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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes


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About HaileyRay812

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  1. I think you should look into helicobacter pylori. It is spread very easily from person to person in a family and causes stomach problems. It also is the #1 cause of stomach ulcers, like your moms. It is treated with 3 rounds of antibiotics.
  2. I am trying to figure out whether I need to try to get a biopsy or not. I am sure it would be ideal to do it, but it is expensive. Here are my results. Do you think you can conclude a positive celiac diagnosis from these results alone. Also, what are the benefits of a positive biopsy??? Deamidated Gliadin Abs, IgA 31 High Deamidated Gliadin Abs, IgG 16 Negative (20 is considered weak positive) t-Transluaminase (tTG) IgA 4 High t-Translutaminase (tTG) IgG 5 Negative (6 is considered weak positive) Endomysial Antibody IgA Immunoglobin A, Qn, Serum 167 Negative Positive for DQ2 and homozygous for DQB1*02. Thank in advance for the info! I just want to know whether it is worth doing it. Also would it be worth doing a biopsy on my 3 year old who has stronger celiac symptoms than me? She tested negative on the blood test FYI. We looked into doing a biopsy on my daughter and it was going to cost 2 grand even with insurance.
  3. Thank you so much for the information. I am surprised that my Dr. didn't even call. I actually was doing the testing for my 3 year old (for the genetic component, but I am not surprised that I have it as well. I have had health issues my whole life and have toyed with a gluten free diet for the last year because of my daughter. I think I am just overwhelmed that I actually got a positive test since I have met a few people with Celiac that couldn't get a positive test. So crazy that 26 years of issues is summed up to one problem!
  4. So you feel like these results indicate "celiac"?
  5. Here are the results I got today from the Dr. Deamidated Gliadin Abs, IgA 31 High Deamidated Gliadin Abs, IfG 16 Negative t-Transluaminase (tTG) IgA 4 High t-Translutaminase (tTG) IgG 5 Negative Endomysial Antibody IgA Immunoglobin A, Qn, Serum 167 Negative Positive for DQ2 and homozygous for DQB1*02. Please help me figure out what these means! I have had conversations with my Dr. before and they e-mailed me the results and told me to stay off gluten.
  6. I live in fort worth, tx and am trying to find a dr who treats celiac in our area. Does anyone know of any? If we have to drive to Dallas, that would be fine as well but fort worth is obviously my first choice
  7. I am curious if any of you have noticed you have more symptoms the longer you stay gluten free? The longest I have gone so far is 2 weeks and then when I got back on gluten, I instantly was so itchy and lethargic! I also would feel like I was getting hives. Most of my symptoms in the past have been gi and sinus infections. The longer I am off gluten, will I react stronger and stronger to it as it completely leaves my system?
  8. I am getting tested for celiac (blood test) in about a week. I really want the results to come out accurate and need help for those of you who have already gone through this. I have been off gluten (on and off) for the last several months and for the last week or two have tried to load up on gluten (which is miserable!) I am only doing this test once and then Going gluten free no matter what the results are. Anyone have any tips to get a positive outcome? I am so ready for a diagnosis and just to move on with my life!
  9. I am glad to know I am not the only one that feels angry. I am lucky that I am young, and lucky I am aware for my children who I also believe have celiac. I just feel this disease can ruin lives and wish drs would make a better effort to diagnose this disease!
  10. Undiagnosed Celiac During Pregnancy

    I am so sorry you have dealt with this. I believe I had undiagnosed celiac during both of my pregnancies. With my oldest, I had IUGR and she was born weighing 5 lbs 2 oz. At 39 weeks. I have heard IUGR is common with Celiac, and I don't know a lot about CP. I just hope drs start working harder to understand this, because that is their job. Most drs don't even seem to attempt to try and screen for the disease, which is a shame. uote name='djk40' timestamp='1310333572' post='715530'] When I was pregnant with my second daughter, I had horrible cramps during the first 20 months, then during the second half, I was extremely fatigued and had very soft stools (like soft serve icecream. I kept insisting something was very wrong with me, but the doctors couldn't figure it out. Then my daughter was born with mild CP ( the brain doesn't form completely tipically due to lack of oxygen at birth, but there are other causes)has anyone ever experienced this? I see alot of posts from people who already knew they had celiac during pregnancy. I'm just thinking that if the doctors were better informed this could have been avoided.
  11. I am not sure if anyone else has felt like this, but has anyone just been flat out ANGRY once they realized their struggles their whole life are probably due to celiac??? I went to the pediatrican monthly growing up (not an exaggeration) for sinus infections, drs told my mom they thought I waas depressed. My mom said that when I was young, I constantly had a stomach ache and was so tired (which I remember as well). Apparently I was a crazy, hyper-active toddler that never slept and wanted to eat sugar all of the time, and I feel like my quality of life has slowly deteriorated as I have gotten older (I am now 26). I used to accel at high school and in college, my grades literally got worse every semester I was there. I have always had lots of anxiety and depression which lead to an eating disorder in high school. I had complications in my pregnancy with my oldest (IUGR) and then had twins two years later in which I suffered extreme, dabilitating fatigue during my pregnancy. My oldest has had severe behavioral and sleep problems and I finally figured out the gluten link and she has been feeling so much better and her vocabulary and weight have both increased since taking her off gluten. My mom has been depressed and just "sick" most of my life. Always had severe allergies and asthma and would sometimes hardly be able to get out of bed. My brother is a college athlete and is 22 years old and I have seen his struggles over the last several years. He has always had HORRENDOUS asthma and allergies as well. He got the results back from a testosterone test earlier today. His numbers were at 240 and the average testosterone level for men ages 85-100 is 375. The average for his age is 700. I had testing done recently (not for celiac) and my calcium, potassium, megnesium, and iron levels were incredibly low. The nurses said they had never seen anyone my age with such terrible testing results. My 15 month old's belly has always looked like a balloon - so bloated!!!! I took her off gluten and in the last week her stomach is half fo the size that it was before. I have been told that they are pretty certain my testing will come out positive and I am pretty sure my brother, mom, daughters, and possibly my son have it as well. I don't even see how these people call themselves doctors. I am so angry I can't see straight. I am sure this is extreme, but I feel like doctors honestly just need to lose their licenses over things like this. I was given antibiotics over and over again which was horrible for me, and noone ever looked for an underlying cause. I am devastated for my poor brother who has worked his brains out to get to where he is at and struggled so much and never realized his struggles were most likely simply health issues. I am ANGRY (which is very unlike me).
  12. My daughter is almost 3 and she had the blood test done for Celiac recently. She really is a drama queen, so I dreaded taking her but it went perfectly! The nurse could not believe how well she did. The test did come out negative, but I recently went to an MD who practices integrative medicine who told me it takes about 10 years of celiac to get a positive blood test. I am getting tested for celiac next week and am being tested for the genetic markers since my dr. will not see children.