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About RandallPotter

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  1. She is fantastic. Diagnosed me when another couldn't. Highly recommend her. Highly.
  2. Time for another doctor. You can contact the Celiac foundation to see what doctors they recommend. That's what I did and I found a new one, first appointment is next week. The doctor has to do whatever you ask. Most patients don't know that. If you want more tests, and they won't endanger you, they have to give them to you. If they refuse then move on. I want to encourage and empower you. A doctor does not control your medical life, no matter that they are a "doctor" - that doesn't mean they are right. My doctor diagnosed me with IBS without testing for Celiac, then told me to go Gluten free before my blood test... big no-no's. Here's the website for the Celiac foundation: http://www.celiac.org/ I just called and asked, they also have a section where you can search for a doctor. Prayed for you!
  3. I'll follow up with some endoscopy related reference materials: http://glutenfreeworks.com/gluten-disorders/celiac-disease/diagnosis-and-testing/ http://www.mayoclinic.com/health/celiac-disease/DS00319 http://www.webmd.com/digestive-disorders/celiac-disease/celiac-disease-exams-and-tests "If you have already started a gluten-free diet before these tests are done, the doctor may suggest you or your child eat a certain amount of gluten before the tests." "How Long Does it Take to Heal After Removing Gluten?" http://glutendoctors.blogspot.com/2010/04/healing-time-after-removing-gluten.html ( I'm not a doctor and my response shouldn't be taken as a medically certified expert advice. )
  4. Do not listen to your doctor. ( Website sources at the end of this post. ) I experienced the same thing with mine and my nurse. As for an "official" reason... Check out the National Institutes of Health's site on Celiac (.GOV) It says that for all tests to be done accurately that a person cannot be gluten free before the tests are conducted. This is for all tests whether blood or scope. I was gluten free for a week, and in the months prior to that I had tried being vegetarian and following a pescatarian diet. My symptoms had improved with these obviously. I read that your body can start healing your intestine within 2 weeks. After being gluten free, "glutening up" doesn't have much affect as the blood test is testing antibodies. These antibodies are built up over time by your body and subside if they are not needed. I suggest a new doctor. I followed through with my endoscopy with my current doctor merely because we had met our deductible for the year and if it comes back positive well that was a cheap way to find out. I have another appointment with a doctor the celiac foundation recommended after the first of the year. With all of that said, then another site says if you have been gluten free for a while and are doing fine, it probably isn't the best idea to reintroduce it to your system. http://www.celiac.com/articles/22446/1/Do-I-have-to-Re-introduce-Gluten-in-Order-to-have-an-Accurate-Gluten-Sensitivity-Test-Done/Page1.html NIH: http://digestive.niddk.nih.gov/ddiseases/pubs/celiac/ "Before being tested, one should continue to eat a diet that includes foods with gluten, such as breads and pastas. If a person stops eating foods with gluten before being tested, the results may be negative for celiac disease even if the disease is present." This website: http://www.celiac.com/articles/57/1/Interpretation-of-Celiac-Disease-Blood-Test-Results/Page1.html "First, and this applies to any of the blood tests, you must currently be on a gluten containing diet for the tests to be accurate. antibodies are produced by the immune system in response to substances that the body perceives as threatening. The immune response that your body produces is its response to being exposed to gluten in the diet and its subsequent effect on the intestinal mucosa. If there is no gluten in the diet, then there is no response that we can measure. A brief change in diet will not have a noticeable effect. If you have been gluten free for a week or so, it will not make any great difference. The response might be marginally less but the difference is insignificant because the body has not had time to respond to the change. Conversely, if you have been gluten free for a protracted period of time and decide to be tested, a brief challenge of a couple of weeks is not enough to elicit a response and get an accurate test. " Blood testing not very accurate: http://www.celiac.com/articles/22310/1/Blood-Testing-for-Celiac-Disease-Isnt-Very-Accurate/Page1.html At the end of it all. I would at least get a second opinion and perhaps contact the Celiac Foundation and ask them for their recommended doctors. Celiac Foundation: http://www.celiac.org/ ( I'm not a doctor and my response shouldn't be taken as a medically certified expert advice. )