Celiac.com Sponsor:
Celiac.com Sponsor:




Get email alerts Get Celiac.com E-mail Alerts




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

squirmingitch

Advanced Members
  • Content count

    3,715
  • Joined

  • Last visited

  • Days Won

    63

squirmingitch last won the day on January 8

squirmingitch had the most liked content!

Community Reputation

426 Excellent

About squirmingitch

  • Rank
    Advanced Community Member
  • Birthday

Profile Information

  • Gender
    Female
  • Interests
    Gardening, birds, bees, butterflies and nature in general. Nature is a genius!
    "If there are no dogs in Heaven, then when I die I want to go where they went." ~~~ Will Rogers
  • Location
    United States

Recent Profile Visitors

17,945 profile views
  1. HI Shollie, soory I'm so late to the party but I've been pretty busy with some things in my life & didn't have time to post. 60% of those with dh test negative on the celiac blood panel. You'll need to find a derm who is experienced in dh. So very many derms dismiss it out of hand and say it's eczema, psoriasis, bed bugs, & so on & so forth. They prescribe creams & pills that don't do any good if one has dh. The problem is that it's usually steroid creams or meds & the use of those skew a dh biopsy & give a false negative. If you've taken oral steroids or steroid shots within 2 months prior to a dh biopsy then you most likely will get a false negative. The biopsy MUST be taken ADJACENT to a fresh lesion NOT ON ONE!!! This is of the utmost importance. Scratching can destroy the pattern pathology will be looking for so try not to scratch. yeh, I know, easier said than done. You still have to be eating a regular gluten diet even for the dh biopsy or you'll get a false negative. Why go for a dyed in the wool dx? Because you're going to have a child and you might end up having many children. Celiac is a genetic disease, so your kids could present with celiac at some point. If you have an official dx of celiac then it will be sooooooooooooooooooooooo much easier to get your kids tested. All first degree relatives should be tested every 2 years in the absence of symptoms and immediately if symptoms present. The best way to learn is just to read thread after thread after thread in this dh section.
  2. Try ditching the oats. Something like 8% of us can't tolerate oats even purity protocol grown oats. Also I will echo what cyclinglady said about whole foods. Eat strictly whole foods for a good 3 months & see how you feel.
  3. So from what you've said, I agree it sounds like the weight was celiac putting it on you. Just converting whatever you took in into fat, meanwhile everything that needed nutrients was starving. Ha! You might just find out in the end that you're naturally a skinny mini. I have to mention that from my perspective, it seems like your anxiety is a good bit less. Am I right? Do you feel that way? This post did not have that screaming desperation, panic edge to it. It really struck me how much more calm & level you've been on this thread. Before when you would post, it was like EEEEEEEEEEEEEEEEEEEEEEEEEEEEKKKKKK!!!! I'm FREAKING OUT! This time, it was like you are concerned and questioning but not "over the top".
  4. Let's hope so. I've done this kind of thing before and I'm sure it won't be the last time. Never the less, the newer comments may help someone else who comes along & reads this thread.
  5. I haven't been able to find any plantains yet. Grrrrrrrrrrrrrrrrrrrrrrrrrrrrrr!!!!!!!!!!!!!! This is sort of a po dunk town and sometimes it can be hard to find certain things. I have my eyes open for them though and as soon as I find some I'm going to try it. Thanks for the tips though! Ohhhhhhhhhh, the fried ones with cheese & sauteed onions or fried meat versions...... You're making my mouth water.
  6. How tall are you? You've told us your weight but the weight without the height gives us nothing to go on. For example, I am 5'2", if I weighed 148 I would be Miss Tubby Chubby! Another thing is, I think as time progresses, I believe your weight will settle into something normal for you. Remember, big changes are going on in your body now. Think of it like being pregnant if you will. You are no longer eating gluten & so your body is now saying, Oh Yeah! I can start healing!!!! Woooo Hooooo!!!! It takes energy to heal. A LOT of energy. Your body is trying to repair not only damage to your gut but damage that was caused elsewhere throughout your body by not absorbing the nutrients you were eating. Your body is now using all available calories and resources to put to use repairing everywhere there was damage. It isn't going to let you have any calories for making fat at the present time. I believe that once you've healed then you may