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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Alwayssomething

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  1. I actually gained weight after going gluten free, and I eat little to no processed food. But prior to diagnosis I was underweight because I could not finish a meal, I never cleaned a plate or even consumed many ounces of my meal. Every meal had gluten and most of the time I would get sick a few bits in. Now I can actually eat and finish a meal and am probably consuming more calories than I ever have in my life. Now I wish I could loose some of what I have put on, but I figure this is probably where I should have been all along and I stopped fighting it.
  2. I have not been to Panama City in many years, but we were trying to return recently and I did some research. I do not have personal experience but in my trip planning notes I noted these places based on reviews on trip advisor for gluten free food. Andy's Flour Power Firefly Another Broken Egg Cafe Also First Watch is a place we have locally where I live and there is one in Panama City and they do Gluten free well at my local location. Sorry I can't give personal reviews, we like to travel a lot and I usually do a lot of research on Trip Advisor and then check out the menu for the restaurant and then sometimes I even email them with questions about the specific meal I would eat, I print those responses and take them with me so I can ask for that person, and so far only once have I had a failure. BUT I did not do that for these places yet, and right now this location is on our back burner again
  3. In 2011 I started off with Weekly injections, for one month then every other week for 5 months. Retested my B12 was barely in the normal range. Dr stopped the injections to see if my body could maintain (then I would have started oral) but it didn't. I was taught how to do them monthly at home and have been doing that since. My last test my B12 number was right in the middle of the normal range (which is where my dr wants it to be) BUT I had the blood drawn only a week after my injection and that affects it. I normally like to get my blood drawn right before my injection because I feel that is a more true reading. My Vitamin D had to be prescription to get enough and is 5000 IU a week, but it was twice a week and I am just now in the middle of the normal range.
  4. Don't know if you are already doing this, but for me I had to stop wearing certain things to avoid the extensive pain in my legs, arms and even in my hip from neuropathy. I still can't wear some of them without getting a flare. Nothing with elastic in the arms or legs, socks were tough but I just wore the ones that were lower on the foot. This helped a lot! For me seams running up on my hip like in jeans were a huge pain trigger and I had to switch to Columbia hiking pants. Cost me fortune but it was well worth it and after years I can wear jeans again without an issue, although I don't push it and wear them every day. I have been gluten free for 7 years and still have some neuropathy here and there but nothing like before. For me nightshades cause joint issues but not neuropathy. By the way my Vitamin D and B12 are just now in the middle of the normal range where my dr wants them, but I can't stop taking Vitamin D or doing the B12 shots or my numbers slowly drop back down, I don't think I will ever be able to go without.
  5. It has been several years since I was there but I ate successfully at: The Pottery House Café and Grille, I believe I only had a salad here though. The Old Mill Calhouns and the Alamo We cooked in several nights due to a Rod Run being in town and traffic being insane and had one night where I got glutened at Johnny Carino's.
  6. When I had no gluten free children in the house I used a over the door shoe holder with clear pockets and each pocket had a fruit cup, bag of chips or a fruit cup and cheeze it's or cookies or something in it. The kids just grabbed and put in their lunch, sometimes it had other things like fruit leather or nuts. Worked great and was convenient.
  7. Misschell24 - I have both Hoshi and Celiac. I have not given up soy it was never suggested and I don't seem to have a problem with it. Dairy for me is iffy. I am lactose intolerant, I use lactaid milk and if I do have icecream or something with milk in it I take a Lactaid chewable tablet first, and this seems to solve all my issues. Of course going gluten free usually means a lot more whole foods and fewer processed foods, so maybe by default I am consuming less soy and dairy but I don't go out of my way. Please do whatever makes you feel better, I am just giving you my experience.
  8. The first time they tested me for Celiac I only came back with Micro Colitis and I was given medicine to take daily. I was actually diagnosed with Celiac through the skin tests for DH at a later time (after more suffering) I ditched the medicine for the colitis and went 100% gluten free. (I was also diagnosed with a couple other auto immune all around the same time) I don't think you could possible see any sort of change in one day. If you would like to try gluten free to help the MC you need to commit 100% and give it time. For me personally the first three weeks where crazy and tons of withdrawl, but then I noticed little things had changed. My face was not as red and had stopped burning, my joints hurt less. Less stomach issues.....and each day gets better and better
  9. Is the peanut butter from your pre gluten free days and maybe cross contaminated?
  10. A lady I work with just discovered the same thing. She too was gluten free but continued to be sick, then a year or so ago nausea was added to her symptoms and a new doctor ran genetic testing and found the same thing. She is doing very well on her new diet and has added some gluten in but very little because she still feels better without it in her diet.
  11. In case you are ever in the Orlando area the Kona Café in the Polynesian resort has WONDERFUL gluten free waffles. They also have pancakes and French toast as well, I just haven't made it past the waffles. I am sure they are sold on all the Disney properties serving breakfast, but I can go to the Polynesian without entering a park and without staying there so it is the only place I have had them there.
  12. My feet started burning after a few years gluten free. Mainly at night, and I mean on fire! I asked my Endocrinologist about it at my next visit and knowing that I did not have Diabetes, he said it was most likely B12 deficiency. Ran tests and it was, I started injections and 3 years later I am in the normal range I no longer have this issue.
  13. We have purchased an fresh Amish turkey from one of our local meat markets for many years, before I was ever gluten free. They cost probably double the price per pound and the first year my parents thought we were nuts, until they tried it. Then they asked if we could get one for Christmas. They are fresh and raised cage free and the "old fashion way" not force feed to be fat over night and it makes all the difference in the world in the taste. I live it Florida they come from PA so they arrive the Monday before Thanksgiving but I have already placed my order for the sizes I need.
  14. We travel a lot and we eat out while traveling. If we are in the US I will take some snacks depending on how we are traveling, car or plane. Then I shop local for snack type foods, if we have a kitchen or kitchenette we will make breakfast in the room, but after that we are on the run so I do TONS of research. Tripadvisor is my friend. I look up places to eat, then look at the menu's online then email the restaurant and ask all my questions. Or if they don't have a gluten free menu I will take something on the menu I think would be gluten free and ask specifically about that item and all my questions. I print those emails and menus and take them with me, they stay in my car so they are handy. We also travel outside the US often and that is trickier....I take a lot of snacks and usually my bread since the ingredients in other countries are often in another language. But as far as restaurants I again do a lot of research on tripadvisor, and a lot of emailing, it often limits me to the finer dining places only and I would love to try out a dive here and there, but they don't always have menu's online or even a webpage so that makes them impossible to contact and ask the right questions. I have still walked out of a place when I didn't feel like I was getting the right answers even after I emailed them, but it has only happened once, and I also have only been glutened twice. Once when I first started and didn't walk out when I should have (even though I had an email) A lot of people will recommend the App "Find Me Gluten Free" and I do use it, but more often than not it tells me the big chains that I am already aware.
  15. You guys are braver than I am This one is more brown Ravenswoodglass, and super thin. I just had never encountered one in any of the bags I have eaten. I am just to chicken to try it although I have eaten half the bag since I bought it and it hasn't made me sick, so if it was a gluten filled one it probably would have happened already.