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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes


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  1. This is from my family's latest family doctor. My dad and I have just switched because we dislike her so much. Example 1: I've been having pretty severe pain during my period for about the last year. I have no idea why. I kid you not, it feels like something is stabbing me in the cervix. I'm on naproxin when it gets bad, as a temporary measure. Tried to talk to my family doctor about getting a new gyno since I can *never* get in touch with the one I have currently. She tells me that "gynecologists are busy, and they don't have time for me since I don't have anything wrong with me." ... How would you know if something is or isn't "wrong" if you haven't actually run any tests?! Not to mention ignoring my complaints of severe pain! I'm 21, not 12, I think I know what my period usually feels like Example 2: Talking to the same family doc about trying to get a referral for another GI. In turn, she goes on a rant about "how this country has a problem with doctor shopping" and I can't just ask for a new doctor when I don't like what they tell me. Even when they tell me they have no idea what's wrong with me. -.-" She also suggested I see a psychiatrist for my GI problems, since the GI doc that gave up on me had no idea what was wrong, so it can't possibly be stomach issues. Throw in a few times mis-prescribing meds for my dad that aren't even available in Canada, more brushing off symptoms and always being 1hr + late for appointments with no apologies, we high tailed it out of there. Hopefully the new guy is slightly better than the last three doctors.
  2. Good Doctor In Toronto

    Unfortunately I can't recommend anyone for you just yet. I'm in the Toronto area too and would love to get a good GI for my undiagnosed issues. I'm finally seeing someone in September (after months and months of trying to get in contact with ANY GI!) in the northern GTA, I can let you know how that goes if it's not too far for you?
  3. I've been wondering this myself! I'm not diagnosed, but pretty sure I have a problem with gluten. About a month ago, I went for a CT scan and was told that I have a 2.7cm cyst on my left ovary. My ultrasound to check up on it isn't for another month. I have no idea if this is related to the GI issues I've been experiencing.. but it's definitely food for thought.
  4. Went for the endoscopy, and they did the biopsy (they took 2 samples). I got a call from my doctor's office this morning: both came back clean. I don't know what to think. I had another attack of stomach pain the day before yesterday while I was at a friend's place. I had orange juice 3 hours before, and pasta with meat sauce an hour before that. (yet this is the first *severe* attack I've had in a while) Couldn't sit up. Had to lie down, which reduced the pain, but when I tried to sit up an hour later it came right back. (Possibly relevant: yesterday I hadn't eaten for hours, and was really hungry, so I had a snack-size coffee crisp. I have mild stomach pain, nausea, and diarrhea a few hours later. Not so long ago, I had a king size coffee crisp and no reactions like this.) Ideas of anything else that could be causing this stomach pain? There's no way this can be IBS. All I can think is Celiac, or at least a gluten intolerance. Considering going on a gluten free diet, even though all of my tests have been negative. @Cougie 23: I've been wondering if I'm lactose intolerant, but my last allergy test did show a reaction to dairy (assuming I have celiac, is it possible to be lactose intolerant AND have a dairy allergy?). So I'll definitely be avoiding casein anyway!
  5. Aghn. Apologies for the uber late reply. New job + moving have made the last few weeks crazy. Haven't seen the family doctor yet, but likely will after the endoscopy. The consultation for it is tomorrow. Unless the results come back definitively showing a different cause, I'd like to go on a gluten free diet ASAP. If I don't have Celiac, the it won't hurt me... And if I do, it can only help. Would I be able to start the diet before my endoscopy without affecting the results? I need to put on weight. Period. I'm just getting over a terrible stomach flu (included stomach cramping/pain, which was unusual for me.. usually I just sleep with a bucket by my bedside). I was only down for a few days, but according to the bathroom scale I'm now at 96 lbs. I'm 5' 6". Scary stuff. I feel like a skeleton, and everyone is commenting on how I look tired all the time/appear to be wasting away. How soon after starting a gluten-free diet does weight gain usually start?
  6. Me too. Sharp pain that's usually where my solar plexus is, that can lance down to my bellybutton. Sometimes it moves to the left or the right, but... augh, that pain is horrible. Can't even stand up straight. Glad to know I'm not the only one who's had this! (So far I'm undiagnosed, and the PPIs I'm taking haven't been helping)
  7. @kareng: Thanks for the links, but Chicago is a tad far for me - I'm just north of Toronto. My dad doesn't care/is always working, and my mom is of the opinion that it's all in my head because of stress. -.-" (Thanks Mom...) Got the beginning of a lecture about it today. Like, the last year has been rough.... but again, I haven't heard of stress causing this kind of pain, or a number of my symptoms. =/ So I'm not sure how much help either of them will be. The doctor was definitely more polite when my mom was around though. @Krystynnycole: Ahh, that's interesting.. Often my pains are sharp, so I should bring that up with the doc. next time I see him. (On my last visit, he went off on a tangent saying I can tell the gastrologist to do any test he thinks will give me a diagnosis... but without that in writing, I'm not sure whether it will make an impact on what the gastrologist can and can't do?)
