• Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes


Advanced Members
  • Content count

  • Joined

  • Last visited

Community Reputation

2 Neutral

About meinelse

  • Rank
    New Community Member
  1. No, I'm cooking for myself--my household is not gluten-free. However, if I could cook up some delicious GAPS food, anyone will eat it--they don't care!--and it's easier to cook for a few than to cook for 1. So if you have suggestions, lay them on me! One of the biggest barriers I have faced is that I don't know how to cook, and I have multiple intolerances, plus severe reactive hypoglycemia, so I have to eat high-protein foods every 2 hours. This makes GAPS rather scary. I'm starting to learn and having fun, but I go hungry a lot because I really don't know how to do this yet. Every weekend I try a new recipe (or 2!). I'm determined, so I'll get there!
  2. Wow, very informative. Thank you Skylark! I'll read the GAPS book right away.
  3. Thank you! This is so helpful. I will call my GI and ask them if they ran these tests--they collected samples several times, but I don't know for sure which panels they used. I'll request another test if needed. Thank you!
  4. Skylark, thanks for the feedback! I'm already spending a lot of time cooking, so that will be ok. I rather like the idea of having meals prepared for the week, anyway. I had been concerned about the cost, given that cooking gluten/dairy/nightshade free has already been somewhat cost-prohibitive, so it's helpful to know what to plan for. I'm not sure whether GAPS or SCD is better--or paleo? When you're talking about so much effort and money, it seems like a major decision! But thank you for the info, it gets me one step closer to a decision.
  5. I suspect I may have SIBO or a yeast overgrowth, but I have yet to be tested (scheduled for early 2012). My doctor told me to go on probiotics to help the healing process. I've done so, but I'm concerned about whether I should be taking them if I do have SIBO. Does anyone know the impact of probiotics on SIBO? Either way, should I also be taking enzymes? Thank you!
  6. I'm considering embarking on the GAPS diet for gut-healing. I have developed multiple intolerances and still have many flare-ups--I never know if it's residual gut damage/antibodies or CC (I've only been gluten-free since July). In either case, I'm thinking I need to do something more intensive and I'm considering GAPS. What are your experiences with GAPS? What challenges did you face? What methods made things easier? Did you stick to the full diet plan?
  7. I've been gluten-free since July. Since then I discovered a nightshade intolerance and removed all nightshades from my diet (strictly). Because my recovery has been a little slow, I'm starting to cut out dairy and other inflammatory foods, but I haven't been super strict about it. There's not question I have flare-ups when I eat a lot of dairy, but a little doesn't seem to have that big of an impact (maybe a little discomfort for a couple of hours). How far does it set me back to eat inflammatory foods in general, especially dairy? Do I have to cut it out entirely--no exceptions--for the effort to have an impact on my healing process? thanks!
  8. Went gluten-free in July and have dropped nearly 20 lbs--before that I had been steadily gaining weight because I was so sick and wasn't active at all. I think I have gained muscle mass as well because I'm able to do yoga again and move around a bit. I am worried about falling underweight now though--I'm always starving, and I can't eat much because I have hypo and a nightshade intolerance, too. Pretty limiting. I think the weight loss is partially just from those restrictions, I can't just grab a snack off the shelf or drive through McDonald's. But I've wondered whether it is also related to some other changes in my body (absorption, reduced swelling, etc). The reduction in abdominal swelling was the first thing I noticed, I dropped a full pant size in a very short period of time, but I'm also losing weight and dropped almost another full pant size since then. I feel like a skeleton!
  9. I'll look into GAPS and maganese. Thanks for the suggestions--I'm thinking I should have a naturpath look over my lab work to tell me what vit deficiencies I really have. I fear the traditional docs look past some of this. AVR, my ataxia gets worse when I'm gluten-exposed, definitely, although part of that is hypo related (I'm sort of like a zombie in terms of cognition and movement when I've been glutened). Coffee doesn't help either (I know I need to cut it out but really, can't I have a vice? But because I'm not very far into the healing process yet, it's difficult to say what makes it better or worse right now. And I just learned about ataxia, and started connecting the dots, so my awareness of symptoms/environment connections is rather new. I should probably do a symptom diary. What about you? Have you discovered any connections? And if you don't mind, what are your ataxia symptoms like? I have muscle weakness/twitching, peripheral neuropathy (primarily escalated by heat exposure), vision issues, balance/vertigo/depth perception, numbness/cold, raynaud's like symptoms, headaches.
