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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes


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About SleepyBunny

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  1. I make sure not to take my thyroid med or any supplement before labs for that reason. I'm taking Source Naturals Advanced B-12 Complex. It's 400mcg of Folate as Folic Acid and 5mg of Methylcobalamin and Adenosylcobalamin. I've been taking 2 each morning sublingually. I pop them under my tongue and go back to sleep lol I was going to ask him to increase my armour. I'll wait until the t3 results come in. Maybe if they're still on the low side he won't be as nervous to increase it. He's a nurse practitioner. He's told me to go to an endo but I don't like endo's :/ thank you for responding!
  2. I don't even know where to begin lol gluten-free and df. Hypothyroid, Vit d deficient, found out I was also anemic (low ferritin and b12 - 278) and my platelets have been low around 122. My last lab draw was in Aug and my platelets were 122. I just had labs again and they are at 98. He wants me to go to a hematologist and I'm getting a little scared. He mentioned hepatitis?!? How would I have gotten that? I've been taking b12 and my number shot up to over 2000 so I'm going to cut back. I've always had problems with sleeping a lot and brain fog. When I started armour it helped a little then it would slowly come back same with the b12. I've been lazy about taking iron. I also kept trying to tell the dr that I thought I had problems with my adrenals and he ran a few tests I think to humor me. When I was seeing a chiro he did a saliva test and it showed I had low morning cortisol. So I started taking Jarrows Adrenal Optimizer and it helped with some more of my brain fog, I haven't had as many dizzy spells apon standing and I feel it's been helping with blood sugar swings. But lately I've been sleeping a lot again. Sorry if my thoughts are scattered I'm just trying to make sure I remember everything. Last blood draw I had him do a full thyroid panel. I asked for another one this time and he just ran my TSH and ft4. So he drew blood again to get my t3. Why won't they just listen the first time. Here are some of my labs. Please let me know what you think. Vitamin D- 45 (range 30-100) B12- >2000 (range 200-1100) TSH - 2.88 FT4 - 0.93 (range 0.8-1.8) Glucose Total - 96 (range 65-99) WBC: 4.0 (3.8-10.8) RBC: 3.9 (3.8-5.1) HgB: 12.4 (11.7-15.5) Hct: 35.6 (35-45) MCV: 91 (80-100) MCH: 31.7 (27-33) MCHC: 34.8 (32-36) MPV: 9.8 (7.5-11.5) RDW: 12.9 (11-15) Platelets: 98 (140-400) Monocytes: 5.5 (1.7-9.3) Granulocytes: 53.4 (42.2-75.2) Lymphocyte: 1.6 (1.2-3.4) Monocyte#: 0.2 (0.1-0.6) Granulocyte#: 2.1 (1.4-6.5) Lymphocytes %: 41.4 (20.5-51.1) On the referral to the hematologist I read some of the symptoms they mentioned and some stood out to me lymphadenopath. Ears both TMs are bulging. Nasal mucosa is boggy, partially obscured by clear drainage and pale. Turbinates are markedly swollen bilaterally. I'm scared about all of this I also mentioned to him my fingers turn a pale bluish/purplish color when I get cold. He didn't say anything. When I looked on my referral it listed my current problems: Abnormal GTT Acne (ugh lol) Acquired Hypothyroidism Celiac Disease (my tests were negative but I'm so happy they put this. It's like confirmation I guess) Disorder of the adrenal glands (I guess he was listening ) Malaise and fatigue Near-syncope Other specified disorder of the thyroid (I have no idea what this means) Other vitamin b12 deficiency (there's more than 1?) Raynaud's syndrome (and advice for this one? Just stay warm? Lol) Thrombocytopenia Thyroid nodule (biopsy came back negative) Unspecified C (got MUCH better with armour) Vitamin D deficiency Sorry for the long post but any advice on all of this would be greatly appreciated. Especially in regards to the low platelets, thyroid, raynauds, and glucose. Thank you!
