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squirmingitch

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squirmingitch last won the day on January 8

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About squirmingitch

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    Female
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    Gardening, birds, bees, butterflies and nature in general. Nature is a genius!
    "If there are no dogs in Heaven, then when I die I want to go where they went." ~~~ Will Rogers
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  1. I am wondering why you're asking specifically about NCGI. Have you been tested for celiac disease?
  2. And make sure to keep him on a normal gluten diet!!!!!! VERY important!!!!!!
  3. You don't NEED to eat more than what cyclinglady linked you to but by all means, if you want to have a gluten farewell glut in case you DO have celiac, then this is your chance. Cyclinglady didn't tell you but she makes no secret of the fact that she went whole hog on sourdough bread in the time leading up to her endoscopy. If I recall correctly, she said she ate a loaf per day. So pick your favorites & pig out.
  4. I am with GFinDC's interpretation of your test results. That is a positive result. Know how I know? Learned that little piece of information in grade school in math class. This mark: < preceding any number means less than; it does not mean = to. Thus, <20 means any result below 20 is a negative result (that would be 0 through 19) and any result that is equal to or greater than 20 is a positive result. I say fine, do whatever you want to do; it's your life and your health and you will be paying the piper, not us. You are adamant in your beliefs and nothing anyone has said or linked you to has changed your mind so go ahead & do what you seem to want us to tell you to do. Don't have the endoscopy & find out for sure if you are celiac or not. Instead go your route & go gluten free for a few years & then have a little bit of gluten now & again. I hope it doesn't kill you.
  5. Furthermore, you were gluten free for 5 long years & unable to complete the gluten challenge for the endoscopic biopsies so of course it was negative. The specialist is an idiot! As Karen linked, you had a positive biopsy for dh & that is definitive. No further testing is needed to confirm a dx of celiac. You might wish to teach the specialist though by sending him a copy of what Karen linked as well as this: http://www.cureceliacdisease.org/faq/what-is-a-gluten-challenge/
  6. Could you please give a link to that information DebNC84? What kind of supplements? For what purpose? My husband & I were beekeepers and never were the bees given any supplements other than sugar water to tide them over during lean times. The only other thing they were given to eat were antibiotics if needed and those were administered by mixing with powdered sugar. Bees don't eat wheat flour or soy flour so that's why I am asking where you found that information.
  7. When you get home from work, turn the oven on @ 400 degrees, line a pan with tin foil, throw chicken wings on it, salt & pepper & go get changed out of work clothes etc.... 30 minutes is all it takes for the wings to be done. When cool, throw them in a ziplock & toss in the freezer. Take out as many as you want & nuke them when you want to eat them. For that matter, you could skip tin foil in the pan & just buy some of those disposable foil pans. It's so simple & requires almost no effort. If I'm going to have some of the wings right away, then I wash a potato, dry it, slice into 4 quarters lengthwise & rub with olive oil. I lay those in the pan with the chicken. All done at the same time.
  8. Dear egs1707, Please read this with an open mind. My intent, truly, is to try to help you. Until now, I have pretty much stayed out of the fray here on this thread although I admit to having been tempted many, many times to say my 2 cents worth. I will preface my remarks by admitting that I am not good at diplomacy. I tend to be blunt but please believe me when I say that I am not trying to hurt you in any way. Here goes...... I have rarely "seen" anyone as consistently negative as you. You take every single thing in the most extreme negative possible. Over the course of reading your posts I have gotten the feeling that you have always been this negative. If not always, then for many, many, many years. You talk of how quickly your friends dropped you when you said you have a problem with gluten and how they made fun of you & made you the butt of jokes. We all said those kind of people are no friends at all & you are well rid of them. Now I rethink that and have to think your negativity for so many years is the true reason these people have turned on you. Perhaps it really isn't about your food intolerances at all but that just provided the final excuse for them to "get rid of you" & kick you to the curb for once & for all. I still don't agree that being so mean & nasty is a good way to treat anyone but they may feel they have been driven to it by the way you are such a major downer 24 hours a day, 7 days a week, 365 days a year. Ones mental state affects their physical state in a huge way. If you continue to look at everything through a black cloud then I fear you will never be healthy physically. You need to try very hard to turn your outlook around. Can you try to say ONE good thing each day? Start with just ONE thing. Then make it 2 positive things each day. Then 3 and so forth. Then also begin to NOT make a negative statement that you were going to make. Just keep that comment to yourself & don't voice it. Then try to keep 2 negative comments from being voiced, then 3 & so forth. You see, we get into habits and it seems your habit for negativity is deeply ingrained at this point. IMHO, I believe you can wean yourself off if you try hard.