  10. I definitely will. I am skeptical too; the docs where I live don't seem to know anything about celiac/gluten intolerance--sometimes I think I know more than they do. I'm concerned the neuro won't be open to gluten ataxia, even though it's been documented. That's just my experience lately, the docs around here won't take this stuff seriously unless you have the standard blood work/biopsy affirmation, which I did not. Plus, HMO's make it impossible for docs to stay up on the latest stuff. My PCP is on board, but he can only do so much. *sigh* Can you tell I'm a little jaded? But I'll certainly let you know what happens!
  11. I removed gluten from my diet in July and have felt so much better, and then all of a sudden I get sick. I'll stay sick for about a week, and then I feel better again--and then BAM. Sick again. It's been difficult to discern whether this is due to residual damage (my gut hasn't had time to heal), or whether I'm dealing with super sensitivity. I have had some obvious glutenings (off-brand tylenol, for instance), but other times it's not so clear where it's coming from. Not to mention they haven't been able to confirm my diagnosis yet, so I still always question in the back of my mind whether gluten-free is even the issue for me. Very frustrating! It is true that the more processed foods I eat, labeled gluten-free or not, I end up sick in the end. I had some Seeds of Change Quinoa the other day, no gluten ingredients, but got so sick. I looked up their gluten statement, and sure enough, they don't clean their lines between batches. So I guess that was it. But then I think, could it have been the gluten-free rice crispies I ate? Or maybe someone double-dipped in my PB jar at work? Could it be the scratched non-stick pans in my kitchen at home, which I share with gluten-eaters? It's so scary to think about all of the possibilities. I guess eliminating processed foods for a while and then putting them back in one at a time is probably the best way to go!
  12. Thank you for your replies! I'll look into L glutamine. PricklyPear, my hypoglycemia escalated last fall and landed me in the emergency room with a hypoglycemic attack--I thought I was having a stroke (facial numbness, cold sweats). I insisted that my dr. do a full blood glucose test even though they fluffed it off, and this is what started my path to removing gluten. My blood sugar dropped down into the 50s during the test and I almost passed out in the lobby where they had me wait. Make sure to accept the bed they offer you in the lab during the testing period! I have to eat carefully regulated fat/protein/carb meals every 2 hours. When I have a gluten-exposure, by blood sugar is terrible--it yo-yos, and my vertigo, dizziness, and blurred vision return. During the worst of it, I could hardly sit upright for fear of falling over. AVR, I will definitely look into the probiotics, just not sure where to go? Health food stores? I have been taking iron supplements for almost a year now, and of course a multi and some C and D. this time last year I was nearly bed-ridden with hypo, body pain, stomach problems and fatigue. Doing a lot better now, as long as I don't have a gluten exposure. I did stop eating high-lactose dairy this week. My stomach only "burns" (not sure I would call it that though??) when I have a gluten exposure, as far as I can tell. I have nausea, cramping, and D for about a week, plus all of the peripheral symptoms. Then I feel great again. I also have some ataxia concerns, seeing a neurologist next month. But despite all this, and all of the doctors, I don't feel like there is anyone committed to helping me through the gut-healing process, you know? they all just sort of scratch their heads because they can't throw pills at it. I have heard kinesiologists are helpful.
  13. what can I do to improve the gut-healing process? I don't necessarily want to speed it up (I can be patient), but I want to know how best to support it. My doctors aren't any help in this area. I went gluten-free in July, but since then I've found gluten in OTC's I was taking, plus cross-contamination episodes. So I probably have only been gluten-free for a few weeks at this point (how frustrating!!). What can I do to help my gut heal? Do I need to remove dairy? I am severely hypoglycemic (reactive, need a lot of protein and low carbs), iron-deficient anemic, malabsorption/malnourished, and losing weight faster than I'm comfortable with. I'm hungry all the time and don't want to take dairy out of my diet if I can avoid it. What else can I do? Probiotics/Enzymes? What kinds and how much? What kind of practitioner should I seek out for help locally--Naturopathic? Kinesiologist? Thank you!