• Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes


Advanced Members
  • Content count

  • Joined

  • Last visited

  • Days Won


squirmingitch last won the day on January 17

squirmingitch had the most liked content!

Community Reputation

528 Excellent

About squirmingitch

  • Rank
    Advanced Community Member

Profile Information

  • Gender
  • Interests
    Gardening, birds, bees, butterflies and nature in general. Nature is a genius!
    "If there are no dogs in Heaven, then when I die I want to go where they went." ~~~ Will Rogers
  • Location
    United States

Recent Profile Visitors

20,739 profile views
  1. Your numbers should not be going up at all. You are getting gluten somewhere. Do you eat out? Have you read the Newbie 101 at the top of the coping section? That will help you to ferret out how you may be getting glutened. Do you have a gluten free household or is it a shared household? Do you read ingredient labels?
  2. Ok tessa! Point taken and I will remember that too.
  3. My husband & I used to be beekeepers. It would be almost impossible for wheat protein to get into honey. The honey is inside the hive; it's not like it's laying out in the open in a plate or a bowl. Here's a hive.: https://www.mannlakeltd.com/10-frame-traditional-growing-apiary-kit-wood-frames-painted?gclid=CjwKCAiA4vbSBRBNEiwAMorER1htsezzCA5djegusWEGx_DzRHG4xePYQIxxd1paGZy4ibxMR_dSFxoCFUoQAvD_BwE The bees have a narrow opening at the bottom of the hive where they enter & exit & when they enter then they climb upward inside the hive. The bottom section is the brood chamber where the queen lays eggs & eventually become bees. At the top of that section is something called a queen excluder which is generally a metal screen type thing with holes in it. The queen is larger than the workers so the holes are smaller than the queen in order to keep her in the brood chamber. This is so she doesn't go laying eggs all over the hive. The workers fit through the excluder allowing them to go to the supers (boxes) above where the nectar is deposited in honeycomb & turned into honey & when a cell is full, they cap it off. You've seen honeycomb before. So when harvest time comes, the beekeeper takes the full (of honey) supers off the brood chamber & replaces them with empty (of honey) supers so the bees can start filling those up. The full supers get taken to what we call the honey house which is where extraction takes place. Here's a YouTube video of honey extraction. As you can see, this is not anywhere that other food is being made or prepared. Other food does not get done in honey production. It's a class all it's own. There's not going to be any wheat barley or rye there.
  4. You're most welcome. Let us know how things go along okay? Also, you might want to start getting prepped for going gluten free. Start learning now so it isn't so overwhelming later. Here's a link to the Newbie 101:
  5. Yes! You did it! You hung in there through thick & thin. Great going CL.
  6. You're welcome. Actually there are 6 tests in the full panel but that is neither here nor there now that you've turned up positive on 2 of the 4 you were given. It only takes 1 positive to trigger moving to the endoscopic biopsy. I don't think I've ever seen anyone be positive on all the tests across the board. I'm not even sure that's possible but logic tells me it has to be possible. They are just different tests --- some people test positive on the IGG and some test positive on the IGA. I am going to repeat this again b/c so many people get told by their docs that they can quit eating gluten now. Do not believe them!!!! You must keep eating gluten each day okay? Otherwise you are almost sure to have false negative biopsies. You don't have to eat a lot. Just a slice of bread or a couple crackers will do it.
  7. You have 2 positives. Yes, it indicates celiac. The next step is an endoscopic biopsy. Be sure to keep eating gluten each & every day until the biopsy is over with.
  8. dermatitis herpetiformis

    Yes, you absolutely can develop dh especially if you've gotten cc'd. However, dh almost always presents bilaterally. Since you said you have it only on the back of one knee; I tend to go with Karen's thought. At any rate, you should try to do much better about not getting cc'd. Buffets are ridiculous for celiacs to eat from! That's a cardinal NO-NO.
  9. Dermatitis herpetiformis

    Everyone is different. There is no ironclad time frame. Could be a few weeks, could be a few months, could be 2 years, could be 5 years.
  10. You're welcome! Just another example of heeding our mantra which is: READ EVERY LABEL EVERY TIME. You never know what surprise may be in store for you!
  11. From Gluten Free Watchdog: Urgent Product Warning for Jane Bakes Cookies At least two varieties of the brand Jane Bakes cookies are labeled gluten-free yet list whole wheat flour as the first ingredient—Hazelnut & Chocolate and Coconut & Caramel. If you currently have any variety of labeled gluten-free cookies from this manufacturer in your pantry, please read the ingredients list carefully before eating. A consumer first notified Gluten Free Watchdog about this product on December 26th. The cookies were a gift to the consumer. The person purchasing the cookies relied on the gluten-free label. GFWD was in touch with the manufacturer on December 27th. At this time, the manufacturer stated in email correspondence that they would alert their distributor to remove product from store shelves and that they would contact the FDA. The consumer contacted GFWD again on December 31st to alert us to a second variety of cookie labeled gluten-free yet listing whole wheat flour as the first ingredient. The consumer also stated that both varieties of cookies remained on store shelves. GFWD sent a follow-up email to the manufacturer on December 31st. We have not heard back. The consumer contacted GFWD again on January 6th stating that a new delivery of cookies arrived at a local store. Coconut & Caramel cookies labeled gluten-free yet listing whole wheat flour as the first ingredient remain on store shelves. That labeled gluten-free cookies listing wheat flour in the ingredients remains on store shelves is inexcusable. If you are reading this and you have not yet commented in support of our citizen petition requesting that the FDA establish a specific protocol for increased surveillance, investigation and enforcement of potential Facial Misbranding violations under the Gluten-Free Labeling Rule, please do so now at https://www.regulations.gov/docket?D=FDA-2017-P-5118 Thank you to the almost 1,200 of you who have already commented. Thank you to the national consumer groups, Center for Science in the Public Interest, Beyond Celiac, and National Celiac Association for your support of this petition. We would also love to have the support of the other two national celiac disease consumer groups. It isn’t too late to join us. On behalf of everyone with celiac disease and other gluten-related disorders who require properly labeled gluten-free foods, we urge you to do so today. Thank you. Note: If you do not follow Gluten Free Watchdog on Facebook or Twitter please do so. Product warnings such as this one tend to be posted on social media so that they can be quickly shared.
  12. Gluten & Anxiety?

    Yep, anxiety is one of the most reported symptoms.
  13. Off prednisone.. rash returned

    If you don't stop getting glutened then you're going to continue to get the rash if it's dh. I'm sorry but trying to avoid gluten is not good enough; you absolutely MUST not eat any gluten. So you ate the Lindor chocolates without reading the ingredients. Bad move. We have a mantra: READ EVERY LABEL EVERY TIME And if you have dh, then you are celiac and that means every time you get glutened your villi gets damaged.
  14. Just looking to talk

    You're so welcome! Overly emotional. Um, yeah, actually lots of us with celiac disease can be overly emotional when we've been glutened. It's a feature! Woo hoo! Not to mention the fact that this is all very new to you & it does tend to make you feel like your life has just been turned upside down. Realize too that your friends & family will need time to digest (haha) this whole celiac thing as well. You're going to feel a little shaky & unsure of yourself. That's normal. This is a big deal. You will undoubtably end up going through a grieving process. I think all of us did. I recall I was all gung ho right from the get-go & then after things had time to sink in a little bit, I was scared, unsure, thrown off balance. A sense of humor is worth it's weight in gold in dealing with this. Also of great value is determination & persistence. You'll get there!