  9. HI Shollie, soory I'm so late to the party but I've been pretty busy with some things in my life & didn't have time to post. 60% of those with dh test negative on the celiac blood panel. You'll need to find a derm who is experienced in dh. So very many derms dismiss it out of hand and say it's eczema, psoriasis, bed bugs, & so on & so forth. They prescribe creams & pills that don't do any good if one has dh. The problem is that it's usually steroid creams or meds & the use of those skew a dh biopsy & give a false negative. If you've taken oral steroids or steroid shots within 2 months prior to a dh biopsy then you most likely will get a false negative. The biopsy MUST be taken ADJACENT to a fresh lesion NOT ON ONE!!! This is of the utmost importance. Scratching can destroy the pattern pathology will be looking for so try not to scratch. yeh, I know, easier said than done. You still have to be eating a regular gluten diet even for the dh biopsy or you'll get a false negative. Why go for a dyed in the wool dx? Because you're going to have a child and you might end up having many children. Celiac is a genetic disease, so your kids could present with celiac at some point. If you have an official dx of celiac then it will be sooooooooooooooooooooooo much easier to get your kids tested. All first degree relatives should be tested every 2 years in the absence of symptoms and immediately if symptoms present. The best way to learn is just to read thread after thread after thread in this dh section.
  10. Try ditching the oats. Something like 8% of us can't tolerate oats even purity protocol grown oats. Also I will echo what cyclinglady said about whole foods. Eat strictly whole foods for a good 3 months & see how you feel.
  11. So from what you've said, I agree it sounds like the weight was celiac putting it on you. Just converting whatever you took in into fat, meanwhile everything that needed nutrients was starving. Ha! You might just find out in the end that you're naturally a skinny mini. I have to mention that from my perspective, it seems like your anxiety is a good bit less. Am I right? Do you feel that way? This post did not have that screaming desperation, panic edge to it. It really struck me how much more calm & level you've been on this thread. Before when you would post, it was like EEEEEEEEEEEEEEEEEEEEEEEEEEEEKKKKKK!!!! I'm FREAKING OUT! This time, it was like you are concerned and questioning but not "over the top".
  12. Let's hope so. I've done this kind of thing before and I'm sure it won't be the last time. Never the less, the newer comments may help someone else who comes along & reads this thread.
  13. I haven't been able to find any plantains yet. Grrrrrrrrrrrrrrrrrrrrrrrrrrrrrr!!!!!!!!!!!!!! This is sort of a po dunk town and sometimes it can be hard to find certain things. I have my eyes open for them though and as soon as I find some I'm going to try it. Thanks for the tips though! Ohhhhhhhhhh, the fried ones with cheese & sauteed onions or fried meat versions...... You're making my mouth water.
  14. How tall are you? You've told us your weight but the weight without the height gives us nothing to go on. For example, I am 5'2", if I weighed 148 I would be Miss Tubby Chubby! Another thing is, I think as time progresses, I believe your weight will settle into something normal for you. Remember, big changes are going on in your body now. Think of it like being pregnant if you will. You are no longer eating gluten & so your body is now saying, Oh Yeah! I can start healing!!!! Woooo Hooooo!!!! It takes energy to heal. A LOT of energy. Your body is trying to repair not only damage to your gut but damage that was caused elsewhere throughout your body by not absorbing the nutrients you were eating. Your body is now using all available calories and resources to put to use repairing everywhere there was damage. It isn't going to let you have any calories for making fat at the present time. I believe that once you've healed then you may find you are gaining too much weight & have to go on a diet or maybe not -- you won't know until you get there. You might be a naturally thin person. We just don't know --- you won't know until you get to that point. Who knows how long gluten was affecting your body; months, years, a decade, more? No one can really say. Undiagnosed celiacs can be as fat as a hippo or as skinny as a toothpick or anywhere in between. Malabsorption can make people put on fat (weight) OR it can cause them to lose weight. Every person is an individual but malabsorption simply means your body is not PROPERLY able to make use of the nutrition you are putting into it and this can result in fat or skinny or something else. It sounds like you are pretty good at eating a well rounded diet. As long as you're not pigging out on junk/processed food all the time then chill out & don't freak out. Remember when I said it was going to be a roller coaster for a while? Apply this same to the way you think about your weight gains or losses. Roller coaster! I think you've pretty well learned by now how to tell when a particular food doesn't agree with you yet and you then avoid that food. That's GREAT. I agree with everyone else that whole, unprocessed foods will give you optimum ability for healing but I certainly don't think you need to be rabid about never eating some gluten-free crackers or bread --- you're 3 months in now --- I wouldn't be saying that if you had just started the diet a week or two ago.