  8. I've been sick for a while, and hoping that maybe someone here can give me some insight into what might be going on. At this point, any ideas are greatly appreciated. Thanks in advance for reading through this massive post! <3 I've tried to format it so that it doesn't make anyone's eyes bleed. So, here's the deal (I'll attempt to do this in chronological order): Wtf Insane Stomach Pain?! Since about January, I've had mysterious stomach pain. A sharp, stabbing pain usually near to my solar plexus, that lances all the way down to almost my belly button. When I have one of these severe attacks, I can barely sit up straight. (Due to a lack of coverage, I wasn't sure if I should go to the hospital in the beginning) This hasn't happened often, maybe 8 or 9 times, but every time it scares the crap outta me. Usually if I lie down, it'll fade away after a while. I'm not sure if there really is a connection between being horizontal and a lack of pain, but whenever I get an attack I usually just curl up in bed. I remember a few occurrences of this kind of pain 2-3 years ago. I never knew what caused it. My mom is a nurse, and she said it could just be built up gas (since I didn't always eat a lot, or on time) and since it didn't bother me often, I never thought too much of it. I've tried taking Gas-X and Gaviscon during attacks. Neither made a lick of difference. I spent 2009-2010 in Japan, and my diet was uber healthy. Always had rice, and not much in the way of wheat/gluten. I don't remember having any stomach pain that year. Fast forward to January 2011. (My diet has included a lot of wheat things, like bread and pasta) The stomach pain comes back. Often late at night, right after I eat (thought it may have been because of greasy foods like Pizza/Hamburgers) although I have had it a few times when I haven't eaten for several hours. I haven't had a severe attack in.. a month or two, I think? I'm not well off, so I've been eating a lot of rice lately, rather than breads/pasta, though in the last month that has changed. Randomly Sick - Nausea and Mild Pain? About a month and a half ago, I woke up one morning and felt sick. Just.. eugh. I had been drinking a little the night before, but this wasn't like a hangover. Nausea, and mild stomach pain. I called in sick. The next day I was no better. Went into work anyway, and had to ask to come home early because of mild nausea and sharp stomach pangs. I work in a warehouse, and although I'm a featherweight I do a lot of lifting, up to 50lbs. My mom just had her gallbladder out, so we were suspicious about gallbladder stones. I went for an ultrasound, but it came back completely clean. Also did a general blood workup, which also came back clean, aside from my hemoglobin was sliiightly low (can't remember the exact count). Symptoms since I 'got sick' a month-ish ago are: -Stomach pain. Usually pangs near my solar plexus, sometimes moving a bit to the right or the left. Occasionally in other places, though always upper abdomen. I believe it worsens with exercise (since it happens often at work.. haven't thoroughly tested this, mostly because I don't want to) -Nausea. Not severe, but constant. Worsens after I eat, though I have yet to throw up. I believe it worsens with exercise (since it happens often at work.. haven't thoroughly tested this, again, mostly because I don't want to) -Tender abdomen. -Bloating -General fatigue -Weight loss. I used to hover at about 110 lbs on my parents' scale, which is a bit underweight for my 5' 6" frame. Now I'm 100 lbs. Unsure of when this began. In the last few months, I'd guess. -Decrease in appetite. (More recently, but that might just be because I feel sick whenever I eat..) -Occasional diarrhea. This may or may not be from my wheat/dairy allergy (explained below) Crappy Doctor and Test Results Since then, I've missed a ton of work, which is causing major financial problems. I might lose my apartment because of this. =S Our family doctor thus far has been absolutely terrible (never answers his phone, takes forever to return messages, never in during his "office hours", ridiculous wait times, bad about scheduling tests... I could go on). We just changed to a new guy, however, after a few visits I'm wondering if he's much better. Doesn't seem to be taking what I say seriously (I'm 19 y.o.) The first few times I saw him, he tried to sell me the "nervous stomach"/"stressed" idea, but I'm not buying it. Recently, he's been stuck on the idea of Irritable Bowel Syndrome, which indeed this may be, but I'd like to test for as many other things as possible before jumping to that conclusion. He basically said that if the endoscopy doesn't show anything, that I have IBS and that was that. But I haven't heard of IBS causing such sharp, severe pain.. and what about the weight loss? Admittedly I've been doing a lot of exercise (because of work) and haven't been eating the best I could, but that's almost 10% of my body weight. I've had an endoscopy scheduled, but it's not until Sept. 21st. Until then, my doc. doesn't want to do any other tests. He prescribed me Buscopan until then. I've been tested for H. Pylori, and had the blood test for Celiac. Both of them gave back negative. I've been to various clinics, was put on Zantac first. No change, was put on Pantaprozole instead. No change. After a trip to the hospital a few weeks ago, I was put on Raberprazole. No change. Haven't started the Buscopan yet, hoping to soon. Why I think it might be Celiac: Prior to this: -I've been bloated for a number of years. I assumed it was because of untested food allergies. My last test (November '10) showed I had a mild allergy to wheat and dairy, a few more nuts, and pork, in addition to peanuts. I'm confident that the symptoms I have now aren't caused from the allergies. when I have a glass of milk, for example, within half an hour I have increased bloating and diarrhea. -Lactose intolerance. Used to be? Still am? Quite unsure at this point. After noticing that milk products bothered me, I started drinking lactose free milk and using lactase enzymes. There was significant improvement. In the last year-ish though, even lactose free milk makes me sick. I've switched to soy. -General fatigue. -Chronically underweight, despite many attempts to change that. (110 lbs is actually the highest I've ever been, and I was quite proud for the increase =P) So... A hernia and stomach ulcers are also on the table... but looking at all of these symptoms together, I can't help but wonder if Celiac is behind it all. Has anyone else had sharp stomach pains like this? Or even a combination of the symptoms I've listed? I'm tempted to cut out all gluten from my diet, but I'm afraid that it will mess with whatever biopsies I get done in the next few months. And from what I've heard, the blood tests aren't accurate, and the biopsies aren't 100% either. Opinions? Thanks again for reading!