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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes


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About westiepaws

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  1. The Politics Of Gluten

    Oh gosh, just reading a few of these posts, I am wanting to stand up and say, "YES, YES, YES!!!" Two additional groups that also are in the same position are caregivers, particularly younger ones, and people with pancreatic cancer. I submit that none of this is about politics at all. It is about MONEY. If you have MONEY, you can buy advertising and influence -- and a recommendation for 6-11 servings of grain on the Food Pyramind, yes indeedy! -- which equals power in D.C. and elsewhere. With MONEY, you can *MAKE* it a political issue. That is why the pharmaceutical and health insurance companies have the influence they have in our world today; they are raking in the MONEY and they use it to buy power. Just look at all that the Susan G. Komen Foundation funds -- I have no idea the worth of that foundation, but there is not a month when they are not marketing something related to breast cancer. Having worked in pr, I can tell you a) their strategies work, and they cost $$$$$$. We know it works because although yes, women still die of breast cancer, plenty of women are diagnosed early and survive for YEARS. (As opposed to pancreatic cancer -- my late husband's "experimental" treatment was 20 years old in 2002, when he took it as a last-ditch effort to save his life -- 20 years old!!! -- that is appalling.....and it happens because there is no MONEY in that treatment for the pharmaceutical companies, so they won't take it to trial...but I digress) Given this, I think the best plan would be to expand to include all groups, movers and shakers associated with the Big 8 allergens -- not just gluten/wheat. Let's face it -- plenty of us at this board have multiple food allergies, so even if the gluten/wheat issue were resolved, many of us would still be struggling. As would our friends with only lactose intolerance, and little children who can't get within six feet of a peanut without risking death. Including more groups/people in an alliance means more person-hours, and MONEY to buy power. Not to mention more people who are fired up to volunteer, etc., and more physicians and activists to speak up. westiepaws
  2. The Politics Of Gluten

    Read post below.
  3. I can't remember brand names, but I have had NO success in the arenas of gluten-free/soy-free/dairy-free *pasta *cookies. I also tried to make some pancakes, and man, they were horrible. Given these experiences and the fact that I have multiple allergies, I have given up trying to replace wheat-based products, pretty much. Instead I am eating mostly veggies, fruits and meat. However, when my body wants a splurge: *my saving grace is the great cranberry-walnut dessert posted in the recipes section at this site. I omit the flavoring (worries about gluten if alcohol-based). I use olive oil and bake it in a 9x13 pan because the texture is more crispy, like a cobbler/pie then. And YUM, I have been known to eat the whole thing myself in 24 hours ! Also, I love Enjoy Life chocolate chips. I have yet to use them in baking because they are so good I snarf them down as snacks. I don't mind giving up the breads, cookies, etc., because it gives me more caloric room for the above two snacks every now and then. I pray to God I don't develop allergies to chocolate or cranberries. If I did, I would cry.
  4. Tax Break

    Thanks everyone, this helps a lot. For the first time in my life I actually think I'll be meeting the 7.5 percent requirement b/cause of all the testing to diagnose me this year. !!
  5. Tax Break

    Hi Everybody, I think I read somewhere at celiac.com or at the message boards that we can take the extra cost of purchasing allergy-free foods, etc., off our income tax. I'm avoiding gluten, casien and soy so that was very exciting news to me ! However, I met with my accountant yesterday; she looked up the rule on this; and she said it applies only to *supplements* -- i.e., things that we have to have *in addition to* the usual stuff. For example, we can take off special vitamins, etc. required by our celiac, things we would *not* be taking if we were *not* celiac. BUT we can't take off, for example, gluten-free cereal, because it is not a *supplement,* it is *substitute* for regular cereal. I.e., we would be eating cereal even if we were celiac. Has anyone actually filed and taken this off your taxes? If yes, did you have a CPA who said it was okay and had no qualms about it? And if yes to that, can you tell me the part of the tax code that your CPA used to justify what you did? And finally, did you get audited, and if you did, did that deduction hold up to the audit's scrutiny? Thanks, Lea
  6. My Diet Is Not Like Most Of Yours

    Oh, that "piggy" description is so funny! That is me discovering those berry "Envirokids" rice bars at Whole Foods! Thanks for the mold link -- my mom is allergic to almost everything on the planet and I think that link might help her. Also, re: brussels sprouts, I never liked them *until* a friend fixed them halved and sauteed with lots of fresh chopped garlic and olive oil. I was eating them that way once a week for a while -- need to get back to that! It's really quick to prepare, too. I tried finding prepared foods but because I'm also allergic to soy and casien, I posted of many diet woes and frustrations here, as a result, over the last several months. Now I eat mostly fresh, whole foods except for chocolate, those Envirokids bars every now and then -- and sometimes I make brownies or that cranberry dessert recipe elsewhere at this site (only I make it in a 9x12 pan so it is thin and crisp and more like a cobbler instead of a cake -- yum-ola). I am studying to be a nutritionist and the program I am in stresses biochemical individuality -- we've all got the same basic human genetics, but there, the similarities end. So what works for one won't work for another, and vise-versa. It explains why so many of us have differences in our diets, and also means it is important for us to share all the differences! That mold page will be a HUGE help to my mom, who has tons of allergies, one of them mold. westiepaws
  7. Attended Chicago Gfg Mtg.

