal of people to get tested when a relative has the desease. The worst is learning of others who ignore the positive test all together and go on eating gluten. I have heard more horror stories about people who are lucky to know but choose to do nothing about it.
  15. Not to worry. The advice given so far is excellent. There is no reson to feel guilty. If anything, you have a lucky circumstance in that you are diagnosed. Knowing about celiac is far better than living with issues and never being diagnosed. I felt the guilt when my sister and my daughter were diagnosed right after my diagnosis. I quickly realized that I saved them much grief. You are lucky to have a husband who is supportive.