• Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes


  • Content count

  • Joined

  • Last visited

Community Reputation

0 Neutral

About calico_drive

  • Rank
    New Community Member
  1. Hi there, I'm a 32 year old female living in Australia. I was just diagnosed with celiac about 10 days ago by biopsy, following a positive blood test in December. First of all, thanks to everyone for all the great advice on this forum - although this is my first post, I have been lurking for a couple of months, ever since I first really started to believe celiac could be my problem, and you have really helped me on my journey. Potted history: Diagnosed with Chronic Fatigue Syndrome when I was about 15. Digestive issues (bloating, flatulence, diahrrea/constipation, reflux) really got noticeable when I was around 20. Dr was of the opinion that it was probably normal, or within the bounds of. I asked about celiac when I was about 25, but was told no way would I have that (don't remember the exact conversation, but that was the bottom line). About 6 months ago my boss was diagnosed with celiac and after talking to her I started doing more reading, and finally took myself to a Dr (not my regular) and asked for the bloodtest. She was fine with that, which was awesome ("You want the test? No problem - just let me fill out the form!"). It came back borderline positive and, after a little pushing from me, she referred me to a specialist. He thought my numbers looked 50-50 for celiac, and worth doing a biopsy. Result of which he found damage to my intestines that was bad enough he could see it himself during the test. So now I'm just venturing into the world of eating gluten free. I'm mostly happy/relieved to finally, finally have an answer. I do feel kind of angry/sad though, that it has been so long (although I know many of you have had to wait much longer for a dx) - I just feel like so much of my life to this point could have been different if my issues had been taken seriously sooner. A short list of things that I wonder if could be related (very interested to see what does and doesn't resolve on a gluten-free diet - would love to hear from others who may have had similar issues): Digestive issues, extreme fatigue, mental fog worsening dramatically over past few months, terrible short term memory, trouble concentrating, dry skin, sores that take forever to heal, flaky skin, uti-like symptoms that show nothing on cultures, night sweats, general high body heat, anxiety, sinus issues, seasonal allergies, crying for no reason, irritability, rage, sensitivity to 'loud' noises that no one else thinks are all that loud, dry and splitting lips, social phobia, and probably some other stuff. I doubt it's all celiac, but even a couple of them would be fab! I am really wondering how long it will take to feel some improvement, especially the mental aspects. Right now I'm waiting for blood test results to check my iron and other vitamin/mineral levels, so I don't yet know what deficiencies I may have. Anyway, I would really appreciate any advice anyone has to offer. And otherwise, I do just really want to say thank you for all the great tips and help I've received so far. You all have really helped me a lot