    Hi LisaRD88, don't despair --- you may very well *not* have multiple allergies. You could very well only have gluten intolerance and it's just messed your intestines up so that everything you eat makes you feel ill. Also know that if you do find out you have more than one sensitivity, you will learn how to handle it; you can do it!!! At first it is overwhelming, because there is a lot to learn, and after 15 years of being sick, you are feeling lousy, which is totally understandable. But you *can* do it. I haven't been here all that long; didn't find out for sure I had the sensitivities until March. I started learning about them in December 04 because my mom was diagnosed. Also, you will have up days and down days. It's a huge life change, even if your only allergy is gluten. Know that food intolerances can mess with your body and cause depression/mood swings/etc; your body will be adapting, you will accidentally get glutened, you will fall of the wagon eat a burrito or etc. out of total sorrow and self-pity (and BOY will you regret it in the morning, speaking from personal experience !!!!) But the thing is, as you change your diet, you will feel better and better! Your body will heal! And you will realize there is so much value in following whatever diet you need, and you will learn how to meet your food needs. And it will be worth it. Also, you can come here and sob or ask for advice or celebrate successes and that REALLY helps. Once Katie's USA's response talked me out of eating a chocolate eclair. Instead I went and found a recipe for an allergy-free brownie. Yum! ******* Here is what has worked for me -- and by the way, I am a total newbie compared to most people here, so I'd recommend starting a totally new post titled "how did you learn what you needed to know?" so that more people can respond, in case they don't check under this topic title. ***find a good dr. to walk you through this -- somewhere on this site there is a list of good drs. and I think there may be a list of NOT recommended drs., too. This means a person who will go the extra mile with you figure out what's going on and never gives up. ***definitely find a good dietician or nutritionist to help you. As you can tell from Mel's post about the Beano experience she had this week, it is EXTREMELY important to find one who specializes in this area and has put in time to learn as much as he/she can. Not all dieticians know all the ins and outs of celiac. For what it's worth, for me and for a friend of mine who is lactose intolerant -- our drs. also have food intolerances, so they totally "get it." At the conference I posted about here, the leading drs. in celiac in the US were speaking -- and many of THEM had celiac, too. ***check out the website for and consider subscribing to "Living Without" magazine. Incredible recipies, plus all kinds of advertisers are listed in there. ***read "Dangerous Grains" and "Against the Grain." ***read as much as you can here, read on the internet, etc. Check sites for Gluten Intolerance Group, Celiac Sprue Assn. -- do Google searches to find groups and see what groups are listed at other parts of this site. I *still* have not explored this entire www.celiac.com website, by the wa!!! It is HUGE. Pace yourself. ***finally, start ordering some gluten-free/etc. foods by mail from places you see advertised here. It is SO encouraging. I have found some Enjoy Life chocolate chips at Gluten-Free mall that also are casien and soy-free, so I can eat them. Man, that makes life worth living!!! "Against the Grain" talks about how you can take the extra cost of gluten-free foods off your tax return if your dr. writes a letter about your disease, too. Anyway, sorry so long, but this is how I started. You really can get a handle on it; just be patient w/yourself. Hope it helps!! westiepaws
  8. Attended Chicago Gfg Mtg.

    Mel, last night I read about three issues of a magazine called Living Without -- have you heard of it? It had so much helpful info., and there was an article on MOLD allergies! It and it mentioned foods to be careful about if you are allergic to mold. (I've not been tested for mold allergies, but was constantly sick off for six mos. after some major mold exposure several years ago, so my dr. said consider myself allergic.)I will see what issue and post that. Also, you might want to subscribe -- www.livingwithout.com, I *think*. It has lots of helpful recipies and helpful information on all kinds of food intolerances, not just gluten. westiepaws
  9. Attended Chicago Gfg Mtg.

    Mel, P.S. -- try to rotate foods if you can (I know that is SO hard with multi-allergies, believe me!). Somewhere I learned (and I can't remember the source, I apologize) that eating a food day in and day out can lead one's body to develop allergies to it. That's why the dieticians tell us to eat a variety of foods. And by the way, I am a total BAD example on this because I found out I can eat most of the food at the Chipotle restaurants, and I have eaten there three times this week because work has been so busy ....don't tell my nutritionist!!! More importantly, don't tell my intestines! Hugs, westiepaws
  10. Attended Chicago Gfg Mtg.

