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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes


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About drewsant

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  1. New Here

    I've been told all my life basically it was IBS. I went to specialists and everything, and have had tons of tests done, and ruled out everything but Celiac or allergies. Finally 2 years ago, I went back to my GP, and talked with the Advanced Registered Nurse Practitioner, and told him that I would eat 3 bites of a sandwich or toast or crackers, and I'd be running to the bathroom. He mentioned Celiac, and said to do the gluten-free diet. That totally overwhelmed me. I also went to an allergist and found out I'm allergic to wheat, soy, chicken, fish, and tree nuts. The 1st 4 foods were my primary diet. If I eat just fresh fruits and veggies, and basic red meat, I don't have any symptoms at all. I think that until just a few years ago, Drs. still thought Celiac was a really rare disease, but now they're coming around to it.
  2. Western Iowa Eastern Nebraska

    I live about 20 miles south of Sioux City, and I haven't heard of a support group, but there might be. I know that the Hyvee on Hamilton Boulevard has a lot of gluten-free stuff, way more than the others do. They might have info on support groups in the area--I've just never asked.
  3. Sorry, I wondered that after I posted, when I went back and read the posts again.
  4. Yeah, I know the difference, believe me. I spent hours and hours on the computer researching it 2 years ago. I either have celiac, or just a wheat allergy, which is what I thought I said but I guess I didn't. But I think I have a wheat allergy rather than celiac, just from my symptoms. But the result is the same, stay away from wheat/gluten.
  5. I went to an allergist about 2 years ago, and had the skin test, and tested positive for chicken, wheat, soy, tree nuts and fish. That's interesting that you're all saying that the skin test is more accurate. I had always heard that the blood test was more accurate. The allergist also told me that the wheat, soy and chicken reaction wasn't that big (it was a 1) but the tree nuts and fish was a 2 so he just said to stay away from the latter 2 things. But every time I eat bread, breaded things, things fried in oil (soy) I get sick--within an hour. I just today decided to go back on a wheat free diet , and chicken, fish, soy, and tree-nut free diet and see if that works better. It's really hard though, because the only things I can afford are fresh fruits and veggies. I'm on disability and unemployed, so not much more than 30.00 a week allotted for food.
  6. I'm allergic to wheat, soy, fish of all kinds, tree nuts, and chicken. I'm pretty much gluten free. It's the soy I'm having a hard time with. Soy eliminates chocolate which is one of my favorite things, as well as anything that has been fried, even tortilla chips, and things I never would have thought of. I've been on what I call my "allergen-free diet" for about 2 weeks. Really not much change yet, but I got a stomach virus that caused a lot of problems for about 3 or 4 days, so I'm still waiting to see if it helps. The fish and nuts and wheat and soy cause stomach cramps and diarrhea. Not sure about the chicken. I love chicken, but haven't eaten it since I was told about the allergy. I might have to eat some and see what happens.
  7. Higher Sensitivity?

    I think most people will tell you this is common to have a stronger reaction after you've been off of it. My doctor told me even the foods I'm allergic to will make me extremely sick after I stop eating them because your body gets used to constantly having that allergen, so it has a certain tolerance, but when you eliminate the allergen, then say a few months later eat it again, your body will have a much stronger response to it. So yes, symptoms do get worse after you've been away from the food for a while, then try to eat it again.
  8. Is Anyone Lonely

    I don't feel sorry for myself either, just frustrated at times that I can no longer eat what I want. I don't think any of us are sitting at home just letting life pass us by, just cutting back on our social lives that revolve around food. I certainly get up and go to work every day, despite having a serious disability, and multiple health issues. This is just one more thing I have to deal with in a long laundry list of issues. And some of us are still fairly new to this, so I think grieving is part of the process, so I wouldn't be so quick to assume we are all just feeling sorry for ourselves and need to get a life. I have a very full one, doing basically the same as I had before, except I've cut back on eating at other people's houses because I can't eat what they serve, and it's much easier for me to get used to the diet. It's a huge lifestyle change, and it takes time.
  9. I had the skin prick test on my back as well, and it revealed a lot of allergies I had that I wasn't aware of, but looking back, makes a lot of sense of what was going on. I knew there had to be something else going on other than Celiac because the only time I wasn't sick was when I was literally just eating fruits and vegetables. I found out I'm allergic to wheat, soy (good luck finding ANYTHING without either one of these things) chicken, fish and tree nuts. Along with the dust mites, pollens, cats/dogs, trees, molds, etc. I was tested for 80 allergens, and had reactions to 25 of them. I would guess you have at least a bad environmental allergy. I wake up every morning coughing, sneezing and stuffed up head--now I know why--dustmites and my dog that sleeps with me.
  10. Is Anyone Lonely

