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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes


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About Brooklyncowgirl

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  1. I've tried them. My problem is that they just don't taste very good--not like real Rice Krispies. I think that perhaps it's because they use brown rice instead of white rice. Somehow everyone who manufactures gluten free products (with the exception of God bless 'em General Mills with their Chex line) seems to think that we're all health food nuts who want bland tasting "natural" cerials that taste worse than the stuff I feed my horse. I had high hopes for these but unfortunately Kellogs has not come through.
  2. I've been able to find most types pastas in gluten free form but I've never seen one of my favorites, tortolini or tortoloni. Anyone know of any?
  3. I'm in my fifties now. When I was a baby I nearly died from celiac. Once I began taking solid food I was constantly sick; vomiting, diarrhea the whole nine yards. I would have died except for our family physician consulting on my case with one of his old medical school professors (I'll call him Dr. K.) who diagnosed me with celiac and put me on a gluten free diet. I recovered almost immediately. As a kid, if I strayed from the diet the symptoms were immediate and severe; hours of vomiting, hours of diarrhea. This was pretty strong motivation to stay on the diet. My worst moment, my third birthday party when my specially ordered ice cream cake arrived and my mother cut into it only to find that the store had ignored the instructions and put in the usual layers of cake. I'm too young to remember it but my mother says that I stared at the cake and one, only one tear rolled down my face. I was quickly given a bowl of ice cream with candles on it. (My mother also told me my father had to run out to catch my uncle who had stormed out of the party vowing to "punch that *&@!$ baker in the nose but I really don't remember that part) Over the years, my symptoms abated. One by one the forbidden foods were added to my diet until on one great and glorious day I sat on a stool with some friends in Vesuvios Pizzaria on Third Avenue in Bay Ridge, Brooklyn and ate the most gooey, cheesy wonderful thing I'd ever tasted--my first slice of real pizza. I no longer had to define myself by what I could not eat. For the next forty years or so I ate a normal diet. I may have been suffering from some low grade symptoms but if so they were so slight as to be negligable. I also had as little contact as possible with members of the medical profession. Then a few months ago, at my husband's insistence, I had one of those hideous rites of passage for those of us on the dark side of fifty--a colonoscopy. The doctor, I'll call him Gastroguy, saw Celiac on my very short list of illnesses. I told Gastroguy that I had no symptoms. Gastroguy then told me that this is something you never get over and that I was slowly destroying my small intestine and risking some very nasty side effects including an untreatable form of cancer. He had a biopsy and blood test done and sure enough, Celiac was still with me. In my mid fifties, after years of pizza and pasta and beer, I had to go back on the hated diet. I've been gluten free since July and I'm (reluctantly) feeling some improvements in my general health. It's not even so bad following the diet at home, there are plenty of good (albeit expensive) products out there including (thank you Anheiser Bush and New Grist) reasonably drinkable beers. The worst, as everyone who has this condition knows, is when I go out. I feel like one of those hideously self absorbed health nuts quizzing the waitress over what the tortilla chips in the plate of nachos I'm considering ordering are made of or did the cook use a soy sauce with flour on my broccoli with garlic sauce. So, I'd like to know if there's anyone out there like me. Anyone who suffered from it as a kid, whose symptoms abated, and who thought it was over and then suddenly found out that they still have this condition after years of eating a normal diet.