    Hi Mel! Yes, I am allergic to dairy, soy and gluten. My mom is allergic to those plus corn and sulfates. The person who has helped me (and my mom) most is the nutritionist we see. She is really well-versed on where in food bad things are hidden. Mom and I have not had any kind of food allergy testing, because our endocrinologist is wary of false positives. We found out we are allergic through testing of stool samples by EnteroLab (www.enterolab.com). You can do the samples at home and mail them to the lab, and they will e-mail you results. Basically, if your body is allergic to something, it makes antibodies to the substances in that food, and those antibodies appear in your stool, if I am stating this correctly. With an antibody, it's there, or it's not -- that is why our endocrinologist likes those tests more that regular food allergy tests. I know for sure they can test for egg and corn allergies, in addition to the ones I have. This is long but I am going to talk you through things the way our nutritionist does. You basically have to turn into a food detective. Once you get your brain thinking this way, it really helps you protect yourself from allergens. ****** First on the frosting: Was it storebought, or was it homemade? In general, given your list of allegies, you want to **STAY AWAY** from any storebought products like this, candies, etc. Even just a taste (I know, it is sooo hard for me, too!!) The frosting probably not only contained milk products, but some gluten, too, for thickening. Maybe even some soy (in the form of lecithin -- not all lecithin is made of soy, but sometimes it is. Labels are starting to say whether the lecithin in the product is soy; but let's face it, the manufacturers have until 2006 to get their act together on that, soo...) This week I just hypothetically looked at about 70 percent of the food labels on the prepared candy packages at my Publix. With just my three allergies, I could not eat ANY of it. Frosting is not that different from candy. In general, we are just so much better off avoiding any sort of prepackaged foods. I hardly buy anything prepackaged anymore. THE GOOD NEWS: Downstairs in my kitchen I have a chocolate frosting recipe where you can sub. almond milk for regular milk and it is free of all of my other allergens -- I think yours, too. I will post a link if not today, tomorrow. Okay, now let's talk corn. Do you know for sure that it is gluten-free? And free of the other allergens you need to avoid? If you are buying ears of corn fresh at the store, I would think contamination probably would not be an issue. However, if you are eating things like taco shells or baked products, etc., or canned corn, or frozen corn in any kind of sauce -- those actually sometimes contain modified food starch, which can contain gluten. Even corn starch itslef can contain gluten. Sometimes it is not that the corn product is made with gluten; sometimes it is just matter contaminated by gluten from other products made the processing facility using the same machinery. You can buy taco shells and corn starch, etc. that are gluten-free at places like Harry's and Whole Foods, and probably also off of the Gluten-Free Mall here at celiac.com. I hope that helps, at least a little! westiepaws
  11. Attended Chicago Gfg Mtg.

    celiac3270, if anything, a private school should be more willing to let you go, *I* think. When you write out whatever you submit making this request, work in something about how as a private school you know they have extremely high standards and want their students to excel and live healthy lives -- not just in the classroom, but outside, as well.
  12. ....boy, I sure have. I have run across some foods that, based on their food labels, were safe to eat. But more and more I am going back to buy some things and finding that their labels now mention soy lecithin, or wheat-related products that they used to not list. (I'm also allergic to milk, in addition to soy and gluten -- and generally have found that milk products are used in great enough quantity that they were pretty much listed from the get-go). Anyway, I wondered if anyone else is seeing these kinds of changes as they shop. I am thrilled about it; even though it means I have to mark some things off my list of possibilities; and I feel bummed because in a few cases I may have been accidentally glutening or soying myself thanks to the previous loopholes in US food product labeling law -- it sure makes safe shopping easier! westiepaws
  13. Attended Chicago Gfg Mtg.

    celiac3270, I am certain I saw you -- I went to at least one of the forums and there was a younger guy there, and I remember being surprised and impressed that he was! Particularly because this person, most likely you, did NOT seem to be there at the behest of a parent. Very cool! Yes, the scheduling should be such that students can attend! And teachers! I teach some college classes as an adjunct instructor so I better check my calendar. westiepaws
  14. Just Need To Vent

    I'm with Katie on the vaccine question. It probably did my brother and I a lot of good, I suppose. But I have a friend whose mother did not let him be vaccinated, and he's a-okay and actually, a total hunk! Gorgeous! Fit! Healthy! I also know a perfectly healthy fellow my age who ended up in a wheelchair permanently paralyzed and mentally compromised as a result of a vaccine reaction. I am glad I don't have kids, because it would be a hard decision for me. All of this, celiac, vaccine reactions, everything -- it just goes to show that aside from basic similarities that make us human, we're biochemically individual and unique -- and wonderfully made, if I might add! Hugs, westiepaws
  15. This Is Disgusting.....

    No physician should reaquire his/her patient to undergo any process or procedure that he/she has not experienced personally. I mean, hey -- how many of these M.D.s ever pooped into a paint can, much less gave chemo or radiation a whirl, or get regular colonoscopies, etc., themselves?! westiepaws