  3. I know what you mean about not wanting to go to bed early lol it's easier for me to stay up all night cos I know no matter how early I go to bed I'll wake up late either way so I just stay up so I can have a "daytime". I went on a trip a few weeks ago and the friend I stayed with had windows and skylights everywhere. I woke up at 9 lol something I may need to look into. Our house doesn't have many windows and I keep telling my husband we should add windows and skylights but he's not too excited about it. If it helps me wake up earlier I may have to surprise him What supplement are you taking for the dhea? Is that all the dr is having you do? I told my regular dr about the whole adrenal fatigue thing me he looked at my saliva tests from the chiro an said he wasn't sure how accurate they were. He drew blood to see where my cortisol was. Surprise surprise it was normal. He took it in the afternoon when it's normal. That's good to hear that you feel a little better in the morning Hopefully it'll get better with time I can't adopt those sleeping patterns quite yet. I don't get out of work till midnight and my schedule rotates every other weekend I've been feeling a little worse lately. I've been sleeping quite a bit. I've been depressed about food. If I eat something good (gluten-free and df) but its processed or something like beans chips pasta or rice I feel like crap. I feel heavy and slow. I haven't been eating as often but when I do I've been stuffing myself and have gained a few pounds I really feel I have no control sometimes. My stomach rarely growls but my brain says eat sugar, salt, and carbs and once I get going its hard to stop I'm trying to eat the way I was before again. I haven't wanted to exercise.. I know ll of this is related. I just have no idea where to start or what to do. I kinda wish I would have gone to the hospital. When I eat the stuff that's not so good I feel better sugar wise even though its probably high when I eat like that. The dr's office actually called last week and said the dr ordered a sugar monitor for me to wear for a week. It's supposed to test my sugar every 5 minutes. I just thought it was odd that I told them about my sugar like a month and a half ago and they're just now calling about this. I'm scared to have a needle stuck in my tummy I'm bald to hear you're doing well. Did the dr make any other suggestions? I need to get some determination like you! I got some cleaning done tonight so it's a start lol
  4. Hi just wondering if you got your results back and wanted to see how everything is going
  5. Is Alcohol Dangerous For Celiac

    I'm so glad I found this post. Before going gluten-free I could drink quite a bit and be a little tipsy but fine and would remember pretty much everything. Even on one or two occassions when I got more than a little tipsy I still remembered just about everything. About a month ago I had quite a bit to drink for my husband's Bday and don't remember a whole chunk of the evening. It freaked me out. I don't like not knowing what I'm doing or what's going on. So I need to be careful. I was wondering if this was normal. Good to know!
  6. I went to a dr that someone suggested because she seemed to know a lot about celiac. I had been on levo for a few months and still didn't feel better. Actually I started sleeping more. I asked her if she could test everything having to do with my thyroid. I also asked her if she'd be willing to prescribe me t3 if the tests showed that I needed it. She pretty much said yeah and basically said she's not going to risk her job and give me something just because I think I might need it. My TSH came back around 2. something. It had started to creep back up but since it was normal she left it. Saw her once Oh and when I mentioned my c that even draino couldn't get rid of her brilliant advice was to eat more vegetables and handed me a paper with paleo info.
  7. Don't forget the vitamin deficiancies that come along with all of this and their effect on the mind also.
  8. Actually I took accutane about 10 years ago. One day I drove to work and when I would get to work I usually would check myself in the mirror before going in. It's a good thing I did! In the 15 minutes it took me to get to work my face looked like I had just gotten over a sunburn! It wasn't red but it was peeling like crazy! I got to where I'd get tape and roll it around my fingers inside out and go over my face like a lint roller! Lol My face got better to an extent but I still get pimples still have large pores on my chin and upper cheeks. my pimples now a lot of times are I guess cystic acne. Just big bumps that hang around for weeks. Lately my chin has been getting small pimples and cystic ones on my jawline. And I seem to be getting a pimple like rash on part of my nose. I'm wondering if it's my b12 I actually just started taking a new brand so I'm switching back and praying. Is there a dr that would handle the adrenal issue and my low estrogen? Or would I need to see a different dr for each? They need to open up an celiac/autoimmune school or something to teach us about all of this lol Sorry I keep asking so many questions. I want to take care of all of this before any permanent damage happens And yer so smart!
  9. I don't think I really get sick a lot. I used to work in a retail store and it was around that time and when I was in high school that I got strep more. It's actually slowed down now that I work in a hospital because I'm not in close contact with patients as much. My mom asked drs so many times about getting my tonsils out because of the strep. Unfortunately I think when this was happening is when drs decided its bad to remove them unless you're being strangled by them So I kinda dropped it after that. And I actually had a dr suggest using a Waterpik to clean out the crypts in my tonsils. So you're saying you want me to stick a high pressure Waterpik in the back of my throat? Really? Uuugghhh I swear lol The thought of an adult tonsillectomy scares the crap out of me. Especially now with my blood situation. But you know how I said the dr wanted me to see a hematologist well I looked at the referral they gave me and it was for an ENT dr. So maybe it was meant for me to go to both. Everything you say makes sense about the tonsils and the immune system. I used to get a lot of ear infections as a kid too. Did you ever have problems with acne? This whole being an adult with pimples thing isn't cute anymore lol Not that it ever was cute I get cystic type acne that take forever to go away. A lot of them are along my jawline next to my tonsils! So that can make a sore throat worse when you have painful bumps in the same area. I've read that acne can be from food allergies, thyroid, hormones, adrenals. I've also read that b5 can help with it. I'm taking b12 right now and got a b complex that I took for a few days but I think it made me sleepy. I was going to take just the b5&12, but I read taking a lot of one of the other b vitamins can cause an imbalance in the other ones. Ok I'm rambling lol Any thoughts?