find you are gaining too much weight & have to go on a diet or maybe not -- you won't know until you get there. You might be a naturally thin person. We just don't know --- you won't know until you get to that point. Who knows how long gluten was affecting your body; months, years, a decade, more? No one can really say. Undiagnosed celiacs can be as fat as a hippo or as skinny as a toothpick or anywhere in between. Malabsorption can make people put on fat (weight) OR it can cause them to lose weight. Every person is an individual but malabsorption simply means your body is not PROPERLY able to make use of the nutrition you are putting into it and this can result in fat or skinny or something else. It sounds like you are pretty good at eating a well rounded diet. As long as you're not pigging out on junk/processed food all the time then chill out & don't freak out. Remember when I said it was going to be a roller coaster for a while? Apply this same to the way you think about your weight gains or losses. Roller coaster! I think you've pretty well learned by now how to tell when a particular food doesn't agree with you yet and you then avoid that food. That's GREAT. I agree with everyone else that whole, unprocessed foods will give you optimum ability for healing but I certainly don't think you need to be rabid about never eating some gluten-free crackers or bread --- you're 3 months in now --- I wouldn't be saying that if you had just started the diet a week or two ago.
  7. Hah! nervous poops...... That's what we thought my husbands were & in between when he was constipated, we thought that was the opposite b/c he'd been through so much nervous pooping that he was emptied out for a while. Wrongo! Celiac was the culprit for both. There are some 300 symptoms associated with celiac disease.
  8. Just to let you guys know..... The OP probably will never read your recent posts as this is a thread from 2011. I doubt she's around anymore.
  9. I concur with raven & cyclinglady. I will repeat..... CONTINUE EATING GLUTEN UNTIL ALL TESTING IS FINISHED INCLUDING AN ENDOSCOPIC BIOPSY.
  10. Exactly! One has to find this out for oneself. Like cyclinglady says.... it could be either.....or even both. I found out I am extremely sensitive to ANY trace gluten. No certified gluten free foods for me even those that don't contain any other "additives". I am presently on the Fasano gluten contamination elimination diet which is very limiting. Only FRESH fruits & veggies, FRESH meats, no cured meats, unflavored milk & yogurt, aged unflavored cheeses, nuts IN THE SHELL, dried beans b/c you can sort & wash them. No canned or frozen fruits & veggies. I am doing better on this diet than I ever was before! In other words, it eliminates any chance of even getting .05 ppm of gluten.
  11. Celiac disease is not caused by the altering of wheat. That's an old internet falsehood that keeps getting repeated over & over & over again. It wouldn't matter if we were eating wheat that was grown in Egypt 10,000 years ago, celiacs would STILL be negatively affected by it. What it actually is, is the PROTEIN in the wheat -- that's where the problem lies; it's not about different strains or varieties or hybrids of wheat, it's the actual protein which is contained within the wheat kernel.
  12. Here's a great video by Dr. Fasano on the subject:
  13. I'm glad you posted gluten-free girl. A lot of readers will relate to that scenario. We've had many members post much the same type of situation as you had. Honestly if it were me, I wouldn't expect my family to cater to my celiac. I think (just IMO) we should take responsibility for ourselves & the food we eat. Every time we entrust that responsibility to someone else we are playing Russian roulette. Bring your own food & you can eat safely and enjoy the time with family. After all, is it all about the food or is it about spending quality time with the family??? It takes a long, long time for us to get all the rules down about eating gluten free & how to prevent cross contamination. How in the world can we expect others, who do not have celiac, to learn all the rules & follow them on the few times per year we all get together?
  14. It sounds like a good idea to get tested. Hopefully you'll know tomorrow. Do you know what tests were run?
  15. You have a gluten free household right? Expanding upon Awol's idea of a teen..... if that teen could come in right about the time the kids get home or you get home & cook simple dinners....if you house is gluten free, they can't screw it up with gluten. Stews, soups, veggies, salads, baked chicken, set the table. They could keep an eye on the kids & puppy while you get an after work nap. On the weekends maybe they could come in & do some house cleaning or laundry.