• Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

Lisa Kaye

  • Content count

  • Joined

  • Last visited

Community Reputation

0 Neutral

About Lisa Kaye

  • Rank
    New Community Member

Profile Information

  • Gender
  1. I was dx'd two years ago with Celiac and have been followed by a very good GI doc, although she doesn't specialize in Celiac. I read about Jefferson Univ's Celiac Center in the newspaper. Made an appt and here's a summary of what they did on visit one: 1. History & very brief exam, weight, height 2. Extensive questionairre completed for their research database 3. Blood work: They drew 20 vials of blood for various tests (to check for vitamin & mineral deficiencies). Thankfully I'm insured! 4. Prescription for nutritionist consult 5. Prescription for a bone density scan 6. Follow-up appt made to review lab findings The specialist said their main purpose at the Center is to make sure every Celiac patient sees a nutritionist, gets a bone density scan, has bloodwork to find any vitamin/mineral deficiencies so patients can be supplemented properly. And finally, he said the most important thing I can do is get all of my 1st degree relatives to be tested. He recommends celiac patients be seen in the center annually. I'm glad I went and am looking forward to getting the lab results. However, going to Philly is such a pain --no parking, traffic, etc. And this Celiac Center is located inside the hospital and the center is under construction. Plus, they were understaffed in the receptionist area and borderline rude. The nurses and doc were very nice though. I was shocked how many people were waiting in the waiting room -- kinda comforting on some level (misery loves company?).
  2. I've recently been to the Celiac Center at Jefferson Univ Hospital in Philly and the specialist said some celiacs have difficulty with swallowing. In fact, my cousin's only symptom was difficulty with swallowing --which lead her to a GI doc to investigate and ultimately she was diagnosed with Celiac.
  3. Sandrad - thanks for your reply. That brightened my day, as I've been imaging all these horrible diseases. Or, wasn't sure if it's Celiac rearing its ugly head, in spite of trying to stick to a strict gluten-free diet. This is all such a pain in the butt (pun intended). Thanks & have a nice weekend!
  4. Two weeks ago I had my gallbladder out for the following reasons: low ejection fraction (8%), Upper Rt Quad pain, loose stools --all for about 3 months. I have to say --the surgery itself was easy; laproscopic --home 3 hours after surgery and recovered at home. Felt great 1 week post op; week two -- I am having cramping and pain in the upper rt quad again. Now I'm wondering if I made a mistake in having the surgery. The good news though -- stools are back to normal. Has anyone had a Lap Choly and still had pain in that area afterwards? I'm hoping it will go away after a few weeks of healing time. Keeping my fingers crossed.