  10. New Undiagnosed Issue

    TMI ALERT lol Even after going gluten-free I had bad c. My tummy laughed when I tried magnesium citrate. It just looked and said "this is all you got?" lol Even after going on levo nothing. My TSH was around where yours is 5. something. I started taking armour and it has gotten a lot better. Like the others mentioned have your B12, Vit D, iron, all of that checked. I was low in all of these and feel like crap And like you some days are better than others. With the b12 if your test comes back in range but is under 500 it's low. My labs even had a note saying if your b12 is between 200-400 may experience neuropsychiatric and hematologic abnormalities. Um hello that doesn't sound normal to me! In Japan their "low normal" is 500. My labs "low normal" is 200. "In Japan and Europe, the lower limit for B12 is between 500-550 pg/mL, the level associated with psychological and behavioral manifestations such as cognitive decline, dementia and memory loss. Some experts have speculated that the acceptance of higher levels as normal in Japan and the willingness to treat levels considered
  11. I had a sore throat but also some chest congestion. She also told me the right side of my neck/throat was more swollen than the left. I'm thinking that's why she gave me the medrol. I've had strep lots of times and also cryptic tonsils so it doesn't surprise me. My ears had felt a little tender too cause of the swelling. And hey she gave me a bunch of days off from work so I'll do whatever she says lol All of this is so much to take in. Thanks for reminding me that hematologist use tons of needles! Lol This is going to be like when I was younger. I actually hid under a table to keep them from drawning my blood I want to learn as much as I can but sometimes all this conflicting information makes my head hurt. I'm pretty stubborn too so I know I'll figure this out it's just going to take a while. I've been dealing with all of this pretty much my whole life and I just want to feel good. I feel like all of this has kept me from accomplishing things. I've only been gluten-free for a year but man it seems longer. Thyroid came in November then all these other things in the past couple of months. So it's just a lot to take in. This forum helps quite a bit and nice people like you help a ton! If you ever need to talk or vent too you just let me know! Let me know when you get your results in and I'll let you know when I got to the evil blood suc....I mean hematologist. Lol Now time to get my big butt up and attempt to do something
  12. I have been taking sublingual b12 (methylcobalamin) for about a month or so now. When I started taking it and the iron it did help clear almost all of the lingering brain fog I still had. I almost considered the b12 shot but just couldn't do it
  13. I went to my appointment. Since it was a last minute appointment I saw a different dr. When I told her about my anemia and one of my other conditions (don't remember already lol) she said auto immune. Yay she sounds like she knows what she's talking about. She said my MRI came back normal but said they did find some cysts on my liver but it was normal. I told her about my recent symptoms and that was why I had the MRI and I feel it was something to do with my adrenals. Well because of my anemia (low b12 and ferretin) and I have low platelets she wants to send me to a hematologist She even mentioned a bone marrow biopsy!!!! That freaked me out. I've heard they are really painful! She asked if I wanted a b12 shot but I passed. (hate needles! Lol) why do these drs not listen? I went also because I got sick this weekend with a sore throat. She asked if I wanted a steroid shot or pills. Well I picked pills lol I'm wondering if my adrenals are pooped if this will help and maybe they'll start listening to me. I'm going to make an appointment with the endo and the hemo. I don't mind going I just hate having to wait a month or two to get in and having to spend more money and wait longer for a 5 minute visit just to be told to wait longer for results that will more then likely be "normal". Ok I vented lol My cortisol is like yours. Mine was like 4 in the morning then normal, then slightly elevated then normal again. I like pigging out too lol I haven't really been eating pasta either. My main carb of choice lately is potatoes. I've always loved potatoes But carbo loading before bed leaves me feeling all stuffed. But one good thing my morning blood sugar hasn't been in the 60s the last few times I checked. Yeah no more fasting. It just makes me want to pig out more. Lol And it doesn't seem like the best advice for someone having low blood sugar issues. For going through all that you're going through you really seem to have it together. I hope to get to that point one day. Reading these posts is part of what's keeping me sane So thank you
  14. It's even worse if I have to be at work early the next morning. It's like I'm a gluton for punishment or something lol The only time I'm awake in the early morning (besides for work) is if I've stayed up all night. If I get this fixed it's going to be so weird being a ......morning person
  15. I showed my dr my saliva tests. It showed my low morning cortisol and low estrogen and he said he wasn't sure how accurate saliva tests were but he did take a good look at them. This past weekend I got sick and I'm going tomorrow to make sure it's not strep and find out my MRI results. I'm nervous. I don't want there to be something horribly wrong But then at the same time I don't want him to say you're fine go home. I don't know if I can wait for an endo to figure this out. I don't want to get fired from this The chiropractor kept saying everything was my adrenals the last time I saw him but just said to keep calm. Every time he says don't stress something bad happens. He keeps wanting me to fast and detox. When your adrenals are telling your brain SALT, SUGAR, CARBS! You really have no choice in the matter lol Do you find that you want to pig out more later in the evening? During the day I've been snacking and such but in the evening I make a nice carb filled meal wether I'm "hungry" or not. Good luck with your tests! Let me know what they tell you. I'll post on here sometime tomorrow and let you know what he tells me. Have a good day!