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Sam81

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  1. I was on Dapsone 50-100mg for 12 years for "Bechets Syndrome" - (diagnosed at 16) stopped taking it nearly 2 years ago and am riddled with Celiac DH symptoms. Some Dr's are thinking I was misdiagnosed. I was left to manage it on my own with no regular blood testing and was always severly anaemic by the time they did do blood tests. Iron levels are still...
  2. Hello! I'm married with 3 beautiful children. I was diagnosed with Bechets at 16 and put on medication - Dapsone. For last 2 years I have not taken it due to pregnancy and breast feeding and have started reacting to everything I eat. Dr's are wondering if I was either mis-diagnosed and in fact had Celiac DH or have had it all along, masked by the meds for Bechets...

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