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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.


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About Jewels50

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  1. I recently watched a so called dedicated fryer get cross contaminated in a fast food restaurant that many with Celiac disease trust. I was so disappointed!! This was my one spot I thought I could eat at. How safe is it really for those of us with Celac disease to eat out? Cross contamination is a big issue unless the restaurant is totally gluten free.
  2. I understand your counterpoint and that is one of the reasons that I made the conscious decision to eat at Five Guys. Until my most recent experience. In spite of my telling the cashier of my "allergy", in spite of telling the employee doing the cross contaminating, THIS particular Five Guys restaurant employees were obviously not properly educated and/or trained. And the same person/manager runs 11 more. : (. Which ones and are the employees of those being trained and educated similar to the one I had the bad experience with? Cross contamination is a big issue for those of us with Celiac disease. And handling the buns (putting them on the grill) and then reaching into the bag of uncooked french fries with the same gloves is a source of cross contamination for the fryer and it's entire contents. It didn't stop there, she wrapped the burgers with buns, handled the condiments and placed the uncooked burgers on their dedicated grill. Everything in the area IS cross contaminated unless it is thoroughly cleaned. Can fast food chains really be "gluten free"? It seems that some are jumping on the gluten free band wagon without really taking the time to make sure that is actually happening by educating and training employees BEFORE they start working. Also, how can they possibly make sure that employees are actually implementing the education and training while working? All it takes is one untrained employee handling the buns and then putting fries in the fryer. There is a thread on here about dedicated fryers. Well worth the read.
  3. Cross contamination is an issue with Five Guys. I recently had a bad experience where one untrained, uneducated employee contaminated the "dedicated" fryers when she put buns on the "dedicated" grill and then used the same gloved hands to reach into the bag of fries and put them in the fryer. She touched the condiments, wrapped burgers (with buns) with those same gloved hands. She was trying to do it all by herself, I guess. I alerted them of my allergy (I actually have Celiac disease) and even went so far as to ask her to please change her gloves after touching the buns. She did, for a while. Sad, but I won't be eating at a Five Guys anytime soon.
  4. Recently, I went to a Five Guys and Fries. I let them know at the register of my "allergy". I actually have Celiac Disease. I watched, as I usually do, as they cooked and prepared the food. There was one employee who, for whatever reasons, would not stay in her station. She was all over the place. She'd touch the buns and then use the same gloved hands to reach in the bag, pull out the fries and put them in the "dedicated" fryer. I asked the employee to please change her gloves after touching the buns, which she did, but stopped doing after she thought I wasn't paying attention. I chose not to eat my meal. Yes, I called Five Guys 1-800 number and spoke with a person there. I got an e-mail from the general manager (?) who seemed genuinely concerned BUT he's busy with 11 Five Guys and a couple of other entities. He offered to "send me a gift OR refund the price of my meal if I still had the receipt." Really?!? Wow. No, just train and educate your employees! Here is the response I received from Five Guys on FaceBook: Five Guys Burgers and Fries Hi Julie, Thanks for reaching out. I'm sorry to hear about your recent experience and I apologize on behalf of the staff at the Morehead City location. Though we wish we could prevent cross contamination, this is possible. When someone writes in to us, we are sure to highlight that our rolls, malt vinegar and fry sauce contain gluten and although we do our best to only toast the rolls on a separate grill, there is always a chance for cross contamination. Our fry sauce is only served in Utah. Our French fries are just potatoes that are soaked in water, then cooked in peanut oil. This fryer is dedicated and nothing else is fried in this oil. Again, I'm sorry about your recent experience and hope you can give us another chance. Thanks, Kenneth As it was pointed out in another thread, fast food restaurants are best left as off limits to those of us with Celiac Disease. I thought that Five Guys was "different" with their dedicated fryers, but after my experience, I will not take a chance by eating there again.
  5. No one told me about the withdrawal! But boy, I did have it. And as a crutch, I ate gluten free chocolate chp cookies only to have a sugar crash later. It has been about 3 months since finding out that I have Celiac disease. I am 50 so relearning how to eat has been difficult for me. I had a voracious appetite and overate to compensate. And yet, I'd lose weight. I have lost even more weight now and am too skinny for my height and age (118 bs., 5'8"). I am going to see a dietician next week for some education on what I can do. And I am angry. I complained to my regular Dr. for over 3 years about the weight loss, the abdominal pain, the diarrhea. Her best medical advice to me was not to complain because I was thin and she wanted to be thin like me. (Insert swear words here.) It wasn't until I was getting a routine colonoscopy that the GI Dr. Recommended strongly that I be tested for Celiac. The blood test came back positive, so a biopsy was done and also came back positive for Celiac. I have had the symptoms my entire life. The infertility, miscarriages, a full term stillborn son, migraines, horrific periods, anemia, depression, the awful skin rashes, diarrhea, onstipation, terrible abdominal cramping...and the best te doctors could tell me was that I had IBS, let myself get too stressed out, and that it was all in my head. So yes, I am dealing with some anger. I now this is a process and this too shall pass. Thanks for letting me vent. I am diligent about being 100% gluten free and this site has been extremely helpful! A big thanks to all of you! Julie