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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes


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About Finally@45

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  1. Does Anyone Else React To Salt/sodium?

    I have a very similar reaction to chips. I had to cut iodized salt, nightshades, and corn/corn oil (which is also in iodized salt) which all tend to be a risk in chips. Seaweed is high in iodine.
  2. What exactly makes you think you're intolerant to fat? Just asking since many Celiacs have fatty stools and it makes some people think their bodies don't like fat, which is not the case. I'm also a reformed dairy addict. I'm intolerant, but can't figure out if it's the lactose. I just know I do tolerate kefir, which is 98% lactose free. It's not allowed on a low-histamine diet, so I'm on a break.
  3. Food Allergy?

    Like Alex said-- go for histamine intolerance. It has a high likelihood of being unpredictable, weird, and easy to fool Drs.
  4. I strongly agree with Adelaide! I didn't want to believe it at first, but you can have multiple diet-related conditions. I think if the Celiac condition comes first, we're so happy to have an answer to our health questions, we're convinced it's the ONLY answer. Many people with mastocytosis don't tolerate soy, eggs, wheat, rye, barley, or poultry that isn't organic/free range.
  5. I'm a witness that gluten in supplements still cause harm. The sublingual vitamins often work out as grain free.
  6. Anxiety Attack

    Many of these symptoms are also symptoms of mastocytosis.
  7. You may have already found the low-histamine & tyramine diet recommended for people with mast cell disorders and others, but here it is: http://www.mastocytosis.ca/MSC%20HT%20Restricted%20Diet%20Nov2012.pdf Note that it's a good starting point. Most people find they have to customize their diet to look a lot like this one plus a few adjustments for unique triggers or foods that don't cause trouble (yet). Good luck, I hope you feel better soon.
  8. So Discouraged

    I've been in your shoes too. I hope you figure it out soon. The Naked drinks have cross contact with barleygrass, which is in the Green one I believe. Some ppl say it doesn't bother them, but I don't tolerate barley or wheat grasses. I let go of the Naked drinks about a year and half into the gluten-free diet. It wasn't obvious at first, but they gradually became nauseating. It was about that same time I realized just how closely I had to read the labels and not eat anything manufactured in contact w/wheat, rye, or barley. (Those were the good ole days.) I've also heard of new Celiacs developing fructose intolerance.
  9. After an initial blissful period of eating gluten-free products, I gradually became intolerant to other grains. Corn and oats commonly get complaints from Celiacs though.
  10. Testing For Intolerances?

    I found the Paleo diet to be a good starting point for the elimination diet. The most common culprits are already off of the Paleo diet.
  11. Mastocytosis

    There is a diagnostic tool online that explains the rules for mastocytosis diagnoses. I had the skin biopsy, however I have symptoms far beyond cutaneous... so I'm still under testing and eval. My diet is outrageously limited due to GI problems and about 40 other symptoms. That's just me though...like I said, remember each person is different. There is light at the end of the tunnel, just don't give up hope in finding your cause. You can also have an intestinal biopsy done, recommended if you're due for a colonoscopy/endoscopy anyway. The tryptase tests are easy urine/blood tests.
  12. Alcohol

    The alcohol intolerance is a symptom of mastocytosis. Mastocytosis isn't the same as being histamine intolerant. Ironically, it's a lot like comparing Celiacs to ppl with gluten intolerance. Also, the lists of symptoms for each are long, but it's not as if every patient has every symptom.
  13. I'm trying N-acetyl-glucosamine (NAG) in combo with other treatment for GI allergies and a low- histamine diet. I'll be sure to follow up with how it all works out. The NAG may help allow lectins to pass through the gut without wreaking havoc.