    That's great that you love salad. I don't, and I got tired really fast with the questions about why I'm just eating salad, or whatever gluten-free thing I'm eating, and why don't I try this or that when I really would love to eat something else. I find that if I just entirely remove myself from that kind of situation, I don't have to explain anything, and I don't have a problem with tempting foods. I'm not a person that eats to stay alive. I eat because I enjoy it. And now I don't enjoy it because I can't have much of anything I like anymore. It's become a chore. I also have soy, fish, tree nut and chicken allergies, along with wheat. So not a whole lot I can eat. I guess the issue I have is going to other peoples houses to eat. Not much choice of what to eat when you don't make the bulk of the food, and you can't order a steak off of a menu. It wouldn't bother me going to a restaurant and eating gluten-free.
  11. ILOVEOMC: First, love your avatar! And just wanted to say my stomach pain starts in the lower stomach, then migrates down into the intestines. Sounds like there isn't one specific area that it hits everyone.
  12. I think what is being lost in this thread that some people have alluded to is that doctors are not TAUGHT about celiac disease in med school, or they are taught that it is extremely rare, so not a likely culprit. Don't you think that if you are taught this, you will probably believe it? It's like my job, I work in telephone repair where we have to diagnose phone problems. We are given training and expected to do certain things, and that if something fits a certain scenario, then it is "X" and we do "Y" to fix it. Sometimes that doesn't fix it. Also, we sometimes find out later that something else should have been done, that we were not told, trained on, or whatever, but boy is the customer mad if we didn't know it. How can we be expected to know it if we weren't taught it? If we are not taught something, or something is missing from our training, it isn't always our fault if we "misdiagnose" a phone problem. We rely on our trainers to train us all the info we need to do our jobs. My point is, that doctors have been told by their instructors in college either nothing or very little about celiac. So of course it is going to be misdiagnosed, until more and more people are diagnosed or bring it up to them. A lot of doctors also are reluctant to order a bunch of tests because they don't want to financially burden the patient, especially if they don't have great insurance that might not pay for it. I also have a great doctor. He is a small town doctor in Iowa, and I feel lucky to have him. He will listen to me, and try to figure out what is wrong, and will get out his reference book to look things up--did this when I suddenly complained of migranes after going gluten-free. He learned something new that day, that extreme changes in diet can cause migranes. If he can't figure out what is going on, he doesn't hesitate to send me to a specialist or look it up. He wanted me to go to an allergist months ago, and I finally agreed a few weeks ago. Sometimes he wants to run so many tests that I say no, because 99.9 percent of the time, they come back negative, so I figure why bother with the same tests that they run every year? But he is very thorough. And I found out he is knowlegeable about Celiac, so I know there is at least one doctor that is keeping up on information. I guess I've dealt with so many doctors since I was born, being disabled, that I know how to deal with them, I know what to tell them, how to tell them, and usually can get them to listen to me and take me seriously. I told my doc once that I feel like a hypochondriac because for a few years there, I was at his office every few weeks for one thing or another. He just kinda laughed, and said that everytime I come in , there is something wrong, and I'm just really in tune with my body.
  13. This Is Getting Old

    [quote name='Seosamh' date='Oct 11 2005, 02:20 PM']Our guts take a long, long time to heal.  Do you visit any naturopathic doctors?  They have helped me figure out what to take and what not to take--how to get my gut working, after a lifetime of it not working right.  They focus on helping your body heal, not just diagnosing and medicating. Hope you feel better soon!  Good luck--! Seosamh [/quote] Thanks. I've never heard of a naturopathic doctor. My GP is pretty good. He doesn't like to just give pills for what ails you, he wants to find out what is wrong and correct it. Usually this means a lot of tests, but at least he doesn't just assume it's one thing, give me meds to cover up the symptoms and send me on my way. I've just been finally diagnosed with food allergies which I suspect are causing a lot of my problems. Wheat was a big one.
  14. Is Anyone Lonely

    It has cut down drastically on my social life. I used to go eat at a friend's house at least once a week. I've probably eaten there 2 times since June when I started gluten-free. I can't take food with me, she would be offended, and she really doesn't understand what gluten is-(she's a nurse, too, so you'd think she would maybe) she thinks I can't eat corn or rice (so does my mother). So not safe to eat there. When I eat at my parents, for family stuff, it is usually just eat whatever is gluten-free, which usually isn't much, and watch them eat the good pasta salads, etc.
  15. I think too, that the symptoms are so varied and sometimes vague, that it can be any number of things. Diarrhea, fatigue, foggy brain, can be symptoms of dozens of things, and it's a process of elimination. I read through a list of symptoms and sat there thinking, "how do they know these symptoms are specific to Celiac? It could be anything". Believe me, I'm disabled, and have a lot of health issues. Doctors start with the most obvious, then work their way down. And as someone said, Celiac was considered very rare until just fairly recently, so it wasn't considered necessary to test for it. I found out about it about 8 years ago, mentioned it to a new doctor, he blew me off, saying it was rare, so I dropped it. Then 8 years later a nurse practitioner mentions it to me that I might have it. I am beginning to think I don't have celiac, but food allergies. One of which is wheat, which would explain why I responded to the gluten-free diet, when I was just eating fruits and vegetables for 3 weeks. Then I started adding other things that it turns out I'm allergic to, and the diarrhea started again. I was thinking the other day that it is really hard to pin down a lot of illnesses, because there can be dozens of reasons for any particular symptom. I mean, my diarrhea could be caused by Celiac, medication I'm taking, food allergies, stress, seasonal allergies, irritable bowel syndrome, depression, lactose intolerance, or even my disability can predispose me to have it because of nerve damage. I don't really know. I just have to explore every avenue to see what works and what doesn't. It's amazing that doctors correctly diagnose as many things as they do, really.